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I dig this Marcus Roberts cat

December 15, 2019CommentsPosted in blindness, careers/jobs for people who are blind, Mike Knezovich

piano keysI spent last Sunday afternoon with my husband Mike and friends Jim Loellbach and Dr. Janet Smith enveloped in holiday music. Not your everyday stuff – this was the Marcus Roberts Trio with the Chicago Philharmonic, playing holiday classics arranged by Duke Ellington. A Concerto written by George Gershwin. Holiday jazz.

I love jazz and am especially fond of jazz piano. The first time I recall hearing Marcus Roberts was back in the 20th century. (Yikes.) Mike and I were lucky enough to walk into a record store in Champaign called Record Service when they happened to be playing one of his albums. We’ve been fans ever since, listening to Marcus Roberts recordings and hearing him perform live with Wynton Marsalis Jazz at Lincoln Center bands and later, with his own trio. At one of those trio concerts, Mike kindly nudged me and whispered, “You know he’s blind, right?”

He’s blind?! I didn’t know. Quirky fact: Without having sight, it’s hard to know if someone else can’t see, either.

My fondness for Marcus grew after that. We bought more of his CDs, and I finally got to meet him in person: Mike and I were still living in Urbana 20 years ago when Marcus Roberts did a weeklong artist-in-residence gig at the University of Illinois. The public was invited to come and listen. I stalked him at every workshop and performance he gave. Not an easy feat for a blind woman, but well worth the trouble.

Between tunes at the first workshop, Marcus told us what it was like to grow up blind, how he first learned to read Braille music, and the frustrations he faces when traveling to and from gigs.

“When our plane landed this morning, I stood up. The flight attendant brought in a wheelchair.” He paused for a moment. He was looking at us, I could tell. “I was STANDING. You with me?!” he finally continued. “I wonder, do they give white canes to dudes who need wheelchairs?”

I was spellbound. So, it seemed, was the rest of the audience. We all broke out in laughter.

Marcus went on to explain how he communicates to his trio during a performance without being able to see them. Drummer Jason Marsalis demonstrated the cadence he uses to cue a key change. Marcus showed us a pattern he plays on the upper register to cue bass player Roland Garrons for a solo. Afterward, we were encouraged to ask questions. I directed mine to Jason and Roland. “When Marcus approached you to play in his trio, did you hesitate at all?”

No answer.

“I mean, knowing there might be extra work involved, him being blind and all.”

They both stayed quiet for a while. Finally, Jason piped up. “In jazz, when you’re offered a gig, you take it.”

Roland asked to add something to that. He’d played with a lot of musicians over the years, he said, and a lot of them get lazy. “But with Marcus, he’s always coming up with something new. And when you play with Marcus, you really have to listen. I think we’re better for that.”

Amen.

Marcus and I had a chance to talk after a performance later that week. “Have you always talked about your blindness like that?” I asked him.

“Oh, man, no!” he answered. What a voice! “I used to do what so many other blind people do — pretend it doesn’t exist, it’s no bother.”

I nodded my head in agreement. You might think you have to be able to see to know if someone is nodding, but we know. “What made you decide to start talking about it, then?”

“About five or six years ago, I just thought, man, I deal with this every day. I might as well talk about it.”

What a relief it was to hear him talking so candidly about blindness.

At that time I’d been writing a book about losing my sight as an adult. Long Time, No See was in the midst of reviews and editing just then, due out in a couple months. “I’d like to read it,” Marcus said.

I got his address, contacted rehab services at the University of Illinois in Urbana-Champaign, and they agreed to print a Braille version of the advanced copy. Marcus liked the book so much, he agreed to do a blurb for the cover.

So there you have it. My brush with fame. I haven’t spoken one-on-one with Marcus since then, but his performance from that Chicago concert stage of Gershwin’s Concerto in F last Sunday? It spoke to me. What a sensational way to start celebrating the holidays this year.

A different version of this post originally appeared last week on the Easterseals National blog.

Questions Kids Ask: Are You Older than Whitney in Dog Years?

December 13, 20192 CommentsPosted in blindness, Braille, careers/jobs for people who are blind, guide dogs, public speaking, questions kids ask, Seeing Eye dogs, visiting schools, Writing for Children

I was busy shoving Whitney’s water dish and extra leash and a Braille copy of Safe & Sound into my backpack Wednesday morning when it dawned on me. The presentations we’d be doing at Ravinia and Braeside schools in Highland Park that afternoon would mark Whitney’s final school visits as a working Seeing Eye dog.

Whitney’s always known how to charm kids. (photo by Jamie Ceaser)

Do third-graders even know what the word “retirement” means? Should I tell the kids its Whitney’s last visit? That Whitney’s moving away? Could eight and nine-year olds possibly understand?

