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Guest post by DJ Mermaid:In France, they'll call her DJ Sirène

March 26, 20168 CommentsPosted in careers/jobs for people who are blind, guest blog, travel, Uncategorized, Writing for Children

DJ Mermaid is learning French now.

Dj’s dream paradise

by DJ Mermaid

Bonjour mes amis!

My bedroom wall decor!

My bedroom wall decor!

Every mermaid/DJ has to have her own get-away! Mine happens to be on an entirely different continent.
As you may have guessed, we have arrived in Paris, France!! (Not really, but in the post we have, OK?) My dream itinerary for Paris and the rest of France goes something like this:

Day1: Get off plane and go freshen up at the hotel (make sure hotel bed has view of La Tour Eiffel and call the window bed before Mommy does). Have a picnic under La Tour Eiffel consisting of four things: bread, wine, cheese, and assorted box of macaroons. Ride up to the top of La Tour Eiffel and take a ridiculous selfie!

Day 2: Go to La Louvre and see statue that Daddy fell asleep in front of when he was in Paris once before and other historic paintings/sculptures. Take a Stroll down La Champs-Élysées and see the jewelry they have for sale (I would like an emerald ring engraved with lilies of the valley). Go out to dinner at a famous bistro and order deux chose: A ham and fromage sandwich (or croquet monsieur) and a chocolate hazelnut crepe.

Day 3: The French countryside: Go to a charming little shop and get some escargot (snail) and green bean stew/dish. Take a class on how to make a croissant — a buttery, flaky pastry authentically French. Go to Versailles — King Louie the 14th’s lavish and extravagant palace. Take a train ride back into Paris

Day 4: Take le Metro up to Montramarte – the artist district that has a lot of fabric stores, and buy a blue silk embroidered with white doves. I will also buy some French makeup and Chanel’s No.5 perfume.

Day 5: Final Day in Paris. Go to Palace Luxemburg. GO HOME!!

Well, that’s the end of my 6th post.

Going totally blind today

March 23, 201622 CommentsPosted in travel, Uncategorized

One good thing came from the fall I took in December: Breaking my hand convinced me to apply for a Taxi Access Program (TAP) card.

The TAP card gives taxi discounts to Chicagoans whose disabilities make it difficult to access regular public transportation. Just “tap” the card on a screen in the back seat the same way others tap their credit cards and receive a discounted ride (taxi drivers are reimbursed for the remaining cost by the Regional Transit Authority).

Where is that darned bus?

I won’t stop taking the bus–at least when the sidewalks are all clear.

My pride prevented me from applying for a TAP card before. I felt perfectly capable of taking a regular Chicago Transit Authority bus with my Seeing Eye dog Whitney to the memoir-writing class I lead in Lincoln Park every Monday. That was until it started to snow and was difficult to get to the bus stop. And then I fell and broke my hand. I wore a cast for six weeks. I started to think, gee, maybe those cards are intended for people like.me!

I called the RTA to apply. The RTA sent reams of paperwork, Mike helped me fill the forms out, we mailed them in, the RTA called me for a phone interview, they set up a time for me to come to their office in-person, I arrived at the RTA office and answered more questions, Whitney led me to a bus stop and an RTA staffer trailed behind to watch us step onto a bus. All this to see whether I’m “disabled enough” to qualify for a TAP card.

I don’t berate the RTA for putting me through all those hoops. I blame the scoundrels who fake or exaggerate their disabilities to use service animals, park in handicapped parking spots, and get cab discounts. In the end, I passed the audition. Or, I guess I failed: I qualified. My TAP card came in the mail last week! Perfect timing, as I’ll need it on my totally blind day today:

  • 10:30 a.m. Call Flash Cab to Use TAP card for cab ride from our apartment to Museum of Contemporary Art Chicago (MCA)
  • 11:00 a.m. Attend first ever special hour-long tour at MCA for people who are blind or have visual impairments
  • Noon Review tour with MCA staff and share suggestions and recommendations for the next special tour
  • 1:00 p.m. Phone Flash Cab for pick up at MCA and ride to Chicago History Museum
  • 1:30:p.m. Attend first ever touch tour created by the Chicago History Museum for visitors who are blind or have low vision — it’s a 90-minute highlights tour of a permanent exhibition called Chicago: Crossroads of America (can you believe both of these are on the same day?!)
  • 3:00 p.m.
    A friend who is meeting Whitney and me to join us on the Chicago History Museum tour will walk with us to La Diosa to enjoy a delicious early dinner together — La Diosa owner and manager Chef Laura Martinez is, you guessed it…totally blind
  • 4:30 p.m. or so Call Flash Cab to use TAP card for taxi ride home.

