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Mondays with Mike: Alone time

April 11, 20163 CommentsPosted in baseball, Mike Knezovich, Mondays with Mike, Uncategorized

As Beth just posted, she’s been in Anacortes, Washington, for the last few days, hanging out with her sisters.

And I’ve been here. At home in Chicago. She got the better of the weather. But I did all right.

The highlight was getting to the White Sox home opener on Friday afternoon. That Friday morning—that gray, cold, windy, rainy Friday morning—it didn’t look good for the game. But the rain stopped, the sun popped out while I was on the Red Line headed to the park, the anthem was sung, the Polish sausage (wit onions, and no, no “h” on the wit) was purchased, I wiped off my seat, and play ball!

Neither snow nor rain nor heat nor ....

Neither snow nor rain nor heat nor ….

It was cold, and there would eventually be snow—enough to cause the Cleveland centerfielder to lose a ball in the flurries temporarily—and the Sox really played like drek. And it didn’t matter. It was a gas.

I like going to games by myself. Not all the time. But I can listen to chatter, move around the park as I please, and be alone in a crowd. There’s something really satisfying about that.

I think I have an alone-in-a-crowd disposition. But it goes beyond that. I think probably my and Beth’s circumstances make my alone time all the more important to me. If you read Beth’s last post about navigating travel from Chicago to Anacortes, you got a notion about the tedious and sometimes daunting logistics that come with blindness. I know them well. .

Apart from travel, the truth is the logistics of my daily life have also been complicated by Beth’s blindness in so many small and large ways–but we’ve been at this for so long that I’m not even aware of the extra little things or the different things I need to do or can’t do in day-to-day life. It’s only when she’s gone that I understand that, wow, life can be a lot simpler on my own. It’s nice.

But it’s not as good.

Beth gets home tonight.

How can people who are blind navigate airports on their own?

April 9, 201622 CommentsPosted in blindness, guide dogs, Seeing Eye dogs, technology for people who are blind, travel, Uncategorized

Hello from the Pacific Northwest – my Seeing Eye dog Whitney and I flew here from Chicago Wednesday for Sisters Weekend. The long flight from Seattle to Chicago gave me time to write out answers to questions I get about how I navigate O’Hare alone with my Seeing Eye dog:

Whitney makes the most of travel time.

Whitney makes the most of travel time.

  • How do you get to the airport? Many people who are blind use public transportation to get to airports, but I’m afraid of using the subway alone with my Seeing Eye dog – I’m nervous about falling into the tracks. I’d be open to taking a Chicago Transit Authority bus, but I’d want to do a trial run ahead of time to know exactly where they’d be dropping me off. I usually use a hotel shuttle, taxi, limo, or van service, and I tip well.
  • Where do you tell them to drop you off? Before I leave home, I check and double-check which airline I’m using and have the driver let me off at that specific Curbside check-in. Even if I’m not checking a bag, the workers at curbside check-in can check me in, get my boarding pass and sign me in for airport assistance. The curbside check-in worker guides my Seeing Eye dog and me to a seat inside and lets me know what my call number is. I tip them well.
  • What do you do in the waiting area? I empty my pockets and put my change, iPhone, keys, and all into a compartment of my carry-on (will make it easier to go through security). Then I listen for a red cap to come call out my assigned number.
  • How do you get to security? When a red cap calls our number, I get their attention and have them place my carry-on bag onto the seat of the wheelchair they brought along. I give my Seeing Eye dog the “follow” command and we shadow the red cap to the security line.
  • How do you get into the screening area? For obvious reasons, I don’t have a valid driver’s license. I use a State of Illinois ID card instead, and show that along with my boarding pass as I enter the screening area. I have a cool wallet with a long pocket that holds my boarding pass and ID in it, very handy if/when I need them again at the gate.
  • How do you get through security? I take my laptop computer and hand it to my airport assistant to place in a bin along with my shoes, jacket, and carry-on bag.
  • How do you get through the magnetometer? After giving my Seeing Eye dog the “sit” command, I lengthen her leash and give her a “rest” command so she’ll sit still while I let the TSA screener know how I intend on getting through. My dog sits while I explain, and her leash remains in my left hand as I extend my right hand to the scrrener and ask them to pull me through the arch. If I brush against the interior wall by mistake, the alarm sounds. I remind my Seeing Eye dog to “rest” where she is and I return, turn around, extend my right hand to the screener and walk through the arch again. Once I get verbal confirmation from the TSA agent that I’ve cleared successfully, I turn around and call the dog to come through. The alarm goes off when my dog comes through, but going through by myself ahead of my dog makes it clear to the screeners that her harness and leash set off the alarm, not me.
  • So do they have to wand the dog, then? Sometimes the screener wands her harness, and they always feel around her collar and pet her to inspect as well. I often quip to the TSA worker that my dog is the only creature who actually likes going though security. “It’s the only time I let someone pet her when her harness is on!”
  • How do you get your stuff off the conveyor belt? It’s important for me to remember what color jacket I was wearing, what shoes I had on and what type of laptop I use so I can describe them to the red cap helping me — they collect my things once they’ve cleared security. I’ve added Braille stickers to some of the keys on my laptop. So I often open it quickly and feel the keys to confirm its mine.
  • How do you find the gate from there? The red cap knows where the gate is, so I give my dog a “follow!” command and we shadow them from there. Once we’re at the gate, the red cap finds me a seat, heads to the desk with my boarding pass and returns with a pre-boarding ticket for us. I tip my red cap well.