Whitney and I have visited dozens of classrooms this past year as part of the Educating Outside the Lines disability awareness program, and the thoughtful, caring questions third-graders came up with during the Q&A wowed me every time.

When we arrived, I ran the idea by their teachers. Would it be okay to forego most of the blindness stuff? Focus my talk on Whitney’s upcoming move instead? “Sure!” they shrugged. “If they want to know more about you being blind, they’ll ask about that, too.” The teachers were right, of course. This sampling of questions the kids asked tells all:

  • How did you get blind?
  • Why do you want Whitney to go to another person?
  • At the beginning of your talk you said all of Whitney’s brothers and sisters have names that start with ‘W’, so do all the dogs who start with ’W’ live in one house, and dogs that start with ‘B’ or another letter live in another house, and like that?
  • Is Whitney gonna have babies?
  • If you can’t see where you’re going, and there’s like, a wall in front of you, how does your dog tell you it’s there?
  • After Whitney retires, are you looking for a certain type of dog?
  • Do you have kids?
  • If the dogs are just puppies, how do the people at their school know that they can be trained?
  • How many years have you had a dog that helped you?
  • Do you really want Whitney to go to another person?
  • How long does it take to train a dog?
  • What will you do in-between the time you give up your dog and you get a new one?
  • What are the books that you wrote?
  • What if your new dog isn’t a good match, do you have to go back to school again?
  • What happens if a person is blind and they’re allergic to dogs?
  • So if dogs are color blind, is everything in black & white?
  • Are you older than Whitney in dog years?
  • How do you get on the plane to get your new dog if you don’t have Whitney to help you anymore?

That’s just it, I told the boy who asked that last question, admitting that I try not to think about it. “It’s going to be hard, but eyebrows up! She’s still here now!”

And with that, I thanked the kids for having us, and when I stood up, the beautiful ten-year-old Golden Retriever/Yellow Labrador Cross at my feet jumped up, shook herself off and stood patiently at my side. I lifted Whitney’s harness handle then, commanded, “Whitney, outside!” and dozens of eight and nine-year olds, all of them sitting criss-cross applesauce on the classroom floor, laughed and cheered as Whitney threaded me through them and out the door.

Whitney finished her final school visit on a high note, as did those third-graders. They wowed me again.

Mondays with Mike: Goodbye again

December 9, 20195 CommentsPosted in guide dogs, Mike Knezovich, Mondays with Mike, Seeing Eye dogs, travel

Like you loyal readers, I was touched by Elisse’s guest blog last week—and I already knew the story!

Something about reading the blog made it all more real—I was at a work conference with very little time for contemplation. But when I got back last night, at some point, I felt how much I’m gonna miss Beth’s companion.

It’s not going to be a new experience—but it’s never easy. The thought of the joy she’s going to experience in her retirement and the joy Whitney will undoubtedly give makes it all good.

And, for all you good folks who are following along, everything is now official. Beth will arrive at the Seeing Eye on January 6, 2020. She’ll be matched to a new companion—her fifth dog—and they will train until January 23, when Beth will bring her new helper to his or her new home. And I’ll be waiting.

Before then, we will deliver Whitney to her new Pennsylvania home. And then Beth and I will head to New Orleans for her Birthday. Beth will be dogless for a few days before she heads to the Seeing Eye, but I’ll do my best.

A headsup: Although the training at the Seeing Eye is thorough and intensive, in a real way the training begins here at home. And Beth and her new friend and I have to pretty rigidly follow some prescriptions. In our house, the dog will be leashed to Beth constantly. If Beth gets up from her desk to get another cup of coffee, she’ll have company. For a good while we will not bring her out to places with lots of people. For awhile Beth cannot go anywhere without the dog—so if we’re a little less social than normal, that’s why.

The first few weeks home are also when the paws meet the road as the new dog learns Beth’s haunts. We’ll see how she behaves at the pool where Beth swims, for example. Hanni would sit leashed to a poolside table and patiently watch Beth do her laps. Beth would get out, put Hanni’s harness on, and head to the locker room. The other dogs couldn’t stand watching Beth in the water without them—they have stayed with the patient locker room attendants while Beth swims. Beth gives the attendant a time to come fetch her, she hooks Whitney up at the desk, and they head to the locker room.

In the city we use elevators a lot. Whitney acquired an uncanny ability to spot elevator button panels and get Beth to them. On the other hand, where other dogs were good at ignoring other dogs, Whitney needed a lot of work.

They’re all different and each is better at some things. And every one of them has been an incredible gift to Beth and to me. With that, if you’re making year-end decisions about what and where to send your support, I hope you’ll give The Seeing Eye a look.

