Blog

Mondays with Mike: Rehabilitating Ralph

May 5, 20142 CommentsPosted in Mike Knezovich, Mondays with Mike, Uncategorized

Back in the spring of 1975, I was co-editor of my high school newspaper. I would be heading to the University of Illinois in the fall, and though I wasn’t sure what I wanted to do with my life, I wanted to raise some hell in the service of the public good. Like Woodward and Bernstein, maybe. Or better yet, like Ralph Nader. (more…)

Myths and facts about donating your eyes

May 3, 20147 CommentsPosted in blindness, Braille, parenting a child with special needs, travel, Uncategorized, Writing for Children

You might remember Bennett, the six-year-old boy who gave the Braille/print copy of my children’s book, Hanni and Beth: Safe & Sound a thumbs up after reading it with his dad. “I like that book you got me, ” he told his mom. “It’s a true story, and no one ever writes true stories for kids about people who are blind like me.”

Bennett and his companion dog Journey.

Bennett and his companion dog Journey.

I’ve kept up with Bennett ever since his mom emailed me with that stellar review, and in March I wrote a post about Bennett and his parents traveling from Wisconsin to the Children’s Hospital of Pittsburgh to have Dr. Ken Nischal, one of the world’s foremost children’s eye specialists, try a cornea transplant in Bennett’s right eye. (more…)

Cheers, Billy

May 1, 201412 CommentsPosted in baseball, blindness, Blogroll, questions kids ask, Uncategorized, visiting libraries

This Saturday is Billy Balducci’s last official nightshift
bartending at Hackney’s.
Hackney’s is our local tavern, and Billy’s been tending bar there since the day it opened in November, 2001.

Longtime blog followers know Billy as the guy sitting next to me in a photo we originally published with a 2007 blog post called Cheers! — Mike and I are fortunate to know him as a dear friend. He and his wife Kathleen’s good-lookin’ boy Tommy will celebrate his first birthday next week, and Billy is leaving the bartending world for what he calls  “a big boy job.”  We wish him all the best, and in honor of this momentous occasion I am reblogging a post I published a few years ago, shortly after Billy and Kathleen got married.

Accompanied by Billy Balducci

Originally published March 4, 2010Hanging at Hackneys with bartender Billy Balducci!

When Billy heard Mike was working the night Hanni and I were scheduled to give a presentation at Prairie Trails Public Library, he offered to drive us. He doesn’t tend bar on Thursday nights, he reasoned (more…)

Mondays with Mike: A very happy anniversary

April 28, 201412 CommentsPosted in Beth Finke, guest blog, Mike Knezovich, Mondays with Mike, Uncategorized

A strange feeling followed me around last week. Like there was something I was forgetting. Finally, on Friday, during my morning walk to work, it sort of tapped me on the shoulder—for no reason I took my phone out and looked at the date.

April 25. Exactly one year since the benign tumor on Beth’s aortic valve nearly did her in. For just a split second I was brought back to the paralyzing feeling I got when the cardiologist told me that morning that Beth’s heart had gone into fibrillation, that her heart had been shocked back into rhythm, but that there was no time to waste. (more…)

Why go to art museums if you can't see the art?

April 24, 20146 CommentsPosted in blindness, Braille, Uncategorized

Last Saturday I got all dressed up and went alone with my Seeing Eye dog Whitney to a play. Tuesday the two of us went to the Art Institute of Chicago for a private guided tour. I’ve been invited to sit on a panel about services and programming that museums, theatres and other cultural institutions can provide for guests who are blind or have low vision, and it’s been so long since I’ve attended an art event with special programming that I thought I oughta brush up.

The play I went to at Merle Ruskin Theatre on Saturday featured an audio tour for people with visual impairments an hour before curtain time, and the Art Institute offers guided tours with “TacTiles” meant to help people who can’t see interpret the artwork. Lucas Livingston, the Assistant Director of Senior Programs at the Art Institute, gave me my one-on-one tour Tuesday. He had his work cut out for him.

At best, I’m ambivalent about these special programs. I credit the institutions for trying. I really do. And some special accommodations–like the advance tour before plays at Steppenwolf — have truly enriched my experience.

Harper and me with our Steppenwolf hosts during the on-stage touch tour of Who's Afraid of Virginia Woolf.

Me, Harper and our gracious Steppenwolf hosts Hilary and Malcolm, on stage during the touch tour for Who’s Afraid of Virginia Woolf?Malcolm is holding one of the breakable prop bottles and a bouquet of the plastic snapdragons which figure prominently into the play.

But when it comes to static, visual art, none of the special services I’ve tried have been particularly satisfying or enlightening.

(more…)