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Mondays with Mike: At land’s end

July 10, 20178 CommentsPosted in Mike Knezovich, Mondays with Mike, travel, writing

When last Beth posted, we’d just had a lobster roll in Machias, Maine.

That’s Cohill’s Inn, our home away from home in Lubec.

It only got better. We’re in Lubec, Maine, billed as the easternmost point in the United States. We’re staying at Cohill’s Inn where Glen checks you into your room, mixes your drink, makes your coffee in the morning, and advises on which boat tour to take. You may know I’m a big fan of the movie Local Hero. If you’ve seen it, think Gordon Urquhart.

There is one ATM in town. Cell service is Canadian, so we’ve turned off roaming and are limited to Wifi at the Inn. And that ain’t bad.

The tides are dramatic here, they say 19 feet, and up to 50 feet in Canada. And I believe they’re not exaggerating. Enormous expanses of rock and soil and flotsam and jetsam are exposed and then they disappear, each day.

Photo of foggy bay.

The mist comes and goes.

The tides create Old Sow, the second largest whirlpool in the world according to locals. And I saw it on a boat tour this morning, a wondrous thing. Also wondrous were the seals, the bald eagles, the porpoises and the whale we saw.

Everywhere trees grow out of rocks. It’s verdant and lush and craggy and severe, all at the same time.

Fog comes and goes on its own schedule. One evening a mist rolled in and at sunset the pastel hues floated over forested islands in the distance. It was like living in an impressionist painting.

All reminders that the soul needs natural grandeur. It is informed, enriched, and humbled by the wild.

At the Lubec Brewery, where they add spent brewery grain to sourdough to make pizza crust, we met a man named Roger (that’d be Rah-Jah in localese) who is a roofer by summer, and a fisherman by winter. Roofing is the easy part, the one he likes best. His eyebrows don’t ice up. But he fishes because there isn’t much other work up this way in the winter.

We cross the Canadian border each day when I drop off Beth at her IOTA writing workshop. The Canadian border checkpoint looks like a welcome center. The U.S. checkpoint looks like a rusty toll booth.

Beth’s workshop is at Roosevelt Campbello International Park, where FDR summered with his family as a boy and later with Eleanor and their children. It’s operated jointly by the U.S. and Canadian park services. It’s delightful in the present day and provides some great history lessons.

Photo of the trailer that houses Becky's seafood.

That’s Becky’s.

Back in Lubec, running wild on my own, I’ve had lunch twice at Becky’s, a little trailer supplied with electricity by heavy duty extension cords from Becky’s house. The trailer and house are bayside, that would be Johnson Bay. Beside the trailer is a picnic table, where I ate my lobster roll on day one, and my fried clams on day two. Between the picnic table and the bay were a heap of lobster traps and other fishing gear. My lobster roll was really good. As were my clams.

Photo of lobster roll on picnic table next to bay.

That’s my lobster roll from Becky’s.

The air toggles between the scent of trees and the scent of the sea. I believe I’ve added a few days to my life just by breathing.

On Saturday morning, as we walked to our rental car to head to Campobello, a woman stopped us and asked, “Are you looking for something to do today?” I said I was open to suggestions. She told me that the West Quoddyhead Lighthouse was open for free tours that day, and that there was a small festival celebrating the lighthouse.

After dropping Beth at her workshop, I drove to the lighthouse. I set out in bright sunshine, wishing I’d brought the sunscreen. Two miles later I saw fog ahead. And another three miles later, I arrived at the lighthouse, which was visible, but the waterfront—just 20 yards away—was not. And I could see my breath.

Only five people at a time were allowed to climb the fairly treacherous spiral staircase to the top of the lighthouse. That meant a fair amount of waiting, but time passed quickly because two U.S. Coast Guard members were at the bottom regulating the line. Regaling was more like it. One was from Long Island, and had a tattoo of the Island on his forearm to prove it. He’d started college in Florida as a mechanical engineering student. “But,” he said, “every day my friends would drive by on their way to the beach as I was walking to class. ‘Beach?’ ‘Chemistry class?’”

“And that’s how I joined the Coast Guard,” he laughed. He said he’s eleven credits away from getting his degree. “But I love what I do. I wouldn’t change a thing.”