Whitney, Continued

December 5, 201937 CommentsPosted in guest blog, Seeing Eye dogs

I am pleased to introduce new guest blogger Elisse Pfeiffer today – she and her husband live in Red Lion, Pennsylvania.

by Elisse Pfeiffer

Photo of Whitney in harness.
Whitney’s graduation picture is on her Seeing Eye i.d. card. (Courtesy The Seeing Eye.)

Two weeks from now I’ll be meeting up with an old friend — one I haven’t seen in over eight years. You see, this particular friend has been very busy fulfilling her life’s purpose, and in doing so, she has been a great benefit to a wonderful woman who needed her to enhance her own quality of life.

My friend Whitney is an old lady now, about age 70 in human years, and she’s getting tired. I’m assured she is still in great shape, with many anticipated good years ahead of her, but as most of us know, age has a tendency to slow us down a bit, and our acuity begins to decline. We can still function, for sure, and continue to live a long and productive life, but when your job is to keep a person safe, you need to be 100% aware for 100% of the time you’re at work.

It’s time for Whitney to retire.

We have my daughter to thank for bringing Whitney into our lives. As a junior in her small country high school, Kate was President of the Leo Club. A junior division of the International Lion’s Club, the Leo Club encourages young people to do community service projects. Kate was 16, and she wanted to raise a puppy for the Seeing Eye.

I’m a dog lover, but I was reluctant at first: we already had a two-year-old Golden Retriever! Kate’s enthusiasm won me over, though, and shortly after we’d applied, we got a phone call from the Seeing Eye. An adorable six-week-old ¾ Yellow Labrador and ¼ Golden Retriever puppy named Whitney was available.

They told us we’d be required to attend frequent puppy-raiser meetings and go with our puppies as a group on outings to the movies, the airport, the malls, you name it. What they didn’t tell us was that our puppy would come with a four-inch-thick binder of instructions: commands to use, do’s and don’ts, other rules and regulations. Whew! This was going to be a lot of work!

Whitney, although cute as can be, was a handful. She did all the puppy things, but in mega-doses. She chewed up every toy we gave her, chewed up the molding in my dining room, ate countless shoes, and counter-surfed ad nauseum. She was so energetic that it bordered on her being crazy. We’d laugh at the way she spun around 2 to 3 times before laying down — I’m told she still does this!

She competed with our Golden Retriever, too. I’d throw a Frisbee as far as I could into our backyard and watch Whitney learning from Honey about retrieving toys. It didn’t take long before they reached the toy and brought it up together, tugging on it as they got closer to me, as if they were saying, “No! I’m bringing it to her!” Each dog eventually got her own designated playtime (to avoid the competition) and the two of them became great friends, often sleeping next to each other.

It was a great joy to raise Whitney, and it was hard to not get attached. Every single day I would tell Whitney that I loved her, but that she had a higher purpose. “You are going to be a great asset for a special person one day,” I’d say. I’m not sure if I was telling Whitney that for her sake or for mine, but I swear she understood. Her eyes are so expressive, and she’d wait for commands as if to say, “I’m here, I’m ready, what do you need from me?”

When we got the call that it was time for Whitney to go back to the Seeing Eye for her intensive training, we did our best to use our intellect over our emotions, remembering the original goal: helping someone we didn’t know who needed a dog to enhance their quality of life. An awesome thing.

The Seeing Eye sent us Whitney’s official graduation photo months later along with a letter saying Whitney had been given to an author in Chicago. We were so happy to hear she’d been matched with someone who we surmised was active, and later on, when we Googled “Blind author Chicago Whitney,” voila! Beth’s name appeared. We checked out Beth’s blog from time to time, but followed Seeing Eye rules and never contacted her directly.

Until a couple of months ago.

Our dearly beloved Honey had to be euthanized earlier this year after suffering renal failure, a result of that insidious disease called Lyme’s. Grief over that loss got me thinking about Whitney. I looked up Beth’s blog, only to read that after 8 years of awesome service, it was time for Whitney to retire. I commented to that blog post, letting Beth know I was glad to hear that Whit had been such a great dog for her and was sad that their time together had come to an end.

Beth emailed me personally then, assuring me Whitney would be in good hands with her great-niece Shelley in Minneapolis. Whitney and Shelley had developed a bond over the years, Shelley already had an older dog, Wilson, and was excited to take Whitney now, too.

I completely understood. With Whitney staying in the family, Beth and Mike would be able to visit her from time to time. I let Beth know I’d always dreamed of getting Whitney back one day but never expected that to become a reality.

When Beth told her wonderful great-niece about my message, Shelley was especially sensitive about our life without a dog now, and Whitney’s long ago friendship with Honey. It was decided. Whitney should retire with her puppy raisers.

