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A different, ahem, look at fatherhood

September 4, 20128 CommentsPosted in careers/jobs for people who are blind, radio, Uncategorized, writing

A few radio stories I’ve heard lately oughta give NPR listeners an idea of what a powerful – and positive — effect men who are blind can have on their offspring.

That’s Bob Ringwald, Molly’s father.

Let’s start with Bob Ringwald. My brother Doug introduced me to Bob years ago — they’re both jazz musicians, and they play together from time to time. Bob is blind, and his daughter Molly (yes, the one in all those John Hughes movies in the 1980s) was interviewed on Weekend Edition last month about her first novel When It Happens to You. She told Scott Simon that as a child she enjoyed sitting with her dad during movies and plays to describe the action. “I actually think that that informed my writing,” she said. “That’s something that I’ve done for so long, that it’s made me, perhaps, observe things in a different way.”

And then there’s Gore Vidal. After the famous writer and critic died in July, Bob Edwards Weekend replayed an interview conducted at Vidal’s home in Los Angeles in 2006. Vidal was raised by his grandfather, a U.S. Senator from Oklahoma. Sen. Thomas Gore was blind, and Vidal was ten years old when he started reading to him. “I read grown-up books to him: constitutional law, the Congressional Record, American history, poetry,” Vidal said. ”He was extraordinary, he was my education.” Vidal guided his grandfather to Senate hearings, and he said he didn’t dare fall asleep while sitting in the balcony waiting for the session to be over — at any moment his grandfather might give a hand signal to let young Vidal know to skedaddle down the Senate stairs to guide him to the bathroom.

And then, the live performance of This American Life that opened with Vancouver writer Ryan Knighton telling a story about a walk in the woods he took alone with his young daughter. Knighton is blind, and when she started screaming about a bear, he panicked. After weighing his options, he realized that her frantic cries of “bear!” were only in reaction to dropping her teddy bear on the sidewalk.

My sister Cheryl met Ryan Knighton years ago at a bookstore in Anacortes, Washington when he was touting his first book. His latest, C’mon Papa: Dispatches from a Dad in the Dark, is about blind fatherhood.

Ryan Knighton’s daughter is too young now to tell us what, if any, positive effects come from being raised by a man who can’t see her. I may not be a gambling woman, but I’ll betcha this: she’ll have stories to tell!

Love for Sale

August 31, 20129 CommentsPosted in baseball, guest blog, Mike Knezovich, Uncategorized

Here’s my husband Mike Knezovich back with another guest post.

Chris Sale stands 6’7” tall, weighs less than I do (I’m 5’ 10”) and when he’s on the mound pitching for the Chicago White Sox on a windy day, his uniform flaps around him like a loose nylon jacket on a

Mr. Bones, comin’ at ya.

speeding motorcyclist. Legendary Los Angeles Dodgers baseball announcer Vin Scully refers to him as “Mr. Bones.”

And I love him. Chris Sale that is. He’s won 15 games and lost five. He makes great hitters look like me when I was a little leaguer. And he is the quintessential White Sox story—that is, a great story, but still somehow not the story.

This Sunday night on ESPN, Sale will be on the mound against the Detroit Tigers’ Justin Verlander—last year’s American League Cy Young Award winner and Most Valuable Player. For true blue baseball fans, it’s a match made in heaven. For lots of casual fans, it will be the first they’ve heard or seen about Mr. Bones. That’s just the way it is with the Chicago White Sox. They’re like the solid big brother to their shrill drama queen little sister on the North Side.

I grew up in a household where both Chicago teams were always on the radio and TV. My mom and dad were both baseball fans, but my mom was the greater influence – Esther was the type who talked and yelled at the radio or TV during games. She grew up near Pittsburgh and worked summers as a waitress in Cleveland. An independent-minded woman who embodied feminism before that word existed, she was a fan of the great Bill Veeck, who owned the Cleveland Indians and eventually, the White Sox (in fact, he owned the White Sox two different times). Veeck put up the exploding scoreboard and (gasp) added players’ names to the back of their uniforms while he was here in Chicago. He also got Harry Caray to sing “Take Me out to the Ballgame” at Comiskey, introduced uniforms that included shorts, and oversaw the debacle/triumph known as “Disco Demolition.” He was not boring.

Veeck was a renegade who irked the establishment. Exactly the kind of person my mom adored. Between that and our proximity (when I and other school patrol boys got a special outing to a ball game, it was to Comiskey Park on the South Side), the Sox became mine, and I became theirs.

Almost heaven. Me at Game 1, 2005 World Series.

A friend who works in baseball once said to me, “It’s important to care deeply about something that doesn’t matter.” That’s how it is with baseball, and for me, with the White Sox. There has been heartbreak (Damn Yankees and others in the 50s and 60s, Oakland As during the 70s, the strike in ‘94) and indescribable joy (2005!).

Back in 1983, I introduced Beth to my parents at a game at old Comiskey Park. The day after our wedding, Beth and I and some dear friends who had traveled in from Washington, D.C went to a game. In July of 1985, just before our first wedding anniversary, Beth and I visited her eye doctor for a follow-up visit after a last-gasp surgery to save her eyesight. We learned that she would not see again.