He asked where I was from and when I told him, he said he’d been stationed in Peoria, of all places. His unit keeps shipping lanes clear and safe, and so they had the Illinois River to worry about. We went on at some length, and to the amazement of others waiting in line, about the invasive Asian Carp and how they fly through the air and sometimes into boats.

His buddy was from Bangor (that’s Bang-gore I’ll have you know), Maine and had been stationed in North Carolina on the Outer Banks, so we had a lot to talk about, too.

They were two of the smartest, nicest, most articulate young men I’ve met. They reminded me of our friend’s son, Scott, who also served in the Coast Guard.

And it occurred to me: The world should seek a treaty whereby the only armed forces and weapons permitted would be equivalent to our current USCG. Just enough to keep people safe and the waters navigable.

It’s a nice dream.

Meantime, there’s Downeast Maine. Which is pretty close .

 

 

Maine so far

July 8, 201713 CommentsPosted in book tour, careers/jobs for people who are blind, memoir writing, Mike Knezovich, politics, radio, Seeing Eye dogs, travel, writing

Hello from our little inn in Lubec, Maine. We won’t be heading across the river to the Iota: The Conference of Short Prose at Roosevelt Campobello International Park until later this morning, but in the short 24 hours we’ve been here I already have a lot to write about.

Picture of Whitney lying at Beth's feet on the plane.

Whitney got to lay across the row instead of scrunching under one seat.

A worker at our gate at O’Hare was so taken by my Seeing Eye dog that she gave me and Whitney our own two seats. “That way she can stretch out.”

At the Bangor Airport in Maine a Budget Rental Car worker upgraded us to an SUV. “That’ll be nice for the dog.” It was nice for us, too.

With my window down I could take in the clean air and breathe in the fragrance of pine trees. A world away from far-away Chicago. The familiar songs on the car radio reminded us we were still in America, though — we sang along to Steely Dan’s “Reeling in the Years” and Little Feat’s “Dixie Chicken.”

Sign outside trailer that sold lobster rolls (among many other things).

Sign outside trailer that sold lobster rolls (among many other things).

When Mike caught sight of a roadside trailer selling lobster rolls en route from Bangor to Lubec, we stopped for lunch.It was there we caught the first sound of that Maine accent.”Does yah dahg wahn ice cream? Free fah ahl dahgs” Whitney ate it up

And when Mike read this description of a Trump Sandwich they were offering, we felt among friends.

Trump Sandwich sign that says white bread, baloney, Russian dressing and a small pickle

Every week is a history lesson

July 4, 20178 CommentsPosted in careers/jobs for people who are blind, guest blog, memoir writing, politics, teaching memoir, writing prompts

Two of the “What My Parents Believed” essays read out loud at our Printers Row memoir class last week seemed perfect for a Fourth of July post, and writers Robert and Maggy generously agreed to let me share excerpts from each of their essays here. Three cheers for life, liberty and the pursuit of happiness.

A disinterested Robert and his parents, Morris and Dorothy, on the dunes of Lake Michigan.

Robert’s essay opened by introducing his grandfathers. Both were named David. One was from a family of woodcarvers In Odessa, the other from a family of tailors and weavers in Kiev. ”Both Davids believed the legends of streets paved with gold in America,” Robert wrote. “And both risked what little they had to embark on a tortuous one-way ‘third class’ journey by land and sea to the land of freedom and opportunity.”

Each David arrived in Chicago around 1905, only to discover the pavement here isn’t made of gold after all. “In fact, the roads were covered with horse droppings about the same color as the cart tracks back home.” Hart, Schaffner and Marks hired David the tailor from Kiev to sew pockets into overcoats. David the woodturner from Odessa started selling furniture from a horse-drawn cart, then opened a furniture store on Chicago’s South Side.

Another class member, Maggy, opened her essay describing her parents’ families as solid members of Haiti’s middle class – teachers, lawyers, shopkeepers. “In Haitian society back then, your last name immediately signaled your history, your social status, and, for many people, your destiny.”

After becoming exiles in the United States, it was difficult for her parents to give up their belief in a social order that determined one’s standing in life. “Back in Haiti, only well-educated people could earn good money and respect from others in society. They shook their heads to think that our unlettered neighbors in America –the cook next door and the truck driver down the street – were making a decent living.”