My TAP card won’t work on Uber or Lift or other ride-sharing services, but all the registered cab companies in Chicago are supposed to accept them. I like to use Flash Cab, however. They have a long history of being respectful to riders with disabilities, and Flash Cab drivers are familiar with the TAP card and how it works — I don’t have to worry that they’ll question the TAP card or make a fuss about accepting it.

If it weren’t for my new TAP card I don’t think I’d sign up for so many things in one day — I’d be too anxious about bus routes, getting to new bus stops, knowing what commands to give Whitney when we disembark — excuse the dog pun — at a new and unfamiliar corner. Thanks to TAP, I’m actually looking forward to going totally blind today.

Mondays with Mike: Bring an adult to work week

March 21, 20168 CommentsPosted in Mike Knezovich, Mondays with Mike, Uncategorized
This Sox fan won't miss him or his kid one bit for even one day.

This Sox fan won’t miss him or his kid one bit for even one game.

A Major League Baseball story has gotten a lot of headlines (inside and outside the sports section), produced a tsunami of social media incontinence, made it easy for sports hate radio hosts to fill time, and generally annoyed me. (Non-sports fans: bear with me—the story touches on multiple hot spots.)

Last week, Adam LaRoche, a player for my Chicago White Sox, announced that he was going to step away from baseball. This was like a Christmas present to a Sox fan: He was absolutely awful last year, and if he played this season, he would’ve earned 13 million dollars of the White Sox’ money.

It seemed noble: His skills were in sharp decline, he’d already missed spring training time because of back problems, and he’d be walking away from a lot of money.

Not so fast. He wasn’t quitting because he concluded he sucked and would be stealing the White Sox’ (and a little of my) money. No, it was because he could no longer have his 14-year-old son along—in the locker room, on the field, on the plane—for most of the team’s games. He’d been allowed that privilege last year, but after a horrible season by the Sox, a team executive asked him to dial back the amount of time the boy was around this year.

But LaRoche ignored the request. The executive spied the teen son on a spring training pitcher’s mound, the incensed exec drew a line, and LaRoche quit.

To me, that should be the end of it. But no. Cue the hot-button stuff:

He-said, he-said: LaRoche said that he had a verbal agreement with the White Sox, and the White Sox were reneging. But there was no contractual agreement, and –- by my reckoning, saying it wouldn’t be a problem if a player brought a kid along some of the time looks a lot different than giving the kid a locker and a uniform and having him around for 125 of 162 games.

Organizational politics: His fellow players were quick to stand up for LaRoche and son, arguing that the son was a good kid, and that none of the players had a problem with it. Except some did, as reported by this venerable columnist. And as this column points out, given the ridiculous reaction of LaRoche and some players to simply asking that the kids spend less, not no time around the team, it’s easy to see why players, coaches and staff would have gone straight to management instead of trying to talk to the player.

Life-work-family balance: Everyone strives for it. And everyone—outside of LaRoche and a couple players—seems to understand that trade-offs are involved. I know executives (men and women) who are constantly on the road, who work long hours when they’re home, and they come to grips with the painful trade-offs. They understand they can’t have everything. I worked some long hours when our son Gus was young and eventually stopped because, well, I knew I was missing something and I was fortunate enough to be able to call my own shots at that point. This Chicago sportswriter sums it up pretty well in a column called White Sox Kidding Themselves.

So, I think you can sort of tell where I stand on all this. As in, don’t let the door hit you on your way out, Adam. And that goes for…. But there are a couple last thoughts—

The player-son thing at MLB parks has a deep tradition. Ken Griffey, Jr.—who will be inducted to the Baseball Hall of Fame this summer—spent time with his father and the Cincinnati Reds. Prince Fielder hit batting practice home runs at Tiger Stadium when his father Cecil played for Detroit. It goes on and on.

But: None of these kids were constant fixtures. Griffey, Jr. says he joined the team four or five times a year. It was a privilege, not a right.

Finally, about that father-son-baseball thing: I hold it kind of dear. I’ve noted in other posts that I played catch in the back yard with my dad for hours on end. And there’s that Field of Dreams ending.

But I’m not possessive about it—it doesn’t have to only be fathers and sons playing catch. In fact, my mom was a much bigger baseball fan. I talked baseball with her more than I ever did with my dad, and my mom taught me to swear at players through the TV, a coping tactic that is our twisted version of stress management.

