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Guest post: They may just have to lie about their age

September 15, 20177 CommentsPosted in book tour, careers/jobs for people who are blind, guest blog, memoir writing

I like promoting my books as much as I like writing them – you meet so many cool new people, and in so many different settings. We had a great turn-out at Women & Children First bookstore last Wednesday (big thanks to all of you who came), and I’m speaking to a group this afternoon at The “ssenior lifestyle facility” where Hannelore, one of the writers featured in Writing Out Loud, lives now. This past Tuesday? I nestled into a comfy chair in a beautiful condo on Chicago’s north side for a book party. The dozen women Sharon Silverman (another writer from one of my memoir-writing classes) invited to her place hadn’t all met before, but thanks to a little wine and a writing exercise, they left knowing each other pretty well. Here’s Sharon now, with a guest post about that party.

by Sharon Silverman

Let’s start at the beginning. Beth lives in the South Loop. I live miles away in Chicago’s Rogers Park neighborhood. How to handle the logistics? When Beth heard that the #147 bus stops right on my corner, she just shrugged and said, “Oh, I’ll take the bus with Whitney.” Piece of cake.

Photo of women gathered in a living room.

We had a great time at Sharon’s house.

Winding her way on the bus through the Loop, onto Lake Shore Drive, and eventually on Sheridan Rd., Beth would text each location to me. “Getting closer.” “At Greenville stop.” “Almost there.” Eureka! When they arrived at the corner of Farwell and Sheridan, I sent my friend Margaret down to escort them back to my place. Let the fun begin!

No evening at my place is complete without wine and goodies, so my wonderful women friends join Beth and me with glasses of red and white and plates of cheese, crackers and sweets. Bonus: cocktail napkins that say, “Book? I’m just here to drink.”

Each woman I invited is remarkable in her own right: a psychotherapist, a graphic artist, a Kohl award-winning early childhood teacher, a former college administrator, a piano teacher, a human resources manager, a community college teacher, a higher education professional. Sitting in a circle in my living room, let the stories commence!

“Let me tell you about the little three year old boy in my class who uses swear words.” “That reminds me of the college administrator I know whose vocabulary is full of unmentionables.” Laughter abounds. We are connecting and entranced as we listen to each other — a prelude to Beth’s presentation about writing memoir.

Beth tells her story and describes how she conducts her memoir writing classes. The stem of Beth’s glass of red is ensconced very tightly between her feet on the floor, right in front of Seeing Eye dog Whitney — who behaves herself and doesn’t dare take a sip.

Beth had asked if I’d share some examples of assignments I’d written for class. I chose a piece I wrote when she assigned “Late Again” as a writing prompt. My essay was about showing up late for school every day during my teenage years –I wasn’t terribly fond of high school. When Beth describes some other writing prompts she uses in class, I bring out the essay I wrote when we were asked to write an entire 500-word essay using only three-word phrases – my piece acknowledges my worries about what life might be like a decade from now. An excerpt:

Blood pressure high.
Mom’s was, too.
Bladder is weak.
Please don’t leak!

Lots of smiles and giggles, and then I pass around notebooks and pens for a quick memoir-writing prompt. The writing exercise is optional, but these 12 women are game. They all give it a try, and by the end of the evening, it’s apparent we have some budding memoir writers in the group.

I had to laugh when some realized they aren’t old enough to join one of Beth’s classes. “I’m just 50.” “Can I join a group?” “I just got my AARP card in the mail! Does that count?” More wine, more laughter, and as the party ends, Beth rummages through her backpack to dig out her ink pad and rubber stamp. Whitney’s pawtograph is ceremoniously stamped into our copies of Writing Out Loud, and Beth autographs them, too. Truly an evening to remember.

Mondays with Mike: It’s a cel-ablation!

September 11, 201717 CommentsPosted in Mike Knezovich, Mondays with Mike

First things first: Beth’s sister Marilee and her Florida family weathered Irma and everyone is safe. Though it sounds like some hard work is ahead. Phew.

Now, in other news: For those of you who care to know but don’t yet, I had what’s called a catheter cryoballoon ablation last week. Rolls right off the tongue, doesn’t it?

First, the back-story: I was diagnosed with atrial fibrillation last year—basically, the electrical signals that trigger heartbeats went haywire. It manifests itself differently in different people. For me, I could be sitting and doing a crossword puzzle or just watching TV, and my heart would take off beating and it was like a hamster was running inside my chest—but with an irregular foot speed. My heart would race as if I was exercising vigorously even though I was perfectly still. I’d get dizzy, short of breath, and pretty much non-functional. Sometimes it’d last a few minutes, but it often lasted hours—and once a day and a half.