I still can’t believe that in two weeks, I will be getting Whitney back – I am delirious with excitement and have already gotten her a new Serta sleeper bed, new food/water bowls, non-destructive toys (as I understand she still shreds a soft toy, haha), and have even darned Honey’s winter sweater as it will now belong to Whitney.

I am retired now myself and plan to get Whitney certified as a therapy dog through the American Kennel Club so that I can take her to Nursing Homes and to our local library for the kids “Read to a Dog” program. I don’t want to overwork Whitney, but this will be perfect for her: she’s used to being a working dog. If she is the Whitney that I remember, she will love interacting with people while still being able to be of service.

We will take nature walks, too, and go swimming and have play dates with my daughter’s dog –Kate got married this past year. I am so thankful to Beth and to her niece for making this crazy dream of mine a reality. I am blessed!

How StoryCorps and The Greatest Generation Helps Us Get Better

November 27, 20194 CommentsPosted in careers/jobs for people who are blind, public speaking, radio, writing prompts

This photo was displayed on the big screen while Wanda’s StoryCorps conversation was playing, the two of us are always happy to be together, can you tell? Photo courtesy StoryCorps.

Couldn’t make it to the Chicago Cultural Center to hear writer Wanda Bridgeforth at StoryCorps Live: The Greatest Generation last Friday? Don’t despair! Now you can hear the five-minute excerpt they played online. One thing you’ll miss out on by listening at home is the positive energy in the room during Friday’s event. Ask anyone who was there (more people came than I’d anticipated!) and they’ll tell you. During the audience discussion afterwards a woman said, “It felt like a live history lesson!”

She was right.

As host, my job was to welcome the audience and introduce each of the six short excerpts selected from conversations with people over age 90recorded at the StoryBooth in the Chicago Cultural Center. Listening to their stories taught us a lot about Chicago history. You can link here to listen to all six stories, and among those five-minute excerpts of recorded conversations you’ll hear a Japanese-American man explaining to his son and granddaughter why his first job in Chicago, working graveyard shift at Oscar Mayer Meat Company, lasted only two months. . “One night an army colonel came walking through and spotted me. He told Oscar May’rs to ‘get rid of those Japs,’ so we were fired immediately.” In another conversation a woman tells her son about working in a laboratory at the University of Chicago in the 1940s and discovering later that her work was part of the Manhattan Project to develop an atomic bomb. “I didn’t know we were working on a bomb!” she tells him. “I had no idea.” Some people in the audience Friday gasped when they heard Wanda non-chalantly describe boundaries she grew up with on Chicago’s South Side. “We were blocked in,” she said. “We knew not to cross Cottage Grove, 51st Street or the train tracks. That was our neighborhood.” As a kid, if she crossed east on Cottage Grove Avenue a “policeman would come out of nowhere, ask where you were going and escort you right back across the street.”

Audience members stayed afterwards to enjoy a free lunch, talk with each other and meet the featured nonagenarians and their family members in person — Wanda’s daughter, Wanda, Jr., was there, too!

As I write this blog post, it occurs to me that maybe hearing StoryCorps Live helped people there feel less self-conscious? They sure sounded more open to conversation with others they didn’t know. The audience discussion afterwards was lively, it provided me with ideas for writing prompts for 2020 memoir-writing classes, no one hogged the microphone, we all seemed intent on, guess what? Listening.

I overheard dozens of conversations around me as my sister Cheryl and her daughter, my niece Janet, guided Seeing Eye dog Whitney and me out once the event was over. The two of them had surprised me by taking the train in from the suburbs to see Wanda (one of their favorites) and watch me host the event.

Janet is ten years younger than I am, she knows me well, and I have always been able to count on her to be painfully honest with me. “You were pretty nervous at first, I could tell,” she reported as we said our thanks and goodbyes to all the writers in my memoir classes who’d come from all over the city to be there. “But you got better,” she added.

Janet was right, of course. I did get better Friday, and I wasn’t alone: everyone there did! You can’t help but get better when listening to the Greatest Generation.

Many many thanks to Crystal Warren, Regional Director at Renaissance Court for letting StoryCorps Chicago know about the writers over age 90 in our memoir-writing class there, and to Amy Tardif, Regional Manager of the Chicago StoryBooth for listening! Bill Healy, the great guy who produces StoryCorps conversations for WBEZ was at Friday’s event and the StoryCorps staff members were a huge help in making it all go so smoothly: thank you Mary Bess Ser, Rocío Santos, Olivia Lindsley, Laura Saenz, and Juanpablo Ramirez. Link here to participate in the Great Thanksgiving Listen tomorrow and add your own story to the StoryCorps archive, too.