Before heading back to Urbana to face our new reality, we drove to Comiskey to have a Polish sausage with onions (“wit” onions is the correct pronunciation), and take in a ball game. Twenty years later, in 2005, Beth and I and her Seeing Eye dog Hanni got seats in the handicapped section for the playoffs against Boston. Later, I sprung for game 1 of the World Series.

This year the White Sox are defying low expectations and leading their division. They’ve had a parade of rookie pitchers come through in the clutch. They have a rookie manager who’s never managed at any level before. A starting pitcher who is excelling after unprecedented surgery to fix a gruesome injury (a chest muscle tore free of the bone). They have Yankee castoffs (Jose Quintana and Dewayne Wise) and a Red Sox throwaway (Kevin Youkilis) starting. A guy from Cuba nicknamed “Tank” starts in left and one of his countrymen, Alexei Ramirez (“The Cuban Missile”) plays a sparkling shortstop.

It can be irksome, the way the White Sox story routinely gets lost in the shuffle. Then again, on a whim, Beth and I can decide to get on the Red Line, get off two stops later, get tickets at a decent price, have some great food, and see this phenomenal baseball team. So really, it’s just about right. They’re not a media sensation. They’re a baseball team. My baseball team.

P.S.

If you want to learn a little more about the White Sox, past and future, I hope you’ll read one of my favorite writers–Roger Wallenstein–at one of my favorite Web sites–The Beachwood Reporter

Look up at the stars, and not down at your feet

August 30, 20121 CommentPosted in blindness, Blogroll, careers/jobs for people who are blind, technology for people who are blind, Uncategorized

Sainsbury's Blind FootballIf you read Sandra Murillo’s guest post here, you know that the 2012 London Paralympic Games had their opening ceremonies last night. The theme for this year’s Paralympic games is scientific discovery, so Stephen Hawking was the obvious choice for narrator. From a story in the London Telegraph:

The show began with Prof Hawking’s familiar computerised voice ringing out in the Olympic Stadium.
Summing up the spirit of the ceremony, he urged the world to “look up at the stars, and not down at your feet” and to “be curious.”

The people I work with at Easter Seals Headquarters in Chicago are pretty excited for the games, and through the job I have moderating their blog I’ve learned about a pretty cool program in Britain that’s helping average kids there get excited about Paralympic sports, too.

Sainsbury’s 1 Million Kids Challenge sent Paralympics Sports Kits to kids in schools, clubs and organizations all across the United Kingdom to encourage millions of them to try out a paralympic sport ahead of the London Games this week. The kit they sent out included a link to a video game that the British grocery store chain helped put together to simulate what it’s like to be blind and play soccer. A friend of mine at work is a huge soccer fan. She can see, and when she tried the simulation she scored a 35%. I was determined to do better. Here from a post I wrote for the Easter Seals blog about my trial run:

The simulation is supposed to present you with four different soccer challenges: passing, shooting, tackling and dribbling. Superstar David Beckham introduces the video, asking players to use their ears to angle their passes based on what they hear in their headphones.

I linked to the game. David Beckham told me to put my headphones on. I did. He explained how to use the arrow keys to follow the sound of the ball, and then said to hit the space bar to pass. I put my hands on the keys and waited for the action to begin. I waited. And waited.

I could hear children playing, but got no direction of where to pass or dribble, and I had no clue what to press to get the aural clues started. I tried arrowing up, arrowing down. I hit the space bar. I hit it again. Maybe enter? Would that work? No luck.

In the end, I had to call Mike over. He could see where the button was on the screen and pushed it for me. Irony of ironies, the only way I could play the blind soccer game was to have a sighted person help me.

I was ready to get outraged, but I sat back and took a breath instead, and that’s when I realized: the blind soccer simulation video wasn’t intended for people who are blind. It was meant to give people who can see a better understanding about living with a disability.

A study by Sainsbury’s shows that the kids in Britain who tried playing a paralympic sport are more knowledgeable — and excited — about watching the Paralympicsthe in London these next couple weeks. Nearly two-thirds (62%) of the children who tried a Paralympics sport were able to specify an event that they are looking forward to watching once the Games start today.

When Whitney and I volunteered at the Summer Military Sport Camp a few weeks ago, one of the guys there encouraged me to try out some of the special equipment the athletes use. I learned that the adaptive equipment doesn’t simplify the sport or make it easier – working those machines was hard, especially on the upper body. It gave me a new appreciation for what these paralympic athletes are up against. And now, just like those kids in Britain, I’m looking forward to watching (okay, listening to) the Paralympic games these next couple weeks — the United States Olympic Committee will be creating original video content for the U.S. Paralympics YouTube channel, and NBC Sports Network (NBCSN) will air one-hour highlight shows on Sept. 4, 5, 6 and 11 at 7 p.m. EDT. Let the games begin!

What's wrong with this picture?

August 27, 201213 CommentsPosted in blindness, careers/jobs for people who are blind, Uncategorized

That’s Laura Martinez of Charlie Trotter’s.

