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What Do I Do When All the Memoir-Writing Classes I Lead are on Break?

December 19, 202228 CommentsPosted in blindness, careers/jobs for people who are blind, technology for people who are blind, visiting schools, writing, Writing for Children

I sure have been busy lately.

But really? who hasn’t been?!

My busy-ness doesn’t have much to do with the holidays, though. I’ve been busy writing, and it’s making me feel good!

Let me explain. After decades and decades of querying magazines about story ideas, pleading with agents to give my latest manuscript a read, all that sort of writerly stuff, well, suddenly editors, publishers, and even podcasters are contacting moi to ask if I’d be interested in writing for them or appearing on their podcast.

Let’s start with Cherry Lake Publishing Group, an educational and children’s book publisher based in Ann Arbor, Michigan. They found out about me through the work I do for the Easterseals National blog and asked me to write two textbooks for an “Understanding Disability” series they were putting together for elementary school children. My two textbooks, one called “What is the Americans with Disabilities Act?” and the other called “Service Dogs” were released in October, and I’ve already done a few school presentations to let kids and teachers know about them.

And then, seemingly out of nowhere, a podcaster from the Rocky Mountain ADA Center in Colorado emailed to ask if she could interview me for their Adventures in Accessibility podcast. I’d never heard of the podcast before, but when I checked it out and discovered they’d interviewed the likes of Illinois senator Tammy Duckworth for one episode, I said yes. Pretty good company, eh?! You can link to my episode here — it went live last Wednesday.

Then next thing you know, I was contacted by a site called Choose Chicago that is “all about Chicago Things to Do, Events, Restaurants, Hotels & Vacation Planning” and markets Chicago to visitors, conferences, and conventions. They just started a new blog series on the best accessible spots in Chicago for people with disabilities, and the Senior Content manager emailed me wondering if I would be interested in contributing. If my answer was yes, she’d share more details.

My answer was yes. She shared more details.

I enjoy lots and lots of the things Chicago has to offer, I knew it’d be difficult to keep the post short, but I was up to the challenge and got lots of help from the Choose Chicago editors. Accessibility in Chicago: a local shares favorite spots for blind and visually impaired visitors went live last Friday.

It’s been fun – and flattering – to get all this attention right before the holidays, and to top it all off, Cherry Lake Publishing Group has asked me to write another children’s book for them, this one for their Itty-Bitty Bio series, and due by January 15, 2023. Happy New Year!

Mondays with Mike: A neighborhood grieves

November 28, 20228 CommentsPosted in Mike Knezovich, Mondays with Mike

The Printers Row Wine Shop home page.

In 2002, our son Gus moved away from our home in Urbana to a group home in Wisconsin and Beth and I became empty nesters. In 2003 the weekly paper I edited folded and I was out of a job. That spring, Beth’s book, “Long Time No See,”  would be published. I got a gig up north and Beth thought it’d be easier to promote her book if we lived in Chicago.

We both grew up in the suburbs but had never lived IN the city. And so, we ended up in the Printers Row neighborhood that we’ve grown to love. We were drawn to its central location—multiple expressways, bus lines and L stops converge here. And back then, before Uber and Lyft, you could count on catching a cab within a minute or two.

More than that, the place felt like Bedford Falls nestled in a bustling metropolis. It still lives like a small town. Plus, we’ve always been drawn to places where Beth and her Seeing Eye dog could function and get stuff done independently. And Printers Row fit the bill. A bank was just down the street. Even nearer there was Sandmeyer’s Book Store, Kasey’s Tavern, and a little old-fashioned pharmacy/convenience store. I mean, that’s life right there.

Flavio, the proprietor of the pharmacy, was a keen entrepreneur, and he decided to transform the pharmacy into a wine shop/liquor store. (He came by his entrepreneurial spirit honestly.) We were concerned at first about losing a business we liked, but we weren’t hurting for drug stores, as CVS and Walgreens stores had popped up everywhere.

We needn’t have been worried. Flavio divided the space, leased out half, and turned the other half into a warm, intimate, friendly space. He stocked wines at multiple price points and he had a knack for finding delicious bottles at very approachable prices. And if you needed a recommendation, you need only tell him the occasion and the menu and you’d walk out with a winner.

