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From Art & Craft to Garlic and Greens

August 2, 20117 CommentsPosted in baseball, Uncategorized, writing, Writing for Children

I am thrilled to be presenting at a writer’s conference in nearby Evanston later this week along with the likes of Miles Harvey and Audrey Petty. What’s even more thrilling is that I call those two fine writers my friends.

That’s Miles Harvey. (Photo by Matt Moyer.)

I met Miles long ago when both of us wrote for the Daily Illini at the University of Illinois. His first book The Island of Lost Maps: A True Story of Cartographic Crime was a national and international bestseller. Another book, Painter in a Savage Land: The Strange Saga of the First European Artist in North America, received a 2008 Editors’ Choice award from Booklist. Miles used to light up the dingy Daily Illini production room in the basement of Illini Hall, and to this day, being around him makes me smile. I was delighted when he accepted a position at DePaul University, it meant he’d be staying here in Chicago, and I knew he would serve as a terrific mentor to hundreds of writing students there. His generosity of spirit encourages many a writer, including me, to keep at it.

I met Audrey Petty in Urbana, too. She’s the Director of the Creative Writing Program at the University of Illinois at Urbana Champaign, and she and I took to each other the minute we met. Audrey is a Chicago native, and Mike and I have had the good fortune to meet and know her entire family. Her father, Joe Petty, is credited with getting the Chicago White Sox into the 2005 World Series. “MoJo” went with us to a playoff game against Boston, and he mesmerized everyone in the seats around us (and the team, too, of course) with his confidence and calm.

And that's Audrey, in a shot taken by her daughter Ella.Audrey is back in Chicago now to work on an oral history book project gathering stories from residents of Chicago’s Henry Horner Homes, Robert Taylor Homes, Stateway Gardens and Cabrini-Green—all publicly-funded buildings that no longer exist. High Rise Stories: Voices from Chicago Public Housing will be published by Voice of Witness, the nonprofit division of McSweeney’s Books. And of course we all know that McSweeney’s is the brain child of yet another Daily illini alum: author Dave Eggers.

Dave wont’ be making an appearance at Art & Craft: Northwestern Summer Writers’ Conference this week, but Miles, Audrey and I will all be making presentations. Miles will lead a Reporting and Research 101 workshop and is also sitting on a panel called Writers Point of View: How I Got Published. Audrey’s workshop is called Fiction: Object Lessons and mine is Getting Children’s Books Published. I’m also sitting on a panel called Writing for Children/Young Audiences with Jim Aylesworth and Laurie Lawlor.

”Art and Craft: the Northwestern Summer Writers’ Conference” is for new writers, established writers, and anyone looking for a better understanding of the craft—and business—of writing. Some of the workshops are full, but you can still register for panels and available workshops — they start tomorrow, August 3 and run until Friday, August 5.

If you can’t make the conference, you’ll have another chance to learn from Audrey Petty this Saturday, August 6: She’s joining Tim Black, author of Bridges of Memory: Chicago’s First Wave of Great Migration for a free presentation at Chicago’s DuSable Museum of African American History this Saturday at 2 p.m. Their presentation explores Black culture through migration history and food heritage.

Audrey’s essay “Late-Night Chitlins With Momma” was first published in Saveur magazine and subsequently selected for inclusion in Best Food Writing 2006 and Cornbread Nation 4.

Audrey’s presentation Saturday is part of a series at DuSableseries from Archeworks called Garlic & Greens, and she’s invited Mike and me over to dinner tonight with her family to get some practice in. We are two very lucky people.

Bark Magazine refers to them as the “Broken Foot Chronicles”

July 30, 20119 CommentsPosted in Beth Finke, blindness, Blogroll, guide dogs, Mike Knezovich, Seeing Eye dogs, Uncategorized, writing

Here's the photo The Bark used.