Charlie Trotter’s, a five-star restaurant here in Chicago, is closing its doors for good this Friday, August 31. Laura Martinez, a graduate of Le Cordon Bleu, has been working at the iconic restaurant for more than two years, and now she’s having a hard time finding a new job.

Most people with a prestigious cooking school and experience in the kitchen of a five-star restaurant on their resume would have an easy time finding a new job, but Laura Martinez is not like most people. She’s blind.

Laura got her job at Charlie Trotter’s after the famous chef and restaurant owner visited the Chicago Lighthouse for the Blind. Laura had been working in the Lighthouse cafeteria kitchen at the time, and it was love at first taste. Charlie is quoted in an article in the Chicago Tribune about Laura:

“I was watching her work and saw how she handled things with her hands, touching for temperature and doneness, and I ate her food and it was quite delicious. We got to talking and she told me about her dreams and I said, ‘What would you think about working at Charlie Trotter’s?'”

Laura was already attending the prestigious Le Cordon Bleu culinary program at the Cooking and Hospitality Institute of Chicago at the time. Charlie Trotter offered to help with her tuition, and Laura accepted a job at his restaurant after she graduated.

The Illinois Department of Human Services hired a personal assistant to help Laura with on-the-job training, but then staff at Charlie Trotter’s took Laura under their wing and started providing her with supportive job assistance, removing the need for the personal assistant. I had the privilege of meeting Laura last year, and she told me co-workers on the line at Charlie Trotter’s had become comfortable having her there prepping, cleaning and chopping.

Trotter says Martinez is an exceptional worker who brought value to his restaurant. “Besides being a great cook, she brings value through her professionalism. She is a great team member.” When I talked with Laura, I asked if she had a specialty. “Well, a lot of vegetarians come to Charlie Trotter’s,” she said, her voice betraying a proud smile. “They like my vegetable risotto.”

I have Laura’s contact info, but out of respect for her privacy I won’t leave it here. If you do have an idea of a Chicago-area restaurant or restaurateur interested in hiring a graduate of Le Cordon Bleu who is a great team member with years of experience at a world–renowned five-star restaurant under her belt, please leave the idea here in a comment and I’ll pass it along to her.

Florence and the trombone machine

August 23, 201219 CommentsPosted in Flo, Uncategorized

My brother’s in town, and he brought his trombone!

That’s Doug: Has trombone, will travel.

Doug graduated from high school the year I was born, and I grew up listening to the jazz records he left behind when he embarked on his music career. Louis Armstrong, Hot Five and Hot Seven. King Oliver. Lil Hardin.

My sisters and I went with Flo to hear Doug perform live a lot, too – he played and toured with the Original Salty Dogs Jazz Band, the Smokey Stover Firehouse Band and Bob Scobey’s Frisco Jazz Band before he had to leave home to join the Marines. We all breathed a sigh of relief when he got into the 3rd Marine Air Wing Band in El Toro, CA – playing for national parades and ceremonies in the United States kept him out of Vietnam.

Before he left home, Doug bought the family a piano, and though it may have been seen as a frivolous expense on Flo’s budget, she made sure we three youngest took lessons. I wouldn’t be playing (or appreciating) the piano the way I do if it weren’t for those two. Thank you, Doug and Flo.

Once his Marine Corps days were over, Doug left his music career behind to focus on raising a family and pursuing a corporate career. Any time Doug’s name was mentioned after that, you could count on Flo to shake her head and lament, “I sure wish Doug would pick up that trombone again.” He finally did in 1996, working long and hard to get his chops back in time to put a band together to surprise Flo on her 80th birthday. Thank you, Doug and Flo.

Doug has been playing his trombone ever since, and while he and his lovely wife Shelley are in town from Louisville this week, he’ll be sitting in with a couple Chicago bands.

  • Thursday, August 23: 8 pm at Untitled, 111 W. Kinzie (312.880.1511) with the Jake Sanders Quintet. Jake used to play in New York’s Cangelosi Cards, and now he’s here to bring “the jazz age into the new age” every Thursday at this new River North dance club.
  • Sunday, August 26 8 pm at Honky Tonk BBQ on 1800 S. Racine with The Fat Babies, a Chicago-based traditional jazz group that’s heavily influenced by musicians like Bix Beiderbecke, Louis Armstrong and Jelly Roll Morton.

The Jake Sanders Quintet and the Fat Babies both feature Andy Schum on cornet, and Doug and Shelley can’t say enough about this guy. “All the musicians are young and really enthusiastic and knowledgeable about the old, old stuff,” Shelley says, adding that some of them are 78 collectors. “That’s really unusual…and wonderful!” I was thrilled to read that both of these Chicago venues boast huge dance floors. Mike and I have been enjoying SummerDance lessons in Grant Park the past couple years, and at Doug’s gigs in the early 60s we little girls all shared stints as Flo’s dancing partner. So bring your dancing shoes and look for me this weekend: I’ll be the one swinging like a hep cat on the dance floor. Thank you, Doug and Flo.