While Whitney and I were training at the Seeing Eye last month, the PR people interviewed a few of us for a short one-minute promotional video. You can link to the video on YouTube, but get out your Kleenex first – it’s downright heartwarming. And be sure to watch from beginning to the very end, otherwise you’ll miss a quick snippet of fellow Seeing Eye graduate Tracey Melchiorre, who more or less bookends the video. Tracey is a feisty gal with a Texas accent, and she’s alive and well today thanks to a young man who believed in organ donation.
Tracey was diagnosed with Type 1, or juvenile, diabetes, when she was eight years old. She lost her sight in 1991, when she was 24. A year later, she met Mike Melchiorre at a Houston Rockets game — they fell in love, got married, took classes to become certified as foster parents, and adopted Elijah, who they had fostered as an infant. Elijah is seven years old now, but he was still a toddler when diabetes started damaging Tracey’s kidneys. She was on dialysis for a year and a half before receiving a kidney and pancreas transplant. “It was on July 27, 2008, not that I remember the exact date or anything!” she says with a happy laugh.
Like Tracey, I was diagnosed with juvenile diabetes when I was a kid, and over the years, friends have asked if I might consider a pancreas transplant. It’s true a pancreas transplant might offer a “cure” for type 1 diabetes, but many physicians are reluctant to transplant a pancreas alone for diabetes without renal failure. The reason? Side effects of the immunosuppressant drugs required after transplantation are more detrimental than the complications of diabetes.
When someone like Tracey (who had severe kidney damage due to type 1 diabetes) is experiencing renal failure, doctors reason they may as well combine a pancreas transplant with
a kidney transplant. That way you end up with a healthy kidney, plus a pancreas that won’t damage it anymore.
Being a transplant recipient is great, Tracey would tell me. “No more diabetes or kidney problems!” At the same time, she readily acknowledged that she’d exchanged one set of challenges with another. I’d hear her alarm go off twice a day to remind her to take her anti-rejection medication, and she still has regular doctor visits and blood tests and a compromised immune system to deal with.
So while I envied the way she could eat desserts at dinner without worrying how much extra insulin to inject to “cover” the extra carbs, or how she’d scurry out to the Seeing Eye shuttle bus without pricking her finger to check her blood sugar level first, or never had to pat her pockets to confirm she had a glucose tablet along, you know, in case of a low blood sugar en route, I am hopeful my kidneys stay healthy and I never need a transplant.
I have a brother-in-law who has been on dialysis for over a year. He’s still waiting for a kidney donor. He is not a complainer, but I know dialysis is tedious and tiring. When I asked Tracey what got her through all those months and months on dialysis, she said, “God brought Elijah into our lives at just the right time to keep us going and smiling.” She also credits her church family, who provided prayers and food, and her parents, who helped almost daily. My brother-in-law seems buoyed when he’s with his family, but he tires easily and is not able to travel as much as he used to. We are all hopeful he gets news of a donor match soon.
Tracey’s pancreas and kidney came from a 23-year-old man in the Carolinas, and she is grateful that young man believed in organ donation. She told me she doesn’t know much about his background, or his family. “I only know about his mother, and that she loved him.” In a thank you note to this young man’s mother, Tracey said that the transplant will add an indefinite number of years to her life, and healthy years at that. “I told her about Elijah, and how my son will grow up having a healthy mommy who can go to his games, cook his meals and take care of him.”
Signing up to be an organ donor is much easier than you might think. A web site called Donate Life America provides a list of where to register in your state, and United Network for Organ Sharing (UNOS) provides an easy-to-read fact sheet dispelling common myths about organ donation.
One thing I learned from that list: a history of medical illness does not prevent you from donating organs, and neither does old age. With recent advances in transplantation, many more people than ever before can be donors, and while it’s good to sign up to be an organ and tissue donor on your driver’s license, it’s best to sign an official donor document, too.
Tracey says the most important thing to do if you want to be a donor is to tell your family your wishes. She doesn’t have information on how many other lives were changed by this young man’s decision to become a donor, but she did tell me this: a single donor can save up to nine lives, and improve the lives of as many as 50 people.
I have a friend who is alive today thanks to a liver transplant. Needlesss to say, I am signed up to be an organ donor.
Beautiful dog, and what a sweet-looking child. Great post, I hope it encourages more people to sign up to donate.
Beth— Thanks for this post! It is a great reminder of the importantance of the donor process. I signed up to be an organ doner long ago, but quite frankly, since it was long ago I don’t know if it is still active! I will check it out with the link you included to be sure I have it done correctly. Thanks the education and the great stories of hope.
