Mondays with Mike: Gus ‘n’ Us

April 26, 2021 • Posted in Mike Knezovich, Mondays with Mike, parenting a child with special needs, travel by

Last Saturday I got in a rental car (actually an enormous minivan—I know, oxymoron, but that’s what it was), figured out how to start the damn thing and put it into gear (I’m sorry, but shifting gears shouldn’t be done with a dial), stopped home to board Beth and Luna, and headed north.

Eat your heart out, Tom Selleck.

To Watertown, Wisconsin. To see our son Gus in his group home. That used to be a routine, monthly occurrence. But, you know what happened. It’s been a long while.

Typically, we call the house on the drive up to let them know we’re coming—and to be sure they didn’t have some outing planned. But Saturday, the house phone was busy. And busy. And busy.

It’s common advice for those of us who have loved ones in the care of others to make unannounced visits…to check on their care. And early on we did that from time to time. But over time, our trust grew, and well, you know, we don’t really like sneaking up on people whom we’ve come to trust.

But this time we had no choice and we just showed up. Gus’ house is actually a duplex, with four bedrooms, a living room and a kitchen on each side. That way staff members can toggle between as necessary. But Saturday, when I rang the bell on Gus’ side, there was no answer. Between the phone being busy and not raising anyone despite knocking, my heart sank at the thought that maybe they were on an outing and we’d missed him.

I went to the other side, though, and this time a staff member opened the door. All the residents were just finishing lunch. I explained that we’d tried to call and she apologized—she had just realized the phone was knocked off the hook, and the other doorbell was broken. About that time a resident walked out of the bathroom in his birthday suit.

“Sorry,” the staff member said. “I’ll be right back.”

While she tended to business, I went back to the car to get Beth and Luna, and we joined Gus in his room for the first time in forever.

He looked great. He would’ve looked great after all this time no matter what, but his hair was groomed and he had recently been shaved—save for a thick, dark mustache. My nephew, upon seeing the picture, said “He’s rocking a Tom Selleck ‘Magnum P.I.’ stache!”

Way back—nearly 20 years ago—when Gus first moved away, when we visited we took Gus on outings. Typically to Culver’s, where he’d demolish a double cheeseburger. Then we’d take a ride with the radio blasting tunes.

That was fun, but I got older and weaker and he got bigger and stronger. Which meant I could no longer muscle him in and out of his wheelchair and in and out of the car like I used to do routinely.

So we’ve taken to just making house visits and sitting and talking with Gus. Now, Gus is a bit of an enigma. For example, he can see well enough to wind his way through doorways in his chair. But he only (as far as we know) has peripheral vision. So he doesn’t look at anything straight on. He cocks his head to look at us.

And when I said I talk to him, we don’t converse, exactly. Beth will provide an update about us and our families—he doesn’t understand but it’s enough for him to recognize that it’s Beth. Then I’ll say “Hi Gus!” in my best booming dad voice. He has always immediately recognized our voices and Saturday was no exception. He immediately smiled and laughed.

And then he just erupted, about every 10 seconds, with an excited roar of joy. Don’t know how else to explain it. We often match his odd sounds and he’ll reply, and that’s what we did. We put some music on and just chilled.

After goodbyes, Beth and I headed to Milwaukee where we stayed at Brewhouse Inn and Suites, a nice hotel in a renovated building from the old Pabst brewery campus. A pretty remarkable and historic little corner of Milwaukee: two thumbs and a paw up.

Our Milwaukee hotel.

We could easily have made it home the same day but long ago, we adopted a policy of staying over night after visits. Mostly Milwaukee, sometimes Madison. In the early days, when Gus had moved away, visits were emotionally draining and the long ride home just felt empty and lonely. So we decided to give ourselves a treat with a stay at a nice place each time.

Visits are no longer taxing—Gus has been settled in for a long, long while. But it’s still fun to make a weekend of it.

This time we walked around the corner from the hotel to a modern microbrewery. We had a “Milwaukee charcuterie board,” which included local Usinger summer sausage, cheese curds, pub cheese, pickles and pretzels.

And we went to bed knowing, for certain, that Gus was safe and sound.

Laura On April 26, 2021 at 5:31 pm

I smiled the whole time I read this! Great visit, and great recap!

Cheryl On April 26, 2021 at 5:41 pm

I’m so glad you were able to be together. Gus looks great. It sounds like he was happy to have both of you there and I know you both were happy to be there.

John DeStefanis On April 26, 2021 at 6:02 pm

Its so nice to see that you were both finally able to visit with your son, Gus. And also nice to heart of your stay at the Brewhouse Hotel. In the future, if you come to Milwaukee, Joan and I would love to see you both.
Joan Bollero and John DeStefanis

mknezo2014 On April 27, 2021 at 2:41 pm

Thanks John! Hope you both are well.

Patricia L Fraser On April 26, 2021 at 6:04 pm

SO lovely. Thank you.

Bev On April 26, 2021 at 6:05 pm

I can just hear his excited roars of joy. He was obviously as excited to see you as you were to see him. Thanks for sharing your visit with us. That charcuterie board sounds pretty good too!

mknezo2014 On April 27, 2021 at 2:37 pm

Yeah, you’ve seen him get riled up–but this was nutty loud!

Mel Theobald On April 26, 2021 at 7:03 pm

Mike, please pass the Kleenex. I’m so happy for all of you. This is like an updated version of “It’s A Wonderful Life.” I’m guessing Clarence wasn’t there, but if was, he surely would have gotten his wings. Gus looks great with a mustache.

mknezo2014 On April 27, 2021 at 2:36 pm

I’m all out of Kleenex, used it all up Saturday. Thanks Mel, see you soon I hope.

Maggy Fouche On April 26, 2021 at 7:48 pm

A beautiful story, Mike. So touching.

Linda Miller On April 26, 2021 at 7:49 pm

So great to read this! Well told (and well lived).

Dean On April 26, 2021 at 8:30 pm

What a wonderful update!! Sounds a bit like our visit with Craig after all this time. The outburst of joy every 10 seconds that comes from a place so deep inside the heart. While Craig and Gus have traveled different paths, they still love and need their parents. Loved your blog!

Dean

mknezo2014 On April 27, 2021 at 2:35 pm

Thanks Dean–when did you get to see Craig?

Lola On April 26, 2021 at 10:03 pm

Thank you for the heartwarming story and photos. I hope you can see him every month.

Fancy Nisher On April 27, 2021 at 8:24 am

Wonderful to see you back to visiting! He looks great!

Marilee On April 27, 2021 at 9:03 am

A beautiful weekend! So happy you were finally able to visit Gus!

Sheila A. Donovan On April 27, 2021 at 9:28 am

I had a lump in my throat and a smile on my face while reading this. So glad you finally got to see Gus!

mknezo2014 On April 27, 2021 at 2:35 pm

Thanks Sheila, I had both (lump and smile) the wholet time!

Jane Hertenstein On April 27, 2021 at 4:34 pm

nice post Mike and Beth, we’re coming through this, intact

Sharon k. On April 28, 2021 at 5:40 am

Thank you Mike. I am so happy you and Beth share this with your fans. Love the description of joy.

Veronica Cook On April 28, 2021 at 6:38 pm

So happy for both of you- and Gus! After the potential problems with his housing, and this very long year. it must have been so satisfying that all was well.

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