Bennett, the Brailliant, and my visit to Tess Corners Elementary in Wisconsin

April 27, 2016 • Posted in blindness, Braille, careers/jobs for people who are blind, parenting a child with special needs, questions kids ask, technology for people who are blind, travel, Uncategorized, visiting schools, Writing for Children by

Last week my Seeing Eye dog and I met a second-grader I’ve been hearing about for years. Bennett is a student at Tess Corners Elementary School in Wisconsin, and Whitney and I spent the entire day at his school Friday.

That's me and Bennett.

That’s Bennett and me. He’s holding a Braille copy of Safe & Sound.

I first heard of Bennett back in 2013, when his mom wrote to tell me how much her five-year-old enjoyed reading the Braille version of my book Safe & Sound. From her note:

“Bennett was so excited about the book. He told me, “I loved that book you got me. It’s a true story, mom. And no one ever writes true stories for kids about people who are blind like me.”

A stellar review — from an expert.

I kept up with Bennett and his mom via email ever since, and in 2014 I wrote a post about Bennett and his parents traveling from Wisconsin to the Children’s Hospital of Pittsburgh to have Dr. Ken Nischal, one of the world’s foremost children’s eye specialists, try a cornea transplant in Bennett’s right eye.

Bennett told me Friday that his vision improved in his right eye after the surgery. “But just for a little while.” Whitney and I got to his Wisconsin school just in time to meet Bennett in person — he’s returning to the University of Pittsburgh this week for more tests.

Bennett and I spent the first hour of the day together with an older boy who has visual impairments — Michael came in special on a short field trip from his middle school. They both had questions about Whitney, and I let each of them inspect her harness and take a few steps with her. After that, we were off to the first presentation.

Tess Corners is a happy school. The teachers expect a lot from their students, and they enjoy their work — I heard smiles in their voices. Their principal taught first and second grades for decades before accepting an administrative position there, and she told me she still misses teaching sometimes. The school librarian had read Safe & Sound out loud to every class before Whitney and I arrived, and with Bennett at their school, the kids at Tess Corners already know a lot about blindness.

They still had questions, though. Bennett and Michael were at my side for the presentation we gave to all the second graders (including Bennett’s second-grade class), and during the Q&A, I answered each question first, then passed it on to my young assistants.

“Can you see at all?” one girl asked. “When I open my eyes, all I see is the color black,” I told her. Michael said, “I can see some things if I hold them really close.” Bennett said, “I can kind of see light, but everything is blurry…like a cloud.”

Another child asked “How do you read if you can’t see?” I described audio books and my talking computer, Michael touched the screen on his iPad so we could hear VoiceOver, and Bennett showed off his Brailliant, a refreshable Braille device.

That's the Brilliant device Bennett uses.

That’s the Brailliant device Bennett uses.

Michael eventually had to return to middle school, but Bennett stayed in front with me long enough to read aloud to his classmates from the Braille version of Safe & Sound. His composure and confidence was remarkable — a credit to his fellow students, his family, the teachers and staff at Tess Corners, and, especially, to Bennett himself.

Bennett left with his second-grade class after that, and Whitney and I presented to the other grade levels on our own. I met up with Bennett again one last time during his lunch break — he wanted to show me how to use a Brailliant.

A Brailliant is an electronic device people who are blind use to read with their hands. The Brailliant transforms the words on a computer screen into small plastic or metal pins that move up and down on a flat panel attached to the computer. Bennett explained how he places his fingers on the panel to read the Braille characters formed by those pins, and then demonstrated by reading a line of text out loud. I’d never seen, errr, felt, such a thing before.

My Braille skills are poor. Bennett used the keys to tap out secret messages and pass the device my way so I could read them in Braille. He couldn’t help but notice — and chuckle — when I struggled to decipher his big words.

Bennett dumbed it down then and used shorter words. He placed my hands on the keys to show me how to compose and send a Braille note back. The blind leading the blind for sure. We exchanged “refreshable Braille notes” for the rest of the lunch hour.

Today fewer than 20 percent of blind children in this country learn to read Braille. Bennett uses VoiceOver to check his school assignments, and he listens to audio books sometimes, too. But he and his teachers know that if he doesn’t learn to read Braille, he won’t learn to spell correctly. He won’t know where to put commas, quotation marks, paragraph breaks and so on. Bennett has already tackled a lot of this stuff.