All your comments and questions to my posts about Harper’s well-being after I broke my foot made me think. Hey, maybe The Bark would like to publish a post about what happens to a Seeing Eye dog while his blind partner is recovering from an illness or injury.

And so, I revamped a post I’d already published here, attached a photo Mike took, and sent it off. Ding-ding! An email came right back from The Bark. “Thanks for this. I think our readers will like it.” They titled the post What happens to a Seeing Eye dog when his human breaks her foot? and published it right away.

But wait, there’s more: the response to that first post was so good (thanks for commenting there, Susan and Rick!) that The Bark asked for more. Last Thursday they published Beth decides what to do with her sidelined Seeing Eye dog, my third Bark post since the inglorious foot break.

The posts I write for The Bark are inspired by the comments you leave here. Examples: A Safe & Sound blog reader wrote to ask, “Can you enlist another guide dog user to walk your dog on harness? I realize you are trained as a team but wouldn’t someone who went through the same school as you did be able to work as a sub?” Fair question, but the Seeing Eye frowns on having anyone other than the person with whom they matched the dog use the harness with that dog. From the day I was matched with Harper at the Seeing Eye school in Morristown, no one but me has held Harper’s harness, not even Steve our Seeing Eye trainer. Harper had an ear infection while we were training in Morristown, and when Steve brought him to the vet, he took him on leash.

The blog reader’s question about having another Seeing Eye grad sub for me and work with Harper inspired me to stress the importance of the Beth-and-Harper bond in the post I wrote for The Bark:

While stuck at home together, I do a daily obedience routine with Harper. I’m the only one who feeds him. I give him his water. I groom him. I play with him. Mike takes Harper on leash for walks, and when Mike is away, friends volunteer to help. But I’m always the one who calls Harper to the door, and I’m always the one who clips the leash to his collar before they head outside.

Another Safe & Sound blog reader had commented that perhaps the, ahem, break, might make Harper more eager to do a good job when he returns to work. I posed this idea to John Keane, Manager of Instruction & Training at the Seeing Eye, and used his answer in last Thursday’s Bark blog post:

I’d been doing my best to get out with Harper a couple times a week, even with the boot cast. It’s a fine balance, and I hear my voice sounding a bit more stern when giving Harper commands—I can’t risk falling again. And you know, Harper responds!
“You never know,” I joked with John. “Maybe he’ll be even a better guide after getting all this time off!”
No joke, John said. “Harper wouldn’t be the first Seeing Eye dog we’ve worked with who improved after sitting out for a while.”

So thank you for your comments, my loyal blog readers, and please keep them coming. Your questions and suggestions inspire me, and the comments you leave at The Bark blog keep them asking for more!

Follow a Dream

July 27, 201112 CommentsPosted in blindness, Blogroll, Flo, Uncategorized

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There's the little mechanic.

My five-year-old great niece stayed with me overnight last week while Mike was away. She adjusted the Velcro on my boot cast, guided my finger to a strip for my blood glucose test, and retrieved my cane for me so many times that I told her she oughta be a nurse when she grows up. AnnMarie had other ideas. “I’m going to be a mannequin.”

This from a five-year-old ball of fire who never sits still and never quits talking. “Wouldn’t that be boring?” I asked. “All you’d do is stand around all day.”

I didn’t have to be able to see AnnMarie to know she had her hands on her hips now. “That’s what my dad does!” she said defiantly. “I’m going to be a mannequin when I grow up.”

AnnMarie’s father is a mechanic. And he’s a good one, too. AnnMarie has witnessed her dad come to her beloved great-grandmother’s aide many, many times back when Flo was still driving. Flo gave up her license on her 95th birthday, but AnnMarie still sees the profession as one where, just like nursing, you help people get where they need to go.

