Ali Krage’s last guest post was Part One of her two-part series on how a blind couple (Ali and her boyfriend Joe) arrange and enjoy a hotel stay on their own. Here’s Part Two.

by Alicia Krage

I was up at 6 a.m. the day we’d be heading to the hotel. I’d gone to sleep early the night before and was too excited to sleep anymore. I used VoiceOver, the speech synthesizer app on my iPhone, to text Joe shortly upon waking up in the morning, as per usual. “The day has finally arrived!” I texted, followed by a countdown until he would arrive at my house.

Joe arrived at 10 a.m., and we departed at about 11:45 for our Italian lunch. I used Voiceover to text the Uber driver that I am blind and to please come get me upon their arrival. The ride to lunch was short, and it was timed perfectly: it was almost 2 p.m. when we left the restaurant and headed to the hotel.

When we arrived at the hotel, I knew exactly where the front desk was. With my purse over my shoulder, my duffle bag in my left hand, my cane in my right and Joe holding my right arm, I proudly walked in and went to the front desk to check in. When I requested assistance to our room, an employee seemed happy to help us to the third floor.

Once we got to our room, our helper asked if we needed any more assistance. Not wanting to answer on behalf of both of us, I asked Joe if he needed anything. He said no. We both wanted to explore the room ourselves first. Before the employee left, though, I did ask, “Is there a special button on the phone to reach the front desk, or do I just press 0?” She confirmed what I had already suspected: I would just press 0.

We spent a couple hours exploring the room, chatting, and relaxing, since we knew we had some time to kill before my parents would be picking us up for dinner. When the time came,the walk from the room to the elevator was simple enough. The walk from the elevator to the front door went well, too. People who saw us passing offered assistance. It was nice knowing friendly people were around and willing to help out, but we were okay on our own: we had this.

When we got back to the hotel, we changed into our swim suits and made our way to the front desk. “Anything I can assist you with?” The receptionist asked. I said we were going to the pool area. “We’ll need some towels, and someone to escort us there.” I heard a friendly smile in her voice when she said she’d be happy to help.

“Do you want to hold my arm?” she asked me as she approached my left side. I smiled, knowing that she might already be familiar with the sighted guide technique. She led us to some chairs in the pool area, and I asked if it would be okay if we moved the chairs close to the railing so we could find our things. She said yes. She led us to the steps leading into the hot tub, and we moved the chairs close to the railing.

We enjoyed the pool and hot tub for about an hour and a half., and finding our stuff afterwards was as simple as I had expected. We climbed out, following the rail around to the right until the two chairs were there. After we were dry and ready to go, I used my cane and walked carefully to avoid slipping on the wet floors (or falling into the pool). It took us a little while to find the doors, but when we did, I proudly announced, “Here it is!”

The rest of the night and following morning were relaxing. I was only a few miles from home, and this felt like a mini vacation. It was definitely worth the wait. We had a 12 p.m. check out time, but we checked out a little early because we were meeting a friend for lunch.

We neared the front desk and were met with the usual, “Do you two need assistance?” I informed them that we were checking out and proceeded to hand over my room key. Joe did the same, and the receptionist led us to the front door. As we stood waiting for our Uber to arrive, holding hands and smiling,
I turned to Joe and said, “We need to take trips more often!”

I’m heading off to beautiful Grand Haven, Michigan today for Sisters’ Weekend, and while I’m away my young friend Ali Krage is stepping in with a guest post.

I met Ali 15 years ago at a “low-vision conference” in DuPage County. “I’m blind like you and I can read Braille and I go to the same school my twin sister goes to, but she can see, can you give me your email address? We can be pen pals!” Who could refuse an invitation like that? Ali was only 11 years old back then. She’s in college now and helps me out by writing guest posts on the blog I moderate for Easterseals National Headquarters.

This one was published on the Easterseals blog yesterday. It’s about the challenges and joys of preparing for a staycation with her boyfriend…when neither of them can see.

Joe and Ali.

by Alicia Krage

For Christmas this past year, my parents gave me a gift certificate for a free night at the Hilton Garden Inn hotel in Addison, just a couple miles from my hometown. This wasn’t something I expected to receive, and I took it as a sign of independence. My parents have always been encouraging about my independent travels, whether that meant visiting friends at local or faraway colleges, or (in this case) staying at a hotel.

They’re also good about letting me figure things out on my own, so they left it to my boyfriend Joe and me to choose the date and figure out transportation. Joe and I spent the next few weeks trying to pick a time that would be convenient to go. The certificate didn’t expire until December 2019, but I didn’t want to wait too long. I was afraid we might forget to use it!

After discussing many options, we finally decided to take advantage of the free time I’d have during spring break and use the hotel stay as a mini getaway. We specifically chose March 14. Here’s a little bit of a fun fact: You might recall that in a past blog post, I explained that Joe and I were casually seeing one another before we became an official couple and went on a few dates. March 14 was the day he asked me out on our very first date four years ago. We’ve never acknowledged this day as anything to celebrate, since this isn’t our official anniversary, but since it landed on my spring break we decided to do something different and use it as an excuse to go to a nice hotel.