Usually at this point I wait for someone from the airline to approach us and let us know they’re about to announce pre-boarding. I give my dog the “follow” command and follow the staff member to the jetway, hand over the ticket, board the plane, find our window seat and position my Seeing Eye dog under the seat in front of me with her head sticking out between my feet

On Wednesday, my sister Bev would be boarding along with my Seeing Eye dog and me once her flight from Grand Rapids arrived. After saying good bye to the red cap, I took my iPhone out and used VoiceOver to send Bev a text: “At gate.” Bev’s text came back immediately. “At airport Cubs bar. Meet you at gate soon.” Right then I knew: it was going to be an entertaining weekend with the sisters!

Mondays with Mike: Getting to the mountaintop

April 4, 20161 CommentPosted in blindness, Mike Knezovich, Mondays with Mike, Uncategorized

We had a splendid weekend spending time with our friend Fiona, who is visiting all the way from Edinburgh, Scotland. Our time included an overnight in Champaign, Ill., where we joined friends to see Mavis Staples, who is carrying on the Staples Singers tradition with a joyous, infectious energy.

Our visiting friend got a crash course in the volatility of Midwestern weather as we drove home on Saturday afternoon. Vicious cross-gusts left overturned semis scattered in both directions and brought us to an hour-long dead stop on I-57. As we arrived in Chicago, there was blizzardy snow. And then, a couple hours later, sunshine, and then on Sunday, 60 degrees. Fiona has been a good sport.

First Church of Deliverance.

First Church of Deliverance.

On Sunday morning, I dropped Beth and Fiona off at the First Church of Deliverance on South Wabash in the heart of the historic African American Bronzeville neighborhood. We befriended the choir director there years ago, and he made it clear we were welcome anytime. When we have out of town visitors who want to experience something uniquely Chicago that isn’t the top of a skyscraper or hot dogs, Beth likes to take them there.

That church is on the National Register of Historic places. Of course, it’s more than that. It’s a center of gravity. Beth has sought out these places wherever we’ve lived. There’s nothing like them. I’m not religious, but the power of righteousness is the power of righteousness, and when the gospel choir sings, it penetrates the soul. You float.

Bronzeville is still proud — there are magnificent historic stone homes as well as charming clapboards, and there are signs of renaissance. On the drive there, though, we were struck by the condition of the roads — bad. Just a million signs of benign neglect of public infrastructure, neglect, a history of housing segregation, local governmental ineptitude and corruption. And of course, of our collective messed up history.

As I pulled up to the curb, a well-dressed gentleman approached the car and greeted us. He escorted Beth and Fiona into the church, and I drove off. When Beth and Fiona returned, they talked of the typical experience at First Deliverance: Gracious, friendly, and welcoming to all comers. They also said that the sidewalk they took to catch the 29 bus home was so jagged it was hard to navigate. Good sidewalks, roads, enforcing care of abandoned lots, sound public schools — that’s basic stuff that everyone should expect from local government everywhere. Apart from the physical value, it says that the broader community and government cares enough to bother.

A clip from MLK's last speech.

A clip from MLK’s last speech.

Yesterday was also the anniversary of Martin Luther King’s last speech — the “I’ve been to the mountaintop” one in which he seemed resigned to his imminent death.

That came soon enough, 48 years ago today. That speech is worth reading or listening to. I hope you will.

In the middle of an especially nutzoid presidential campaign it’s easy to get caught up in talk of top-down solutions. To be sure, what leaders do at that level matters. But perhaps it’s more about us pushing a boulder up a hill — which is exactly what Martin Luther King, Jr. was doing. He was there in Memphis, after all, to support striking garbage workers. Real change starts from the bottom up. The “leaders” will eventually follow if we make them.

