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Dad can't see me

February 20, 201420 CommentsPosted in blindness, careers/jobs for people who are blind, radio, Uncategorized, writing

If you’re one of the millions of Americans who’ve been watching hockey, curling and skiing on NBC the past couple of weeks, no doubt you’ve also seen a commercial for a new TV comedy about a father who is blind – a Deadline Hollywood article says 300 promotional spots for the new show will air before the Winter Olympics closing ceremonies this Sunday night.

“Growing up Fisher” has very talented people like Jason Bateman (executive producer) and David Schwimmer (director) behind it, and J.K. Simmons, a fine actor, plays the dad who is blind. It could be good, but if those commercials are any indication, I worry.

That’s Bob Ringwald at the piano.

I’ve run across plenty of people raised by dads who are blind, and they have interesting stories to tell. Let’s start with
Molly Ringwald.. You know, the one in all those John Hughes movies in the 1980s? Her father is blind. My brother Doug is a professional jazz trombonist, and he introduced me to Molly’s father Bob Ringwald, a talented professional jazz pianist, years ago. Molly has written a few novels, and she was asked about her dad during an NPR interview about her books. She told Scott Simon that as a child she enjoyed sitting with him during movies and plays to describe the action. “I actually think that that informed my writing,” she said. “That’s something that I’ve done for so long, that it’s made me, perhaps, observe things in a different way.”

And then there’s Gore Vidal. After the famous writer and critic died in 2012, Bob Edwards Weekend replayed an interview conducted at Vidal’s home in Los Angeles in 2006. Vidal was raised by his grandfather, a U.S. Senator from Oklahoma. Sen. Thomas Gore was blind, and Vidal was ten years old when he started reading to him. “I read grown-up books to him: constitutional law, the Congressional Record, American history, poetry,” Vidal said. ”He was extraordinary, he was my education.” Vidal guided his grandfather to Senate hearings, and he said he didn’t dare fall asleep while sitting in the balcony waiting for the session to be over — at any moment his grandfather might give a hand signal to let young Vidal know to skedaddle down the Senate stairs to guide him to the bathroom.

Growing up with a father who is blind can be interesting, and funny, too, at times. A live performance of This American Life opened with Vancouver writer Ryan Knighton telling a story about a walk in the woods he took alone with his young daughter. Knighton is blind, and when she started screaming about a bear, he panicked. After weighing his options, he realized that her frantic cries of “bear!” were only in reaction to dropping her teddy bear on the sidewalk. Knighton’s most recent book C’mon Papa: Dispatches from a Dad in the Dark is full of funny — and frightening  — stories of his first years as a father. His daughter Tess is seven years old now, and I’m sure she has some very entertaining stories to tell.

My friend Colleen was the first to call and tell me about the ads during the Olympics promoting the new blind dad TV comedy. My husband Mike confirmed that the commercial shows one scene of the father cutting a tree down with a chainsaw, and then another of him driving a car. I’m sure there are plenty of people who are blind who are looking forward to the premiere, I’m just not one of them.

Don’t get me wrong. I do hope Growing Up Fisher  is good, and that the storytelling and substance outweighs the over-the-top driving and chainsaw gimmicks featured in the trailers, but I’m not going to count on it. When I really want to learn about what it’s like to be raised by fathers who can’t see, I’ll turn to the day-to-day stories of the Ringwalds, the Knightons, and the late Gore Vidal.

Mondays with Mike: Long story short

February 17, 201410 CommentsPosted in Beth Finke, guest blog, Mike Knezovich, Uncategorized, writing

Beth’s a voracious reader of fiction…me, not so much. Some of it is lack of patience—I tend toward small non-fiction bites—newspapers, magazines, essays and the like. Novels are an investment of time that I’m rarely willing to make. Which may be why short stories comprise a lot of the small body of fiction I have read.

I am awed by the best short stories—a great short is a concentrated, perfectly executed and polished gem. Beth’s written about one of our favorite writers (and a great friend) Jean Thompson. And I can’t recommend her enough—if you were looking for a short story starting point, try “Who Do You Love.” (BTW, Jean’s a terrific novelist, too.)