Which is all a long segue to a story my friend Gretchen Livingston told me about a guy named Jay Blake, the only totally blind crew chief in motor sports. From a blog called Cruisin’ Photography:

Overcoming the odds, triumph from tragedy and a million other clichés can be applied to Jay. He’s been blind since an industrial forklift tire blew up in his face in May 1997. The blast sent him 45 feet through the air and nearly killed him. He was airlifted from his work site in Cape Cod, MA, to Massachusetts General Hospital in Boston, where it took surgeons over 10 hours to reconstruct his features. The accident caused Jay to lose his vision.

Jay went through rehab after getting released from the hospital, and while making his way around his house to become acclimated to his surroundings, he wandered into the garage and ran across his toolbox. He groped around, found a combination wrench, and realized that he still had the ability to identify tools just by his sense of touch.

Fourteen years later, in addition to leading the crew for his very own dragster, Jay tours the country to speak to groups about a foundation he started to “inspire people, especially those with disabilities, to shift into positive thinking and to follow and achieve their dreams through self-determination and teamwork.” That’s how Gretchen found out about Jay Blake — her husband works for Illinois Tool Works, Inc. (ITW), and Jay and his team made a visit there earlier this month to show off his car and talk about Follow A Dream. From there the team was off to Joliet for an All-star race & the Route 66 NHRA (National Hot Rod Association Nationals @ Route 66 Raceway).

And so, a blind man is a crew chief for a hot rod. And the hot rod competes in national competitions. Who am I to tell little AnnMarie she can’t Follow a Dream? That squirrely little redhead might make a terrific mannequinmechanic when she grows up…!

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Healing

July 22, 201118 CommentsPosted in blindness, Blogroll, Flo, Mike Knezovich, Seeing Eye dogs, Uncategorized, writing

A guest post I wrote for The Bark blog earlier this month explained why it was that I’d been toying with sending Harper back to Morristown while I stay in Chicago and recover from my broken foot. That guest post (called “What’s a Seeing Eye dog do when his human breaks her foot?”) ended like this:

While getting regular workouts with Seeing Eye trainers in Morristown would be great for Harper’s work ethic, we worry what a temporary move back to Seeing Eye School might do to Harper’s mental health. Not to mention … mine.

A few days after that post was published, Mike took Harper to a regularly-scheduled vet visit. I stayed home, slumped in front of my laptop with my cast up on the back of the couch. Harper checked out fine except for one thing. He’ gained five pounds.

So it wasn’t just about our mental health anymore. Now my broken foot was affecting Harper’s physical health, too. I cut his food down from two cups to one-and-a-half cups a day and gave the Seeing Eye another call.

The doc left the x-ray up on the computer and Mike snapped it. It's getting there!

John Keane, Manager of Instruction & Training, said that, yes, I could send Harper back to the school for a while.” Our trainers could walk your dog every day, and of course Harper would perform for them,” he said. “But really, what would that get you, Beth?” Not much, I admitted. Just like cars that squeak or malfunction at home but perform perfectly at the mechanic’s, guide dogs are notorious for behaving well with instructors. It’s working at home that really matters.

“We usually only have dogs come back for help if they’re having problems in traffic, problems that are so serious they can’t be solved at home,” John said. In that case, trainers might try to re-enact the traffic problem while the dog is there in Morristown, see if they can remedy it, then bring the dog back and work with the team in the graduate’s home environment. I’d been doing my best to get out with Harper a couple times a week, even with the boot cast. “I really don’t notice any problems with traffic,” I told John, and he was happy to hear that.

“We’ll send someone out to give you another refresher course once your foot is healed,” John assured me. “Just be sure to let us know the minute you get any hint about when you might be out of the cast.”  John is the guy in charge of scheduling home visits, and he wants to get mine on the calendar.

I may be making that magical phone call to the Seeing Eye very soon: last Wednesday the foot doctor gave me a prescription for orthopedic shoes! I never dreamed I’d ever, ever be so excited about the prospect of wearing orthopedic shoes, but trust me, I am doing the one-legged dance of joy. My foot is on the mend, the doc said, and once my shoes come in and get fitted with a wide shank for added stability, the  boot comes off for good. And then, watch out, world: Harper and I will be on the road again.