You were right to worn us to break out the Kleenex –….. All I can say is Wow, Wow, Wow….not only about Tracey’s story, but the whole organ donor thing. The latest post and video were very touching. Again, wow! That’s all I can say.
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What a great article..thanks for weighing the pros and cons ‘out loud’…makes you really think about all the issues involved. You didn’t mention how STUBBORN that man is…that probably helps, too.
To my blog readers, when Janet Sterling refers to “that man,” she is talking about her father, my brother-in-law who is waiting for an organ donation. I suppose she’s correct when she says that being stubborn might help in his situation, he stubbornly heads to dialysis three times a week, drives himself there, doesn’t want to burden anyone else by having them accompany him. Feels somewhat maudlin to say we hope a match comes through soon — I am not wishing for anyone to die, hope you blog readers know what I mean.
Thanks, Beth, for letting us know all that is involved in Type I Diabetes and pancreas/kidney transplants. Remember when I wrote a blog about losing eyesight bit by bit due to retinitis pigmentosa? And you commented that you felt RP was the cruelest of blinding diseases? Well, bless your heart and those of all who have diabetes because, while I feel no pain and have no expensive or debilitating medical side effects and costly treatment, you guys are out there coping with all manner of issues. Blindness in and of itself ain’t easy, but throw in everything you have to go through, well, I feel lucky.
Ah, you are sweet to leave this reply, Jeff. Not sure “worst of blinding diseases” is a contest I want to win, though…!
Great post! I signed up to become an organ donor a couple years ago. It’s nice to think that once I’m gone (someday), that I can still help someone.
I did like the video as well, however the way they edited it at the beginning made it sound kind of pompous. I’m all for promoting the school and telling people how great their dogs are, but I don’t think there is *one* “best guide dog school”.
So true, Kate, and mea culpa – I am one of the ones lauding the Seeing Eye as the “Harvard of guide dog schools” at the beginning of the video. The YouTube producers interviewed the five of us for an hour each and then condensed all our comments into this one minute. When they asked why I had chosen to go to the Seeing Eye (there are over a dozen schools that train dogs to help people who are blind) I told them I’d signed up for a couple different schools, but when I realized the Seeing Eye was the oldest guide dog school in the United States I figured I’d go there, that it must be “the Harvard of guide dog schools.” That’s the part they decided to use.
And by the way, Harvard isn’t the oldest college in America, anyway. I think William and Mary in Virginia is older!
Anyway, thanks for pointing out this flaw in the video, love the honesty in your comments here, Kate.
I try to be as honest (in a nice way) as possible.
Ah, yes producers do love taking quotes out of context don’t they? I think I will apply to TSE for my next dog, not because I have any qualms with my current school they are lovely, I just want to try working a Shepherd which TSE has more of. I love trying new things, schools and breeds are no exception.
I am late to posting on this thread but wanted to add a few things. Signing a donor card is great but it should be followed up with a “living will”. You should have copies filed at your lawyers office and make several copies for yourself and your near and dear. Your lawyer will know the particulars for your state. If you have to be in the hospital, take a copy for your hospital record. Most important of all, make sure that ALL of your family members and close friends know about your wishes. That way (hopefully) everyone can be on the same page if the time comes. I know this is a morbid topic for many–perhaps not for Christmas morning discussion. No matter what you’ve signed, in the heat of a crisis, a hospital will defer to the family’s wishes (think lawsuit). If they aren’t in agreement, things can get ugly fast.
I actually do know about this subject… I was lucky enough to be a research technologist (heart research) down the hall from a surgeon who was doing liver transplant research on dogs. (I realize that we are ALL dog lovers here but the truth is that many medical advances start with animals. Personally I think we should use serial killers as research subjects instead but that’s me.) I was good friends with the transplant coordinator in Memphis and was invited into the O.R. to see one of the first liver transplants done on a child. MY boss, a cardiologist, took care of one of the first people to receive a heart transplant. This was long after her transplant. She was a lovely woman who worked in President Kennedy’s administration! This is a topic near and dear to me.
[…] more than I do. If you watched that short one-minute Seeing Eye promotional video I linked to in a previous post, you saw Karen Keninger — she’s the graduate who gets a little teary-eyed in the video. […]
Hello just wanted to give you a quick heads up and let
you know a few of the pictures aren’t loading correctly. I’m not sure why but I think its a linking issue.
I’ve tried it in two different browsers and both show the same outcome.
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