Maggy’s mother eventually came to appreciate living in a society free from many of the restrictions that Haitian society applied to people, especially women. “Despite the high cost of living and the cold weather, she loved the freedom to create her own life, to meet different people, and to give her children a future that was unavailable back home.”

Robert’s parents met in Chicago in the 1920s, and, as he puts it, “the Great Depression greeted my arrival.” As the American economy recovered, Grandfather David (the one with the furniture store) bought the newly built 100 room Paradise Arms Hotel on Chicago’s Washington Boulevard. “The property prospered, but in the financial turmoil of 1932, two unfortunate men turned gunmen walked into the hotel, demanded all the money, and then killed him.”

One of Bob’s uncles eventually took over the hotel, and the family stayed involved in real estate. “My parents believed in the American dream. He would work hard in construction. She would work too. Their children would go to college.”

Maggy’s father had been a lawyer in Haiti, but since his training had been based on French civil code law, he couldn’t practice in the United States. After settling in New York City, he became a bookkeeper. Her mother was a schoolteacher in Haiti. She found work in factories and eventually learned enough English to become an X-Ray technician.

“Like most immigrants, my parents believed in hard work, and adapted to the twists life threw at them,” Maggy wrote. Robert agreed. “As the depression wound down, my dad started a remodeling business and then added a lumber yard that he ran for 35 years…the streets brightened with a golden glow.”

As for Maggy’s father in New York City, having escaped the brutal Duvalier dictatorship, he admired the American system of democracy. “Every 4th of July he would read the Declaration of Independence printed in the New York Times, and make us kids read it too,” Maggie wrote. “My parents believed that America was the greatest country on earth.”

Above all, Maggy’s father believed in his daughter when it really mattered. Maggy was 25 years old and working in advertising when she decided to sublet a co-worker’s Manhattan apartment. “As expected, my mother forbade me to move out of the house,” Maggy wrote. “No respectable unmarried woman lived by herself. What did I want to do by myself that I couldn’t do at home?”

As her mother carried on, Maggy climbed the stairs to see her father in his attic office. Isolated from the din below, her father patiently listened as she explained between tears. “I wasn’t rejecting the family. I did not intend to bring shame and dishonor upon them,” she wrote. “He understood, and gave me his blessing to spread my wings and fly.”

Mondays with Mike: Mend it, don’t end it.

July 3, 20171 CommentPosted in Mike Knezovich, Mondays with Mike, politics, Uncategorized

Beth and I and Gus had close and deep encounters with the U.S. healthcare machine earlier than most of our contemporaries.  Beth and I were in our 20s when we got a birds-eye view of the Rube Goldberg mess that we call a system.

Rube Goldberg comic

Right now, it’s kinda’ like this.

We did get mostly good care most of the time. But the time spent in waiting rooms, sorting out bills that came from providers and statements provided by insurers, and calling and calling to get answers to reconcile things was a burden on an already burdened household.

We had insurance for most of the time and the worst of our health care needs, but if one bad thing had happened for the short period we didn’t, I don’t know what would have become of us. I can say this for certain: The arc of our lives would have been much different.

Even with insurance, we couldn’t always keep up with our health care bills. And so, I know exactly how it feels to bring my son to an appointment and then, while in the waiting room, get summoned to the finance office to talk about unpaid bills. And wondering whether at some point, the clinic wouldn’t see him.

I ranted, I raved, and I bored our friends and anyone who would listen. Most had been healthy enough to have avoided dancing with the system, and I came off to them as a maniacal kvetcher.

Fast forward 30 years. Health care has become a bigger issue than ever. I proselytize less. But I’ve remained an interested student of health care policy.

Here’s how I look at it: From a moral point of view, everyone should have a humane level of coverage and access for their lifetime. What’s humane? Well, I think we can sort that out if we try. But that’s where the discussion should start in my view. I don’t see it as a right, and I don’t see it as welfare. It’s a responsibility we have to one another. We can do it if we commit to it. We should.

I believe in universal access no matter how we get there. Single-payer can be fine. There are both negative and positive myths about single payer. But it’s not the only route to universal coverage—many nations have, essentially, hybrid systems.

I repeat: I don’t care how we get there; I don’t care if Republicans, Democrats, or Martians propose it. I just want an honest and intelligent and responsible discussion.