On Friday evenings Printers Row Wine Shop hosted wine tastings. They became a regular destination for lots of folks in the neighborhood. That popularity sparked Flavio to convert the tasting bar into a bar-bar, and hence a business within a business was born.

It’s still a retail store. While people sit and sip and converse in an extremely civilized environment—wood floors, tin ceiling, and conversation-level background music—others stroll in and out, picking up a bottle of wine for a dinner party, or beer for the weekend.

Beth and I thank our lucky stars for the people and places that make Printers Row Printers Row. Ellen Sandmeyer and her late and one-of-a-kind husband Ulrich. Totto’s Market. Sofi restaurant and Senoritas Cantina in our building. The folks at Kasey’s Tavern. Jazz Showcase. Half Sour. And Flavio and the great staff at Printers Row Wine.

These places are businesses, yes. But because of the care and attention of their proprietors, and their care and attention to their customers, these businesses become characters in the lives of we who live in Printers Row.

The neighborhood lost Ulrich Sandmeyer a few years back. And, I’m heartbroken to report that we lost Flavio last week. Suddenly, unexpectedly, and given that he was an extremely vital 51, entirely too soon.

He leaves behind his wife and two daughters, the oldest of whom just started high school. A large, tight-knit family and a plethora of good friends—many of whom we met at the shop—are coming together to support Flavio’s family and each other.

Still, our hearts ache for them.

And, of course, we’ll miss him. He reminded me of my grandfather on my mother’s side. Paolo Latini immigrated from Italy and worked in the coal mines of southwestern Pennsylvania. By the time I knew him he was retired, had black lung, and wore straw hats with green visors and sprayed pesticide on his perfect garden just like Marlon Brando did in The Godfather.

He kinda scared me when I was little. And then I got to know him and realized that inside his gruff self was a heart of marshmallow.

I was fortunate enough to see Flavio with his family and to hear him talk about his daughters to know that the perfectionist shopkeeper had my grandfather’s soft and giving heart.

It’s hard for we and our Printers Row neighbors to fathom this loss—there’s been too much loss this year.

When Ulrich Sandmeyer passed away, the neighborhood mourned the loss of a friend and, selfishly, worried that the beloved book store that has anchored the neighborhood for decades would be no more.

We needn’t have fretted. The tiny but mighty Ellen Sandmeyer has it going strong.

The staff at Printers Row Wine is devastated. And committed to maintaining the neighborhood spot just as Flavio would have.  His heart beats there and his blood runs through that place.

And the neighborhood is the better for it. Godspeed, Flavio.

 

 

 

 

 

 

Senior Class: Sharon’s New State of Mind

November 25, 202214 CommentsPosted in guest blog, memoir writing, public speaking, teaching memoir

A number of writers from Wanda Bridgeforth’s memoir-writing class came to her memorial service last Saturday. Sharon Kramer was one of them, and she graciously agreed to let me publish this essay she wrote about the event. Mike, Seeing Eye dog Luna, and I were there, too. What an honor to meet — and celebrate Wanda’s well-lived life with — some of the family members and friends Wanda has written about in the many, many years she attended our class. Thanks to Sharon for writing all about it here:

A Wanda State of Mind

by Sharon Kramer

That's Sharon Kramer and me in 2016 with three other writers from our downtown class:, Audrey Mitchell, Wanda Bridgeforth, and Darlene Schweitzer.

That’s Sharon Kramer to my left and three other writers from our downtown class back in 2016: Audrey Mitchell, Wanda Bridgeforth, and Darlene Schweitzer.

Funerals are not to be enjoyed. They are an obligation, something to be endured. Sort of like death itself.

Not only are funerals sad and dark, but they are often insincere, too. Sometimes the minister has never even met the deceased and calls her “Beatrice” when all of her friends knew her as “Bea.” I even witnessed a rabbi who forgot the name of the departed.

Last Saturday, I attended the funeral of Wanda Bridgeforth. It wasn’t dark at all. In fact, if I could choose a color, I would say it was pink. There were old friends to greet — some I hadn’t seen in person for two years — and even though it was one of Chicago’s coldest days, the mood was upbeat.