Flo has been checking up on me every day since I got my cast on. She was elated to hear how protective my new shoes will be, and relieved to hear my foot is healing. “I’ll have to start out slow with the new shoes, you know, only one block the first day, then two the next,” I told her, explaining those are the only shoes I am allowed to wear the next couple months. “Guess I won’t be wearing any of my summer dresses for a while.”

“Oh, you can still wear your dresses,” Flo assured me. “They wear anything these days.” It’s a Floism she’s been using since I was a teenager. And you know, she’s still right.

One break was so severe that it will heal crookedly. So much for a future career as a foot model. Even after a few months, when I can get out of the orthopedic shoes, I’ll have to stick to practical ones. Hardly a concern, though. thanks to Flo’s daily phone calls, Mike’s help at home and his work with Harper, my sister Marilee and our friend Matt Cunningham subbing with Harper when Mike was out of town, and you countless others who have helped keep my spirits up the past couple of months, you’ll be seeing me back on the streetd soon. I’ll be easy to spot: just look for the happiest clodhopper in Chicago.

A Father's Journey to Understand His Extraordinary Son

July 17, 201114 CommentsPosted in Mike Knezovich, parenting a child with special needs, Uncategorized, writing

eMy guest blogger returns! Here’s a book review from my husband.

What we can learn from people like Gus

by Mike Knezovich

This is a great book, but I'm not linking to Amazon. Go get it or order it at your local bookstore.

As many of you are lucky to know, Beth has a knack for giving poignant, thoughtful gifts. She was true to form this past Father’s Day when she gave me a book called The Boy in the Moon. I just finished it. And what a read.

Beth doesn’t mention our son Gus very often in these blog posts of hers. Like other parents, we love our son. Think about him. Worry about him. But loving a child who has severe disabilities can be difficult to explain, so we tend not to try.

As for me, I admit I wonder what people think of what it’s like raising a son like Gus. I can get angry if I detect pity — or condescension — toward Gus, toward me and Beth, or the unspoken wonder that we could love a kid like Gus. And I can get hurt if people don’t ask or don’t know how to ask about our son. And then, when they do, sometimes they don’t really want to hear the answer.

Over time, I have come to understand that Gus, and life with him, simply had to be a mystery to others. After all, our son’s life has been—at least in real time—something of a mystery to me. Gus lived with us at home for 16 years, and all that time I had no way of telling others what it was like. And I have no way of telling people what it is like having him live away from us, either.

Now I don’t have to. Ian Brown, a writer for the Toronto Globe & Mail, has done it for me, and he’s done it better than I could hope to in his book The Boy in the Moon. So here’s a request: Go out and buy The Boy in the Moon. And read it as soon as you can fit it into your schedule.

That's Gus and Beth at a lunch date near his home in Wisconsin.

I’m not asking you to do this just for me and Beth and Gus. I do admit to selfish motives, though. If you read this book—which is the author’s account of raising and trying to understand his son Walker, who has a rare genetic disorder that leaves him with multiple disabilities—you will know what it has been like raising Gus. Ian Brown’s accounts are superbly written and uncannily similar to my memories—from receiving the genetic diagnosis to the 16 years of sleep deprivation to what it was like to parade around hyper-normal places like Disney World when things are not normal.

But more than that, you will understand why it all was worth it. As the author writes about his son Walker, “Everything about him compels me, unless it terrifies me, and sometimes it does both.”

The first half or so of the book covers Brown’s experience as a parent and a husband, but the rest is a look at what disabled people like Gus and Walker have to offer the rest of us. What they can teach us. You might be skeptical that they can. Or anticipate saccharine platitudes. I understand. But it’s richer and more complicated than that.

Beth and I and other families and caretakers know that people like Walker and Gus teach us extraordinary things. This book explains how and why better than I can—I hope you’ll read it.