After finally choosing a date, it was time to call the hotel. I let the receptionist know that we were both blind, so if there was a way to add a note to the reservation, I would appreciate it if that was added. “Yes, of course!” she said. “I’ll also put ‘special assistance’ so they know they have to help you with things like leading you to your room.” The friendliness in her voice was reassuring, and the hint of familiarity, like this news wasn’t a shock, put a smile on my face as I thanked her and said goodbye.

Next was figuring out transportation. I knew that if my parents were free, they would take us, but I enjoy being independent and traveling on my own. I had a gift card for a local Italian restaurant nearby, so we decided we’d take an Uber to that restaurant first, have a nice lunch, and Uber from the restaurant to the hotel to check in. I used voiceover on my iPhone to navigate through the Uber app to enter in the pick-up location and destinations to get the fare for both trips, and Joe and I agreed to split the fare each time.

The day before our trip, my dad took me to the Hilton to get oriented. Upon arriving, we walked to the front desk, and my dad explained to the receptionist that I had a reservation there the following day and, because I’m blind, he wanted to take me around a bit to get the “lay of the land.” The receptionist said that was fine, sounding polite. We started out by walking to the elevators, then heading to a different floor to look at room numbers.

When I was checking out the Braille sign near the door, I noticed there wasn’t a key hole. My dad explained you simply hold your key card up to the door. “It’ll be scanned to unlock the door for you.” This was a relief! It meant I wouldn’t have to request for a corner to be cut on the room key so we’d know how to insert it. After checking out a few more rooms, we headed to the first floor to look at the pool area.

We couldn’t go into the pool area (you needed a key to get in) but my dad was able to look through the window to give me a description of the layout. After practicing these routes a few times — from the elevators to the pool, from the pool to the elevators, and the elevators back to the front — I was even more excited.

Find out how the hotel stay goes when we publish Part Two later this week.

Last Spring we published a post here listing questions my young friend Ali, who is blind, had while planning a trip with her boyfriend Joe from her college campus to a Chicago jazz club to celebrate their anniversary. Since then Ali has become so adept at using technology to help her get around on her own that I asked her to write a post for the Easterseals blog about her favorite apps and how she uses them. I thought you Safe & Sound blog readers might be interested, too. so here it is:

by Alicia Krage

Back in May 2018, I wrote a post here about transitioning from the iPhone 6 to the iPhone 8, and how important this was for someone who uses their phone for everything. It’s a new year now, and I’ve decided to go a little more in depth with my first post of 2019: I’m taking a closer look at what I use my phone for. Starting with the apps I love most, here are some apps I think are especially useful for people who are blind:

1. Be My Eyes. This app connects a blind person to a sighted volunteer via FaceTime. When I first heard about this app, I liked the idea of having assistance at the touch of a button, but I’ve always been a little skeptical about my camera usage and accuracy. The cool thing about this app is that Voiceover will tell you what camera it is using — the front or the back — so you know how to hold the phone. You can use this app for anything you need help with, such as reading the expiration date on an item. I recently used it to get the expiration date on my vitamins. I knew someone recently who was traveling and used it to get assistance reading a sign. Whatever you need a set of eyes for, they’re there for you 24/7.
2. Uber. We knew this would be on there because of my assistive technology journal, right? If you didn’t, that’s okay, but I knew when I thought of this blog post idea that it would be on there. As someone who travels a lot – and also as someone who doesn’t always plan when to go out, I just leave when I feel like it — this app is great. It’s also very accessible. I don’t run into issues where there are certain text fields it doesn’t read. It reads everything, and when you leave the app open as you wait for your ride, Voiceover automatically refreshes the driver’s ETA without you having to continuously check. As the driver gets closer, it automatically reads that to you.
3. Trivia Crack. This isn’t useful for my day-to-day life, but it’s useful because sometimes I need a break from school and I want to play a game. You can play against a friend or a randomly-selected opponent, but it’s basically just 25 rounds of trivia questions. You learn a lot and it’s also rare that I see games that are accessible. (Tip: The version with no advertisements, while it costs $1.99, is much more accessible than the version with occasional ads.)
4. Amazon. This app is much more accessible than the website. I recently started doing more online shopping for the holidays, now that I found out you can mark something as a gift and they’ll wrap it for you. But anyway, navigating the screen and selecting the item you want is no trouble at all. Entering a credit or debit card number is simple, too. It’s also just one of those apps that I didn’t have to have someone show me how to use. I could pretty much figure it out by myself.
5. Ariadne GPS. I’ve told pretty much every blind and visually impaired person I know to purchase this app. I think the word “purchase” has made them contemplate actually doing so. I know a lot of people like free apps, but this is 10 dollars well spent. It allows you to see your precise location when you select “where am I?” It’ll give you the address, the city, state, and even tell you what county you’re in. You can select “start monitoring” so it’ll keep updating your location. It also tells you what direction you are going, and how fast you are driving in a car. It’s the most accurate GPS app I’ve ever come across….and I’ve come across a lot that don’t work.
6. Ventra. This is a great app to use if you travel by train in the Chicago area a lot and don’t want to always carry cash with you — you can use a Ventra card instead of paying with cash. While the signing up process was a bit tedious with Voiceover (the speech synthesizer that comes with iPhones), once I got my account set up, it was great. One of my favorite features to use is “transit tracker,” that allows you to see how far away your train is. It also allows you to add a certain train to “favorites,” so if you’re like me and you typically like to take the same train at the same time, it comes in handy.
7. Read 2 Go. This app is associated with bookshare.org and costs 20 dollars, but again, it’s money well spent. I put this on the list not for its accessibility, but for what they offer. They pretty much have any book you could possibly want to read. It’s free if you are a student. If you aren’t, it’s 50 dollars a year. That sounds like a lot, but I think that’s worth it for all the audio books you could ever want.
8. Google Maps. I know, you wouldn’t think this would be as accessible as it is, since maps are pretty visual, but you’d be surprised. This is last on the list because I don’t use it too often. I used it more back when I used cabs and wanted to calculate the fare based on distance and time, so I use it a little less since I don’t typically use cabs anymore, but it comes in handy. I still use it when I’m planning trips, or when someone is picking me up and I know where they’re coming from so I can have an idea of how long it’ll take them to get here. It’s another one of those apps you can pretty much figure out yourself.