 

Guest post by DJ Mermaid: An “Under the Sea” guide to the 2016 presidential election

April 2, 201610 CommentsPosted in guest blog, politics, Uncategorized

DJ Mermaid weighs in on the candidates.

by DJ Mermaid

2015

You have listened to CNN, read the newspaper and watched state primary coverage. You might want to hear someone else’s opinion, though. That is where I come in.

Being 9 — almost 10 — I can’t vote in any election. I do, however, have the right to say what I think about the politicians running for the presidency. I am trying to think of a good and bad thing about every candidate. I ask that you do not re-tweet this post — if you disagree with my views please say so politely in a comment here.

Since my name is DJ Mermaid all the candidates will be living things in the ocean. I am going to start with the Republican side:

  • Donald Trump — Mr. Great White Shark. I seriously don’t agree with his views on anything. I believe that his policy to send out Mexican or Latino- Americans that are illegal lacks any logic if he wants to get re-elected or run again in 2020 (even though illegal people can’t vote now, when they get their citizenship they can).Same with deporting Muslims that want to settle a home in America. I don’t believe there is any logic in this action. Why? By kicking these people out, he is losing a MAJOR percent of votes. This is not logical or rational. He doesn’t know if they are good or bad but he still isn’t giving other people a chance to be Americans. DUMB!Trump though is the only one funding his campaign with his own millions of dollars. Sometimes I wonder if logic has been stamped out of us?

    Trump doesn’t have anything about people with disabilities on his website because he thinks anyone that’s different is strange.

    • Ted Cruz — Sir Stingray. I think that Ted Cruz is a shining example of a Republican candidate. Why? Like Donald Trump (see above). (Cruz also wants to kick out illegal (he can only kick out illegal ones, he doesn’t have the right to do it otherwise) immigrants. A piece of DJM wisdom right here: never kick people out unless you are positive they are illegal. Ted Cruz does not have anything on his websites about people with disabilities or how he could help them.
    • John Kasich — Sir Barnacle. This is maybe the most logical choice for the nomination. Why? Kasich doesn’t have such a fiery personality but still wants to do things like a Republican. He wants to balance the budget and eliminate taxes. He doesn’t seem to want to deport people right away. I don’t see anything addressing people with disabilities on his website and that is a concern.

     

    The Democratic party might have a different view of things, so I am going to cover them next:

    • Hillary Clinton — Madame Superb Starfish. I love this candidate and her views on everything from disability rights and upholding the Same Sex Marriage laws to defeating ISIS (Islamic State of Iraq and Syria) and conquering global terrorism.She also has a history of helping people with disabilities and thinks we have equal rights no matter what our challenges are. She wants to create more job opportunities for people with disabilities and other minority groups. I stand by that view 100% with my head up high. I also agree with her views on same sex marriage. Let’s make America more equal!! Hillary also has a plan for defeating ISIS but it’s not through building a wall. HER plan is to secure government accounts so that ISIS can’t start an online war.I believe though that getting money from Wall Street is not the answer to funding a campaign. I am going to leave Hills to figure that one out!
    • Bernie Sanders — Great Old Sea Turtle. Bernie really wants to make college education free which I think is O.K. because I want to get into Berkeley in California and having taxes pay for my education might help. I worry, though, that because we live in a Capitalism society, that education will devalue. Great Old Sea Turtle wants to increase educational and work opportunities for people with disabilities. He also wants to expand social security for people with disabilities.

    I encourage you to look at the issues and decide which candidate is best for you

    -DJ Mermaid

I met my match in Richard III last Sunday

April 1, 20167 CommentsPosted in blindness, technology for people who are blind, Uncategorized
Michael Thornton in rehearsal for Richard III. Photo: Steppenwolf

Michael Thornton in rehearsal for Richard III. Photo: Steppenwolf

The special tour for people who have visual impairments before Gift Theater’s production of Richard III at Steppenwolf’s Garage Theater last Sunday was one of the most well-thought-out audio touch tours I’ve been on – and I’ve been on a lot of them! Here’s how it went:

  1. The play’s director Jennifer Thebus spoke to us about why she was drawn to the play, her decision to cast Michael Patrick Thornton in the lead, her decision to go minimalist with costumes and set design.
  2. Mike Thornton, who plays the lead, joined in and started his part of the pre-game show talking about his high school English teacher, the man responsible for turning Mike on to Shakespeare. That teacher went on to get a Ph.D., and he’s the Shakespeare scholar who adapted Richard III for the production we’d be seeing later that afternoon.
  3. Martin Wilde, the man who’d be sitting in the balcony describing scene changes, character entrances/exits and other movements into my headset during the performance, took two or three minutes to describe the simple set design. Preparing to audio describe the play took much longer – he’d already been at two live performances and had been given permission by the cast to videotape one as well to practice at home.
  4. My friend Judy Roth had met me at Steppenwolf ahead of time to see (she can!) how these special tours work. She knows my Seeing Eye dog Whitney, so I took the dog’s harness off and handed Judy the leash to have both hands free to touch the few things on stage.
  5. Evan Hatfield, the Director of Audience Experience at Steppenwolf, led me onto the stage, but with so few things up there, he added a bonus….
  6. I got to feel some of the stuff on the prop table! The prop table is exactly what the name implies: props are carefully placed on this table offstage so actors can grab them efficiently on their way onstage. Aha! Something actors have in common with those of us who are blind: We like to keep important items in a particular spot so we can find them easily.
  7. Actors (I counted — I think there were 14!) lined up on stage, and one by one they were asked the same set of questions by Evan. Height? Skin tone? Hair color? Any facial hair? Make any physical decisions to convey character, help tell your character’s story? Answers to that last question were intriguing. One had decided his character would have a slight limp, and the woman playing one of the princes had the same answer that the woman playing Lady Anne had –both were playing characters who were unsure of themselves, so they shifted their weight from one foot to the other to signify feeling off-balance. Actors weren’t asked to describe their costumes — we’d been told earlier they’d all be in simple outfits in shades of black and grey, and each would wear pearl earrings and a ruffled collar.
  8. Each actor recited a line from the play so we’d recognize the voice later.
  9. Actors involved in the final fight scene stayed on stage then to review the choreography. Touch tour participants are usually ushered out of the theatre for this, but staff members who were concerned about Whitney’s reaction to the violence during the actual show wanted us to stay and check it out. She passed the audition.
  10. Cast members who love dogs came down to meet Whitney then, and I took her harness off so they could play with her. Pet therapy, both for Whit and for the actors!

I was not as lucky as Mike Thornton was in high school. My English teachers were not charismatic. None of them turned me on to Shakespeare. Sunday marked the first time I’d ever attended a live performance of a Shakespeare play.

I did a fair bit of research ahead of time. I read A Rose for the Crown, historical fiction set during the War of the Roses that led to Richard III’s coronation. I read the Richard III sections of A Theatergoers Guide to Shakespeare and Tales from Shakespeare, and even downloaded the play itself –although all I red there were the “explanatory notes.”

I read some reviews, too. The Chicago Tribune review of the Gift Theater production at Steppenwolf was helpful in explaining how Thornton, who uses a wheelchair, would also be using a walker and an exoskeleton device to portray King Richard. The exoskeleton is a state-of-the-art device called Rewalk. It was provided by the Rehabilitation Institute of Chicago, a sponsor of the production. When Mike was talking to us before the play, he was surprised he hadn’t heard much controversy over Gift’s decision to have him use a walker to stand up in order to seduce Lady Anne. Isn’t that blatant ablism?” he wondered. He credited the Rehabilitation Institute of Chicago for providing the robotic exoskeleton he uses in the coronation scene and did his best to explain how he makes the exoskeleton work.

“Do you look scary when you cross the stage in it?” I asked. “Or powerful?” When he didn’t answer, I turned around to ask Martin ( the guy who’d be talking into our headsets). He didn’t hesitate to give his answer: “Powerful.”

The audio/touch tour had started two hours before the play. It was so stimulating that I wasn’t sure the play could live up to It.

It did.

The whole experience was so exhilarating, the dialogue so intense and dynamic, the stage so full of characters speaking in that unfamiliar, well, Shakespearian way, I guess, that by the time Act One was over, I was exhausted.

I left at intermission.

Let me be clear here. My leaving early had everything to do with my limitations, not the production’s. I routinely seek out plays with few characters and one act. That’s because, otherwise, it’s hard for me to keep up as well as I want to. And my previous experience with Shakespeare was nil — even in my sighted days, I’d struggled to understand the plays we were required to read in high school and college. All to say, given my history with a Shakespeare play? This Richard III production was a rousing success. It was my first, but not my last.

Gift Theatre’s production of Richard III runs through May 1 in Steppenwolf’s Garage Theatre, 1624 N. Halsted St. in Chicago, and Sunday’s matinee on April 3, 2016 features American Sign Language (ASL). Tickets available at 312.335.1650 and steppenwolf.org.