I Don’t Care What You Look Like

January 28, 2022 • Posted in blindness, technology for people who are blind by

A journalist contacted me a few months ago. “I’m working on a story about restaurants and accessibility,” she said. “Would you be willing to meet me for an interview?”

Of course I said yes.

We met at our local, Half Sour, and after introducing herself she asked, ““Do you want me to tell you what I look like?”

I’m getting that a lot lately. People asking me if I want to know what they look like. More and more people giving panel discussions on Zoom, leading presentations at libraries, introducing themselves at lectures are describing their looks out loud after introducing themselves.

I’m Beth. This is my back. I have a red coat.

I answered the reporter’s question with a question of my own: Why would I?

” I don’t know,” she said with a nervous chuckle. “I just read on the internet that I should describe my physical appearance when I introduce myself to someone who can’t see.” I hated hearing this. I have no idea where this declaration started, but it sure has sprouted up on a lot of “disability etiquette” lists lately.

Maybe it has something to do with all the Zoom meetings people have been on the past couple of years? Did some disability advocacy organization decide this is a way to “equalize” the experience for people who are blind? The one thing I do know is this: they didn’t ask me for my opinion on the matter!

In the past year or so I’ve attended more and more events (live and virtual) where the speakers or participants are told to “self-describe” themselves before starting their presentations. You know, for the “benefit of people in the audience who have a visual impairment.”

For me? I’d rather not know. Asking people to describe what they look like is awkward. And let’s be real. Can I trust anyone’s self-assessment, anyway?

In Mike’s “Mondays with Mike” post earlier this week he wrote about the passing of our dear friend Janet Smith. Janet’s husband Jim Loellbach worked with University of Illinois Chicago staff and graduate students all last week to set up and present a virtual celebration of Janet’s life this past Sunday. More than 300 Colleagues, students, family and friends zoomed in, and being virtual and all, people living everywhere from Beirut to Hamburg, Miami to Walla Walla Washington could celebrate Janet with us, too.

I felt honored to be one of the dozen attendees asked to give a short presentation at the event. Knowing Janet’s co-workers and grad students were responsible for the technology assured me it’d all be accessible – I’d be able to “mute” and “unmute” using my screen software.

And I was right. It was.

When I sent an email their way the next day to thank them for their technology prowess, one of them responded with an apology. “I am glad you felt the event was accessible,” they wrote. “I was a little concerned about that, wondered if we should have had all the speakers describe themselves first.”

Argh! I’m sorry they felt this way. Self-describing takes time , and I was much more interested in hearing what people at the celebration had to say about Janet than hearing what the people telling the stories think they look like.

During my short presentation about Janet, I mentioned that one advantage of being blind is that you get to walk arm-in-arm with friends a lot. Janet and I walked arm-in-arm everywhere – to the Chicago River, the Chicago Lakefront, Printers Row Park, Millennium Park, nearby restaurants, bars, and the wine shop. Walking arm-in-arm makes it easier to hear each other, and the conversations we had –especially in these past two years – are a gift from Janet to me.

Another advantage of being blind? not knowing what people look like. In the spirit of Martin Luther King, Jr., I live in a sensory world where “people cannot be judged by the color of their skin but by the content of their character.” I’m left to judge others by what they say. And what they do.

Something about this new emphasis on having people self-describe themselves seems counter-intuitive to efforts to become more diverse. Do I need to know what people look like to judge what it is they are saying? I’d rather have them introduce themselves by saying their name and what it is about them that prompted the event to invite them as a presenter.

Which is exactly what happened at Janet’s celebration Sunday. Tears were shed, yes. We laughed some, too. Friends and colleagues spoke with Italian accents, English accents, Scandinavian accents and in all sorts of American dialects. I suppose we all looked pretty different from each other, but who cares? The one thing we have in common is far more important: our love of — and gratitude for — our friendships with Janet.

Patricia L Fraser On January 28, 2022 at 10:19 am

This made me so happy….but it doesn’t change the fact that we both love a beautiful coat. Your beauty radiates.

Patricia Wright On January 28, 2022 at 10:23 am

Thanks for this perspective Beth. Have seen (and done) this a few times thinking that it was the right thing to do. It felt a bit performative but thought maybe it was just me feeling awkward about doing something new. What I so appreciate about your insight is -if what I look like has nothing to do with my content, why am I saying it?? Maybe if it was relevant, I was doing a talk on weight discrimination and I mentioned I was overweight, or on age discrimination and I shared that I have gray hair and look my age. So appreciate your advocacy and perspective, and as always the opportunity to learn from you.

Doug Finke On January 28, 2022 at 10:52 am

I LOVE this article, Beth. I agree. The idea of describing how I look is unnecessary,
inconsequential and a waste of time. I also think the photo of you walking away in your red coat really nailed it.

And I’m so sorry that you lost your good friend, Janet. She obviously thought a lot of you too.

Susan Ohde On January 28, 2022 at 12:25 pm

Loved your picture and description of yourself. Do you know the song “Blind Mary” by Gnarls Barkley? It’s about a guy who thinks he’s visually ugly and he loves this blind girl because she can’t see him. And he’s beatiful inside! I’ll send the You Tube video (ironically) to your email.

Lola On January 28, 2022 at 12:29 pm

I LOVE your red coat. Red is my favorite color. I am really sorry you can’t see it.
However, I have always appreciated that in your classes we don’t talk about how we look unless it’s relevant to our essays.
Janet’s virtual memorial was perfect.

Bev On January 28, 2022 at 12:45 pm

You’re honesty continues to educate.

Here’s to Janet. Pretty sure her spirit lives on in Printers Row and beyond.

Cheryl On January 28, 2022 at 1:03 pm

What a wonderful tribute to your friend Janet. Your inner beauty is shining.

Annelore On January 28, 2022 at 2:15 pm

I agree with you Beth, having grown up with the saying: Kleider machen Leute – Dress makes a Person, I had always resented the idea of being judged by my clothes. One’s choice of dress is often based on financial resources and can be unfair. What matters are our actions and yes, words. But not words about what we look like.

Jean Thompson On January 28, 2022 at 7:24 pm

I am really glad to have permission not to describe myself. I am sure I would get self-conscious and mortified. One more good reason to get a red coat.

Jose DiMauro On January 31, 2022 at 5:20 pm

Thank you, Beth, for your continuous teaching!

Marilee On February 2, 2022 at 12:01 pm

I have never experienced “self-describing” – but I am very glad that you shared, and I totally agree with you. Seems totally ridiculous to me. As Bev said, I am sure her spirit lives on in Printers Row.

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