Have any apps you especially like? Leave a comment and let me know. I might give it a try!

Today, Beth and I entered Dexcom 6. No, thermonuclear war is not imminent. Dexcom 6 is a continuous blood glucose monitor (CGM). A CGM constantly monitors Beth’s blood sugar level – now, when Beth wants to know what her blood sugar level is, she doesn’t need to prick a finger, apply blood to a test strip and wait for her little contraption to call out the reading. All she has to do is fire up her Dexcom app on her iPhone, and the app—working in conjunction with the Apple IOS built-in speech program called VoiceOver—reads the current blood sugar number out loud. (The number is displayed on the phone screen for those of us with sight privilege.)

After our Chinese lunch, Beth checked her phone–it read the number out loud, and voiced that the blood sugar is level (not rising or falling). That latter information is indicated by the arrow for us sighted people.

Not only that, the Dexcom app indicates whether the blood sugar is level, on a slow rise, or a slow decline, a fast rise, or a fast decline.

It may be something of a revelation, we’ll see. Meantime, have I mentioned lately how much type 1 diabetes sucks and how much I hate it? It sucks and I hate it deeply. At it’s best—when one has it managed very well and can avoid health issues that lack of control can bring on—it is invasive, sometimes capricious (why in hell did my sugar go low?), and burdensome.

I can tell you, it’s ruined many of my evenings, woken me up in the middle of the night, busted up plans, and scared me to death. So, it sucks for me and I hate it. Did I mention that?

But imagine what it’s like for Beth and others unlucky enough to have the genes that tell their body to kill insulin-producing cells. It sucks beyond description, that’s how much.

I say all this because as a witness, I know that technological advances can help, but they can also be mistakenly considered cures by well-meaning and wishfully thinking people.

Dexcom 6 ain’t no cure, and we shouldn’t rest until we get one. All that said, I gotta say the geek in me finds it really, really cool. You take this goofy looking applicator, press the soft pad on the bottom of the applicator onto the skin on the tummy, press a button and voila! The skin is pierced with a micro needle, the needle retracts, leaving a tiny, tiny wick under the skin to measure blood sugar. Then you slip a tiny, oblong plastic thing into the clip on the sensor. That’s the transmitter, constantly sending the reading from the sensor to the phone.

The sensor needs to be changed every 10 days, so that’s kind of a hassle. But people apparently routinely swim with these things—the sensors are waterproof (sometimes a little tape hack is required).

A representative from Dexcom met us at the Chicago Library Chinatown branch this morning and she ran Beth through the whole process with me watching. Long story short—because of liability, the rep couldn’t come to our home, and she finds that it’s often easiest to simply reserve a room at a public library.

It was a little out of the ordinary, but it gave us an excuse to have one of the better lunches in my recent memory. Ming Han, dude!

Anyway, the ability to identify upward and downward trends may be a game changer. Beth tests frequently using that talking blood glucose monitor of hers, but it can be difficult to get the blood in just the right place on the test strip without being able to see. That all can result in inaccurate results and a bunch of expensive test strips going to waste. So I do a lot of tests for her, too, using a standard glucometer and saying out loud what the number on the screen says.

So I get a front row seat to the ups and downs. Even with diligent testing, despite our best efforts we often fail to figure out just what the hell is going on with her blood sugar and especially, why.

One other kind of weird thing: I can download and app and track Beth’s blood sugar in real-time, too—if she wants me to. I think I may download it but avoid using it unless Beth explicitly asks me to for one reason or another. I mean, I don’t need help being neurotic or worrying, and Beth doesn’t need a Big Brother scold. I can only imagine the fights between parents and their diabetic teenagers.

Anyway, perhaps Dexcom 6 ushers in a new era for us. We’ll see.