Movie of procedure.

Want TMI? Here it is!

It was completely unpredictable, I landed in the ER more than once, and it made it pretty difficult to maintain normalcy. The docs and I tried some things, including medications. Nothing worked.

So, last Wednesday I checked into Northwestern hospital, and I was prepped—I’m on the hirsute side so now my chest looks like a tic-tac-toe board after shaving for all the adhesive electrodes and other stuff they had to stick on me. I was sedated but not put completely out, so I could kind of hear things but simply didn’t care. Wish I could just conjure that up on demand.

A team inserted a tiny tube in a hole they made and then snaked it into my heart. Then, a tiny balloon was deployed through the tube, a balloon that was chilled to around -40 degrees via liquid nitrogen. (I was warned that I might have “ice cream headaches” and indeed I did.)

The balloon froze the area of cells responsible for the bad electrical signals to put them out of commission. In all it took about three hours, but they kept me overnight. And I was happy to stay.

We won’t know how well it worked for a couple months—everything has to heal up and calm down—but so far so good.

It all made me think of a movie from my childhood, Fantastic Voyage, without the submarine. All in all, pretty amazing.

I told some people about all this in advance; some by design—I made sure my nephew knew, for example. But otherwise if was more about circumstance. In some cases it sort of came up naturally. But when it didn’t, I felt kind of funny bringing it up—I mean, when I’m talking to friends about baseball or politics or a play we saw—there’s just not a natural opening to say, “Hey, have I told you about my upcoming ablation?”

It’s funny these things. A couple we know who are in their 80s were talking about this. Our friend Jim would never utter a peep about any of his own medical issues. But Kathy, his wife, is the polar opposite. “I want everyone in the world to know about mine!”

I get both of them. And I completely understand being miffed at finding out about friends’ health issues after the fact.

But. Is there etiquette for this stuff? I don’t know.

Beth and I have had our share of medical issues and we learned long ago that, well, they can come to define you if you let them. And as we attain a certain age, there are only going to be more.

So it’s bad enough you spend time at the doctor, getting tests, waiting for results, having treatment. And then you spend your free time talking about it?

Or writing about it. Like I just did.

P.S. Though I’d love to take credit for cel-ablation, it’s the creation of Steve Ferkau.

Guest Post: A blind date with Irma

September 9, 201714 CommentsPosted in guest blog

My sister Marilee and her family have lived in Orlando more than 30 years now. Here she is with an eyewitness account of preparations for Hurricane Irma — they anticipate they’ll experience the first signs of the storm tomorrow night.

by Marilee Amodt

Hurricanes — we’ve seen a few. Andrew, Bonnie, Charley, Frances, Matthew. Like a blind date, you never know what might happen. Irma has been all over the map, so we aren’t quite sure what to think about her. Will she remain strong, or will she weaken at the sight of us?

Let’s hope it’s hyperbole.

We are prepared for our date. We have batteries, lanterns, water, gas in the car and all of the right snacks. How long will she stay? The date might fizzle out quickly. That would be okay with us.

This hurricane season is a bit different in our household. My husband, Rick, had surgery on his leg ten days ago. He is still recovering. Normally he is the one shopping for food and supplies, draining the pool, and cooking enough food to last a week. Not this time.

We have had plenty of notice about the upcoming storm. Since Rick was recovering, we were home for Labor Day. I spent that day shopping. I filled the car with gas, too, and didn’t wait in a line at all. Rick is the cook in our family, but I’ve done more cooking this week than I have in decades. I learned how to drain the pool, and our daughter Jennifer and our three-year-old granddaughter helped us move things around in the pool area to prevent them from flying away in the storm.

When I’m out and about I see long lines at gas stations. I stand in long lines myself at grocery stores and big box stores. Pre-storm activity. People have been friendly for the most part. “Are you ready for Irma?” is a typical conversation starter.

On our neighborhood’s page on social media, new Florida residents are looking for advice from Hurricane survivors of previous years. Plywood has been a hot topic. Where is it available? Should we board all the windows? Why aren’t you covering your windows? The questions go on. Should I cut that tree down? When do you drain the pool? Do you have a generator? Which gas station has gas? Where can I find bottled water? When do you make the decision to leave?

If you are asking that one, it is too late.

Our son Robbie and his family live in South Florida. They’ve made the difficult decision to move to a shelter, and we are relieved to know they’ll be in a safe place. Robbie works for the city of Boca Raton and needs to stay in the area: he’s part of the city recovery team.