It’s true I’m not proficient in Braille, but the little I know sure comes in handy when I label CDs, file folders, ID cards, buttons on computers and other electronic devices. My Braille skills are useful on elevators, too, and it was rewarding to know enough Braille to exchange secret messages Friday with that bright, curious, cute — and patient — second-grade boy I’d been hearing about all these years.

Robert Ringwald On April 27, 2016 at 3:03 pm

Dear Beth,

What a wonderful, inspirational blog. Congrats to you for doing such a great job in helping the general public and especially the school kids to understand blindness.

Please keep us informed on Bennett’s progress as he grows up. He sounds like a very special kid. I believe that he will really go places and leave his mark on society.

Best, –Bob Ringwald

bethfinke On April 27, 2016 at 6:08 pm

Oh, Bob, I hope his mom and dad are reading these comments!

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Linda Miller On April 27, 2016 at 3:48 pm

Catching up on your blog. I’m always amazed at how much you do and how many great people you meet along the way. Voted for your group and enjoyed Mike’s Prince memories too!

bethfinke On April 27, 2016 at 5:59 pm

I’ve said it before but worth repeating: I am a lucky woman. Hey, and thanks for voting for our memoir group. We’ll know by Sunday who wins the chance to work with the Lyric Opera….

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Lucy Spoerk On April 27, 2016 at 6:00 pm

Thank you Beth for coming to our school and sharing your talents with us. As you know, Bennett shares your enthusiasm for learning and you gave him (and the other students) that gift of modeling. That spark will burn for years and years to come. Thank you for your time and energy. It was greatly appreciated. (Lucy, a first grade teacher at Tess Corners)

bethfinke On April 27, 2016 at 6:13 pm

Lucy, I’m the one who should be thanking you and the other teachers and staff at Tess Corners. Whitney and I had a ball.

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Mel Theobald On April 27, 2016 at 11:42 pm

I was moved to tears of joy reading this post. Bennett, like all kids, seems to be light years ahead of all us old folks when it comes to technology. Thank you so much for telling his story and let’s hope that the discriminating forces of the past melt away and give opportunity to those whose “vision” of the future is unlimited.

bethfinke On April 28, 2016 at 8:27 am

Beautifully said, Mel.

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Monna Ray On April 28, 2016 at 10:14 am

Beth,

What a pleasure to meet Bennett! I loved reading that you heard smiles in their voices.

Monna

bethfinke On April 28, 2016 at 11:13 am

It’s true. I heard them loud and clear!

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bev On April 29, 2016 at 11:57 am

Bennet….what an impressive lil guy! And Michael with all his tech savie. Can’t wait to hear updates on these two!

bethfinke On April 29, 2016 at 12:05 pm

You’ve just given me an idea. Maybe when Bennett returns back from Children’s Hospital in Pittsburgh I’ll see if he wants to do a guest post….?

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Deborah Darsie On April 30, 2016 at 4:54 pm

What a great assistant you had in Bennett! I hope things have gone well for him at Children’s Hospital.

I had a coworker who had what is probably an earlier generation of the Brailliant keyboard in your picture. I occasionally had to update configuration of some software on his PC. And he used JAWS for text to speech during his daily work.

Being a geek I enjoyed the chance to seehear how things worked. I hope I will get a chance to see the latest generation of tools someday.

Oh yeah – PLEASE ask Bennett to write a guest post.

bethfinke On April 30, 2016 at 9:24 pm

Will do.

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DJ Mermaid On May 2, 2016 at 10:52 am

I really liked this post Beth! Bennett keeps the ball rolling for people with disabilities.

Bryan McMurray On May 9, 2016 at 11:15 am

O Beth! I loved this one, loved you and Bennett, loved seeing you with him and the kids. I love imagining the hope you give his mother, his family! I remember doing such presentations, and think you do 100 times what I did! Then, I think back to how I was, so like Bennett at that age, wanting to be in the middle of all the action, not shy about being different and displaying all my different skills, but also, wanting to be, just me! What a kid! I’ll probably never meet, but share with you so vicariously! Thanks dear Beth, for laying your life out there for him and so many others! Bryan >

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