And, this: the times, they are a changing, as Mo’ne Davis exemplifies. Whether or not some MLB player’s daughter is eventually the touch point for a locker room controversy, I don’t know.

But I do know this: Adam LaRoche says this was all about family, by his own words. But he has a wife—and oh, a daughter, too—and somehow he wasn’t so dedicated to that part of his family that he felt compelled to quit earlier. Or to have them along in the clubhouse.

Guest post by DJ Mermaid: Giddy-up DJ!

March 19, 201610 CommentsPosted in guest blog, Uncategorized, Writing for Children

DJ Mermaid rides Horses? Who knew?!

by DJ Mermaid

My life isn’t a Western cowgirl movie where girls get to ride around on horses screaming like dying banshees. I do have Walk On Farm to my advantage though.

DJ Mermaid rides!

DJ Mermaid rides!

Walk On is a horse riding farm hubbub dedicated to helping Americans with cognitive and physical disabilities. I have been riding Equestrian-English Style on their lovable horses since I was about three years old.

My favorite — not that we are picking sides here — is Foxy. Though you might think he is a Palomino because of his name, he is actually a brown Appalachian Mountain Horse with white spots.

Riding lessons isn’t all Walk On Farm has to offer, though. They also offer a horse grooming class right before my lesson. You really get to know the horses and where all of the equipment goes on the horses. That is very important for when you go to represent Walk On at the county fair 3 years in a ROW!!!!!!!!

I don’t usually ride Foxy during these events because he isn’t a new horse. I ride another horse named Rocky (who is equally as handsome). Cuteness!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Walk On has a great team of people who help me there. Mary Illing, the program director, is SUPER NICE and really cares about her horses and her participants. Walk On has many volunteers who act as “side-walkers” and “leaders.” A side-walker is someone who walks along with the horse and rider to make sure the horse doesn’t buck (a kick so strong an untrained rider would fall off like eraser shreds on a paper) or try any other antics. A leader is someone who leads the horse other than the rider.

Walk On has many fun games to play while we are riding. Some of them include “Red Light, Green Light” and “Horse Hangman.” Walk On is a very fun stable and program to participate in.

That’s the end of my 5th post!

Here's how you vote when you can't see the ballot

March 16, 201626 CommentsPosted in blindness, Mike Knezovich, politics, technology for people who are blind, Uncategorized

I Voted Today stickerI’d researched the issues. I’d studied the candidates. It was a primary election, not a general one. Voting yesterday should have been a breeze.

And you know what? It was! I voted on my own in the Illinois primary election yesterday!

The Help America Vote Act of 2002 mandated that voting systems provide some way for people to vote independently and privately (including those of us with disabilities), but if you’ve been following our Safe & Sound blog for a while, you know there have been many, many elections since 2002 where that hasn’t been the case for me (and probably not for others, either). I cried on election day, 2012. Not because my candidate lost — he won. I just wasn’t able to vote for him by myself.

Here’s what happened that year: Mike and I showed up together at the polling place, and while he went to a booth to vote, I waited and listened to the poll workers scramble. “Where are the headphones?” “Anyone know how you make that computer talk?” “How do you turn it on?” “Why isn’t there any sound?” “How’s it supposed to work?” They seemed to want to do right by me, but few of them knew what “right” was.

Mike finished voting. I was still standing there. In the end, he signed an affidavit, guided my Seeing Eye dog Whitney and me to a traditional voting booth where he read the choices out loud and had me tell him (and anyone else near enough to eavesdrop) who I wanted to vote for.

But not yesterday. Mike had an errand to run, so I showed up at our precinct alone with Whitney. Poll workers seemed sincerely happy to see us, they helped me fill out a paper form to register, and after I used a straight-edge to sign on the dotted line, one of the poll workers showed us to a computer.

“You know how to work these?” the poll worker asked, placing a special handheld contraption the size of a cell phone in my hand. I nodded yes (I’d attended a special class free-of-charge earlier at the Chicago Public Library to be introduced to this technology) and put headphones on. Tactile buttons on the contraption allowed me to take my time, scroll through the ballot, mark my choices, and…abracadabra! I voted.

All. By. Myself.

A small thing for some, but huge for me. A lot was riding on yesterday’s vote, and I felt privileged –and proud – to have a part in making those important decisions.

Now, bring on those presidential elections in November!