The three people who spoke at the presentation knew of Wanda’s lust for life and told stories about her joy in being alive. Her Godson, Alex, spoke about Wanda’s love for animals. “When I was a boy, Wanda was the only adult I ever saw kiss a dog,” he said. “And on the lips!” While other adults grimaced at the sight, Alex forever after loved his Godmother for that tender — and possibly sloppy — act. When he graduated from college, Wanda gave him a copy of “Oh the places you’ll go,” by Dr. Seuss, as a gift. Later on, when he graduated from Northwestern law school, people gave him expensive pens, wallets and briefcases. “And Wanda? She wrote me a poem.” He has no idea where those briefcases and other things are now, but he treasures that poem from Wanda and knows exactly where it is.

Wanda’s daughter, Wanda Jr,. told us how fortunate she was to be raised by Wanda. Other kids grew up with parents who scolded them if they did something wrong. But not Wanda. She looked at wrongdoing as an opportunity to give her daughter advice. A story Junior shared about walking home from school when she was ten years old and picking lilacs off a neighbor’s bush along the way tells all. When Junior brought those flowers home to her Mama and gushed about how good they smelled and how beautiful they were, Wanda used a soft voice to ask her daughter a question. “You always like smelling those lilacs when you pass by that bush, don’t you?” Ten-year-old Junior answered enthusiastically. “Oh, yes, Mama, I really do!”

“I imagine other people think they are beautiful too,” her Mama pointed out.

“They sure do, Mama!”Junior replied.

“But they leave them there for all to enjoy,” Wanda concluded.

Lesson learned. Junior went back to apologize to the neighbor who had the lilac bush in her yard, and all was forgiven.

Beth, Wanda’s friend and teacher, spoke directly to Wanda instead of the congregation. I could see Wanda smiling about this: an irreverence Wanda would have loved.

Wanda had been in Beth’s writing class almost from the start — for 15 years — and sat next to Beth at every class. That way Beth could easily hear Wanda, and Wanda, who had a hearing problem, could hear Beth. A wonderful coupling, and as Wanda famously said many times, it was “the deaf leading the blind.”

Leaving the funeral, I felt uplifted instead of sad. How lucky I was to know Wanda and get a glimpse of her amazing life. A pink life. A life full of love, humor and wisdom.

Today as I write this, I am still in a “Wanda” state of mind. Despite my preconceived ideas of funerals, this one was to be enjoyed, just like Wanda.

Questions Kids Ask: Does it Hurt to be Blind?

November 22, 202216 CommentsPosted in blindness, Braille, guide dogs, questions kids ask, Seeing Eye dogs, travel, visiting schools, writing, Writing for Children

That’s my niece, Kennedy (I call her Toots), with her teacher and Luna.

One week ago today I was at Sterling Park Elementary, a dual-language school in Casselberry, Florida giving a presentation to third graders. My eight-year-old great-niece Toots goes to that school, and my sister Cheryl and I had flown from Chicago to Florida a few days earlier to see Toots in a children’s theater performance of the musical “Annie.”

And then, what great luck: last Tuesday, November 15, was “Teach-In” at Sterling Park Elementary, and if we stayed in Florida for a few more days after the fabulous performance of “Annie” I could come talk with her third-grade class about what it’s like to be blind, write books, and get around with a Seeing Eye dog.

So we stayed.

When it was time for the presentation, my Seeing Eye dog Luna led me to a chair in front of the kids — they were all sitting on the floor, criss-cross applesauce. Except for Toots.

Note: “Toots” is not her real name, but she is, well, such a “Toots” that I can’t help myself. I have to call her Toots! And Toots doesn’t seem to mind. She was standing in front of the class as we walked in, ready to assist Aunt Beth with anything necessary. As we got ourselves ready to do the presentation, she came close enough to whisper and assure me that it was “okay to call me Toots.”

I kept my presentation short, and Toots surprised me by taking over from there, announcing we were going to show our audience a game the two of us play when we’re together. “I put things in Aunt Beth’s hands,” she explained, “and see if she can guess what it is!” From there she ran around the classroom to collect things that might fool me, and she even kept score on the whiteboard behind us. Pretty sure I won, two to one.

And then Toots was right there at the front of the room to call on her school friends who had questions afterwards. A note of thanks to Mrs. Grau (one of the teachers there) and my sister Cheryl for writing these all down for me: There were so many good ones!