On social media, our daughter’s good friend Amy asked her Facebook friends to imagine someone telling you that a huge, scary monster is going to come along in a couple days that might destroy everything you own. “They don’t know if that will really happen or when, but they keep talking about it and warning you,” she says. “You buy Pop Tarts, and you wait and wait and wait. Yep, hurricanes suck” And then yesterday our daughter Jen added this:

We have heard of Irma for weeks. We have agonized over her all week. We have cleared shelves of water, canned goods, and bread. And now on this beautiful sunny day, where schools have been closed in preparation, we wait. We sift through memories of past hurricanes. Will we be without power (ever important AC in Florida) for a day, two weeks? Will our roof survive? Should a major gust hit our huge beautiful oak trees, will they crush our car or house? Only time can tell us. So in these final days as we sit in anticipation we prepare our house as best we can (patio furniture indoors, boards on windows, sandbags at the doors), batting down the hatches and ensure our kiddos everything will be okay. When ultimately none of us have any idea what lies ahead! Please be kind Irma.

So as we prepare for another date with destiny, we feel confident and yet wary about what might come of this meeting. We will let you know how it goes. In this case, we are hoping that the date is a flop!

Mondays with Mike: A night to remember

September 4, 20177 CommentsPosted in Mike Knezovich, Mondays with Mike

Last night Beth and I joined friends for a celebratory picnic on the lawn of the Pritzker Pavilion at Millennium Park. The occasion: Our friend Janet just became a full professor at the University of Illinois-Chicago, a testament to her brains and fortitude. As we noshed, we listened to jazz—it was the final night of this year’s Jazz Festival—and the evening was capped by a performance by The Rebirth Brass Band.

High school kids from Joseph Clark Senior High School in New Orleans’ Tremé neighborhood founded Rebirth in 1983. Members have come and gone, but the second line tradition, the raucous, powerfully rhythmic music that makes you move whether you want to or not, goes on.

Beth and I lived in Urbana in the early 90s, and it must have been 1992 when the two of us began planning a trip to New Orleans. When we struck up a conversation with Jon—who booked bands for a music club in downtown Champaign called The Blind Pig—and asked for recommendations. He didn’t hesitate: “There’s a band you absolutely have to see,” he said. “It’s called Rebirth Brass Band. It’s not like anything you’ve heard, and promise me you’ll go.”

We found care for Gus through a Respite program, and we flew on Thanksgiving day because it was cheap. We headed to a touristy place called Seven Sisters in the Quarter for dinner and picked up the local weekly. Sure enough, Rebirth was playing that night at a place called Kemp’s.

It’s not the Rebirth we saw at Kemp’s, but here’s a nice taste:

I asked the waitress if she knew anything about Kemp’s. Never heard of it. Back to the hotel we asked at the desk. Nothing. Finally, we just headed outside with the address and found a cab.

The driver didn’t know the name but he knew the area. Sure you wanna go there? Yep.

The listing said the show started at 9, and me being me, we got there like an hour early. Kemp’s was a ramshackle one-story building that looked like a house more than a club, replete with bars on the windows.

“Let me check it out for you,” the driver said. He left us in the cab, walked into the place and a few minutes later said, all right, if you’re sure. We paid the fare and headed in.

On the inside it looked like it did on the outside—a functional dive. There were a couple bartenders with not enough to do. There were maybe two or three other people. We took seats at the bar. I ordered a beer, and the bartender asked if I wanted a straw. It was a thing there.

Time passed and by 9, well, there were maybe 10 people there, all from the neighborhood and known to the bartenders. No sign of any performance on the horizon.

Then, a slim but muscular guy in black jeans and a tight, white T-shirt—think a young Bruce Springsteen—walked through the front door.

“Johnny!” shouted the locals at the top of their lungs. Johnny swaggered to the jukebox, took out a ring of keys—the kind you see maintenance guys carrying—stuck one into a recess in the front of the juke box, and motioned to the patrons. They ran up and started making selections—while Johnny was in the house, the jukebox was free.

As we neared 11:00 p.m., the place got very crowded. And then around 11:15 one of the bartenders yelled, “Everybody out, pay your cover and come back in.” One of the bartenders went to the restrooms—they found a kid standing on the toilet in the stall of the women’s bathroom trying to sneak in free.

Because of Beth’s blindness, they let us pay at the bar and hold our seats.

After a chaotic re-entry and more people filing in, the place was absolutely crammed. Somehow, though, as soon as we heard the first notes from a tuba, a path was cleared and Rebirth marched in. There was no amplification, but I’ve never been in a more electric space.

The band somehow fit themselves onto a tiny platform that could hardly be a stage. I should say they were on and around it.