Which is why I encourage you to read a very thoughtful and detailed and informative piece in The Atlantic that my friend Dmitry shared.

It’s headlined, somewhat unfortunately in my view, How Republicans Can Fix American Health Care. Unfortunate because I think it would be better left at how WE can fix health care, but I get it, and it doesn’t diminish the article.

It’s written by David Frum, who used to write speeches for George W. Bush, and has some conservative bona fides.

Frum, by his own words, takes a “mend it don’t end it” view of the ACA. He looks at the nuts-and-bolts of the problem, most especially at the financing structure and how to make it sustainable.

To my liberal friends, don’t dismiss it out of hand. For example:

I’ve long urged a carbon tax as a way to fund health-care expansion. President Trump’s abrupt and unconsidered call for a federal Internet sales tax raises another possibility. The U.S. has entered a revolution in retailing that threatens literally millions of jobs. The continuing de facto subsidy to online shopping looks even less justifiable now than ever. Why not a federal tax set to some averaging of state sales taxes on physical stores? Such a tax would raise far more than $35 billion and would equalize the playing field between retailers in a way that helpfully slows the creative destruction of retailing jobs.

To my conservative friends, don’t expect a market-solves-all bromide.

Republican thinking on health-care cost control has been premised on the idea of “skin in the game.” The theory is that health-care costs have been driven by bad consumer choices—and could be restrained by better choices. If consumers shouldered more of the cost of medical care themselves—say, up the $6,750 per family level implied by health savings account legislation—they would think twice before calling the doctor, and maybe even generally take better care of themselves. The power of the marketplace would bring down overall costs.

Even as theory, this idea is not looking very credible. Americans do bear more and more of their own insurance costs these days. Average out-of-pocket spending on health care has risen by about 50 percent since the year 2000—faster than that for Medicare beneficiaries—even as American health outcomes have deteriorated.

I still don’t think Frum addresses cost containment head on. In Germany, the system is a hybrid of private and public options—the government is centrally involved in partnership with private insurers. Systems like Japan’s, which allow people to buy into the national system if their employer doesn’t provide insurance, still rely on the government setting price ceilings for services.

But Frum believes—as I always have—that providing insurance and access universally is at heart, good for the economy at large:

A future in which health-care anxieties trouble Americans less will be a future more open to arguments on behalf of entrepreneurship and free enterprise. Economic risk-taking will become more attractive, not less.

Like always, the politics is the bugaboo. The pursuit of ideologically pure, all-or-nothing solutions is getting us nowhere. Getting something done well will require some courage on a lot of peoples’ parts.

Including our own.

 

 

 

At the park — but not out of the woods — with Gus

July 2, 20177 CommentsPosted in Mike Knezovich, Mondays with Mike, parenting a child with special needs, politics, travel

Huge thanks to all of you who read Mike’s excellent post about the potential changes to Medicaid and forwarded it on to others, commented to it on Facebook, and, especially, to those of you who contacted your legislators. Senate Majority Leader Mitch McConnell (R-KY) delayed the vote on the Better Care Reconciliation Act (BCRA) until after the July 4th recess, and with Congress taking a break now, Mike and I decided we could take one, too. We headed to Wisconsin to visit the young man you all read about in Mike’s post.

Staff at Gus’ group home had him all freshened up and ready in his wheelchair when we arrived, and our son greeted us with a mischievous laugh and a clap of his hands. A reaction to the news about the Senate delaying the vote? More likely in anticipation of the trip we were about to take.

Mike the Pied Piper pushed Gus in his wheelchair with Whitney the Seeing Eye dog and me following close behind. Our destination? The picnic table in the park across the street. Not a whole lot of kids out at the park Friday, so we were able to let Whitney off her harness for a while. She chased a ball while Mike and I talked and sang and laughed…with Gus.

So we are taking a breath this long weekend, but we know we can’t get complacent — we’re not out of the woods yet. You can check out this Medicaid fact sheet to learn more about the Senate health care bill. Then join Mike and me and tell the U.S. Senate: No Cuts, No Caps to Medicaid. Call your state senators to oppose the cuts and caps to Medicaid using this call script with additional talking points. If your Senator has already said they won’t support the bill, thank them and ask them to hold firm on their stance — this form helps you find your Senator simply by filling in your zip code.