  • When you became blind, how did it feel?
  • Does Luna ever get out of her harness?
  • Where do the dogs go in retirement?
  • Does Luna know braille, too?
  • Do Seeing Eye dogs know they’re in the right place?
  • Is it weird to just see black every day?
  • Can any dog be a Seeing Eye dog?
  • Does it feel weird to be blind?
  • If you look at a light do you see a little lighter color black?
  • Were you always an author?
  • How do you tell the different bills in your wallet?
  • How long have you had Luna?
  • Does it hurt to be blind?
  • Can Luna swim?
  • Can a Seeing Eye dog be small?
  • Can you send us a letter in Braille?
  • How do you make meals?
  • I have a Black Lab at home, too — how long did it take to train Luna?
  • What are some things you like to do?
  • When you dream, do you see things in your mind?
  • How do you know what you are eating?
  • What other books have you written?
  • How many years does Luna have left?
  • How does Luna use her sense of smell to help you?
  • Who is your favorite service dog?

And with that, I thanked the kids for having us, and once I stood up, the Black Lab at my feet jumped up, shook herself off and stood patiently at my side. I lifted Luna’s harness handle then, commanded, “Luna, outside!” and dozens of eight and nine-year olds, all of them still sitting criss-cross applesauce on the classroom floor, laughed and cheered as Luna threaded me through them and to the door to the hallway.

And for her encore? I took Luna’s harness off so all the kids — and teachers  — who wanted to could pet Luna or rub her belly on their way out. As for that last question? The one about which is my favorite service dog? Adults ask me that question a lot, too, and my answer is always the same: The one I’m working with now!

Our Senator Earned her Seat in Congress

November 17, 20224 CommentsPosted in blindness, Blogroll, Mike Knezovich, politics, technology for people who are blind

An official portrait of Senator Tammy DuckworthI was delighted when Tammy Duckworth won last week’s election: it means she’ll  serve as senator here in Illinois for six more years. Senator Duckworth has a long career serving her country, and when it comes to disability access, she is an expert: she served in Iraq and lost both legs when a rocket-propelled grenade struck the helicopter she was co-piloting in 2004. After she won the 2017 election for Senator of the State of Illinois, an article in the Chicago Tribune pointed out that running a Senate campaign involves lots of travel and complicated logistics. From the article:

Duckworth said she and her staff have a pre-event checklist to make sure the site is up to their standards — and that means making sure even the bathrooms are wheelchair accessible.

“I don’t go to any place that isn’t accessible even though I have artificial legs that I can walk in; it’s on principle,” she said. “If someone in a wheelchair can’t get in it, I’m not going to do an event there. Just because I can get in there with my artificial legs doesn’t mean somebody else can.”

The article said that during her campaign Duckworth often heard from voters who question her ability to serve. A question about using a wheelchair in public during the campaign came up when she first ran for Congress. “I’m not ashamed I’m in a wheelchair. I earned this wheelchair,” she said. “I’ve always insisted it’s not something that we hide.”

A seasoned member of Congress now, Senator Duckworth joined Representative Sarbanes of Maryland last month to introduce the Websites and Software Applications Accessibility Act (S. 4998 , H.R. 9021) in both houses of Congress. The bill will require employers, state and local governments, and private businesses to make their websites and applications accessible.

Much has been made about how people with disabilities benefitted from digital access during the COVID pandemic, but casual conversations I’ve had with friends who have visual impairments tell me how frustrated they’ve been with technology, the high number of web sites that are not easy to use if relying on speech software and the hours they’ve wasted trying to make it work.

I am one of those people. During the pandemic my husband Mike has had to take over much of the on-line ordering we do, the forms we are asked to fill out on line, and any online streaming we do. Throughout the pandemic I got a lot of messages in my in box about plays and concerts and lectures available on line free of charge, but when I gave them a try, the links and buttons were not accessible – frustrating!

If passed, this new legislation will make it clear that the Americans with Disabilities Act applies to websites and applications. I already know that my Senator will be voting in favor of the bill — she’s the one who introduced it to the Senate!

An earlier version of this post appeared last week on the Easterseals National blog.