It’s cliché, but you could feel the music. All those young kids pushing air out of all those horns and a bass drum beating a rhythm that could make Elaine from Seinfeld look good dancing.

I know, because Beth and I danced for hours, and we did it like no one was watching. We danced with each other, with the people next to us; we were just one big, ecstatic, sweaty, undulating mass of people having the best possible time humans can have.

I don’t know how many sets they played, but I know they didn’t quit until after 4:00 a.m., because we were still there.

That’s when things got dicey. The bartenders called us a cab. None showed up. The bartender then suggested that they give me the phone—that if they heard a white guy calling for a cab from this address, a cab might show up.

No luck.

Beth and I were, in fact, in a very small minority of white people at Kemp’s. In the beginning we were the only white people. After it filled, I’d say there were maybe 10 white people.

I’ll confess: especially back then, I saw color. I was self-conscious at first. But by the time we left, I couldn’t have cared less. We were treated like gold by everybody there.

I did some research and found that Kemp’s—no longer in existence—was owned by a musician named Fred Kemp, who was a horn player with Fats Domino’s band. It was at the corner of LaSalle and Washington, in the midst of a giant public housing project—which also no longer exists. (You can read more about the area and its history here.)

So it was rugged.

But still.

We were exhausted, no cabs coming, and so we did about the stupidest thing we could do—we began walking. Especially stupid because Dora was back at the hotel—we knew it wouldn’t work to have her in a crowded place. Dora was hardly a killer, but people don’t know that.

Within a couple blocks, I saw a phone booth. I dropped in the change, called a number on a card I’d gotten at Kemp’s. The voice asked where I was—“Where?” was the incredulous reply.

OK, we’ll get someone there.

Minutes later a taxi showed and not long after that, we retired, just before dawn.

The next day we quizzed each other to make sure all that really happened. We had a great time. We learned some things and lost another bit of naiveté.

And we thought, how lucky we are.

 

 

A thousand words are worth a picture

September 1, 201729 CommentsPosted in blindness, memoir writing, Mondays with Mike, travel, writing

That’s Bobbie at the center of this Finke family photo, taken in late November, 1961. I’m the two-year-old sitting to her left.

My sister Bobbie died a month ago today. Mike wrote a tribute to her after we got home from her memorial service a few weeks ago. Today I’m sharing an excerpt from an essay we published in my newsletter –it’s about how writing helps me remember her.

My oldest sister Bobbie got married and moved away months after my first birthday. Bobbie was 20 years older than me, and when I was growing up, our age gap prompted people to ask whether she really felt like a sister to me. My answer was always the same. Well, yes – she’s been my sister my whole life!

During the ten-day lag between her death and her memorial service, the Finke nation (I am the youngest of seven and have oodles of nieces and nephews) dug through boxes of old photos to post pictures of Bobbie on Facebook. Friends and family members left comments about memories those photos evoked. You can well imagine that I would like to be able to see those photographs, too, but rest assured that my own reminiscences of Bobbie are not diminished by my inability to see them.

I owe that to writing.

When I think about Bobbie now, the episodes I’ve written about her are by far the most clear and vivid in my mind. Perhaps it’s the result of writing and rewriting, getting just the right verb, working and reworking each piece until it’s as true as I can make it. Maybe the saying is backwards.

Maybe a thousand words are worth a picture.

In writing my memoir Long Time No See, I revisited a short stay at Bobbie’s house while recovering from eye surgeries in 1985. That was a difficult exercise. But because I took the trouble to get it as right as I could, I can still feel the warmth of the sun on my skin, breathe in the mix of dirt and foliage from her garden, savor the taste of those breakfasts she made me every morning, hear the laughter and voices of my other sisters gathering with us there, and feel my little niece Jennifer’s hand guiding me so, so carefully to the bathroom, placing my hand on the toilet roll when we got there so I’d know where I was.

Writing about that time again now reminds me of how courageous my oldest sister was. I was seven years old when diagnosed with Type 1 diabetes. Bobbie was diagnosed a year after that, when she was 28. Years would go by before complications set in, and when I was losing my eyesight, Bobbie was valiant enough to take care of me in her home. That, even though it meant facing what could possibly be her future.

As the saying goes, she didn’t blink.

Mike and Seeing Eye dog Whitney flew with me and my sister Bev to the memorial service in South Carolina a few weeks ago. Two members of the Finke nation flew in from Brooklyn. Others flew in from Orlando, and more drove in from Louisville, from Indianapolis, even as far away as Minneapolis. We all loved Bobbie, and for me, writing helps to hold Bobbie especially close.