In the same stratosphere, in my humble opinion, is Richard Ford, who turned 70 years old yesterday. (I know this thanks to Garrison Keillor’s Writer’s Almanac.)

A great collection of short stories.

A great collection of short stories.

Ford has won a Pulitzer for “Independence Day“, one of his three novels that follow a character named Frank Bascombe. I’ve liked all three of them, and loved his most recent novel—”Canada“—but am partial to his short stories. If you want a taste, I’d recommend “A Multitude of Sins” as a starting point.

I could go on about Ford, but I’ll save the effort and save you the trouble and just give you a taste. This passage is from “Calling,” one of Ford’s shorts from “A multitude of Sins” about a man’s complicated relationship with his complicated father. Thanks to Beth, who has a knack for finding the most thoughtful and meaningful gifts–it hangs on our living room wall. She bought the framed, signed passage from “Calling” at  the Faulkner House book store in the French Quarter. Ford lived in the Quarter part-time years back, and was friends with the store owners. He signed it after a reading at the store back in 2002.

Bad photo doesn't do it justice, but this is one of the best gifts ever.

Bad photo doesn’t do it justice, but this is one of the best gifts ever.

When I get wound up with anger and resentment, as those of you who’ve followed my posts know I am wont to do, I try to remember to read this before reaching a popping point. (I don’t always remember, but I try.) Anyway, here it is:

Like my father, I am a lawyer. And the law is a calling which teaches you that most of life is about adjustments, the seatings and re-seatings we perform to accommodate events outside our control and over which we might not have sought control in the first place. So that when we are tempted, as I was for an instant in the duck blind, or as I was through all those thirty years, to let myself become preoccupied and angry with my father, or when I even see a man who reminds me of him, stepping into some building in a seersucker suit and a bright bow tie, I try to realize again that it is best to just offer myself release and to realize I am feeling anger all alone, and that there is no redress. We want it. Life can be seen to be about almost nothing else sometimes than our wish for redress. As a lawyer who was the son of a lawyer and the grandson of another. I know this. And I also know not to expect it.

Hope springs eternal

February 14, 201426 CommentsPosted in baseball, blindness, memoir writing, Mike Knezovich, Uncategorized, writing

My writer’s group met last Tuesday, and when we got to talking about editing I brought up a part from my published memoir, Long Time, No See as an example of the value of good editors.

It’s been a while since I read that book, so after the meeting I dug up the excerpt to read it again. When I read to the last line I thought, gee whiz, this same part could work as a (somewhat unlikely!) Valentine’s Day blog post, too!

But first, the editing part. Before University of Illinois Press published Long Time, No See they had a couple editors go over my manuscript. One checked the medical information, the other copyedited and suggested literary changes, and, surprise, surprise, I discovered I actually enjoy being edited. Those University of Illinois Press editors would ask me to choose the exact word to describe something, and that would force me to put myself back into a situation and really think hard about what it felt like at the time. Not always easy, but very therapeutic.

In my rough draft, I wrote a scene where the retina specialist examines my eyes after all the surgeries and breaks the news to us. The day was July 25, 1985, just three days short of our one-year wedding anniversary. The doctor tells us I’ll never see again, we listen, and then we walk out of the office and head to White Sox Park for a baseball game.

The editors read my version and absolutely insisted that I tell my readers what was going through my head when we found out my blindness was permanent. I didn’t exactly want to describe that time of my life in detail: doing so would force me to put myself back in that room, hearing that bad news again. I did it, though, and writing that scene turned out to be GREAT therapy. I had to think. When I was told I’d never see again, was I disappointed? Angry? Sad? Scared? The answer is here, in that excerpt from Long Time, No See (University of Illinois Press, 2003):

“I’m afraid there’s nothing else we can do,” he said in a tone I recognized from his final report on my left eye.

All I could think to ask was, “Can I lift my head up now?”He said I could. Thankful for at least that, I raised my head for the first time in over a month. I was struck by a sudden feeling of freedom and relief. No more lasers, no more operations, no more weekly visits to Chicago, no more worrying whether or not this all was going to work. We’d been at this for nearly a year; now it was finally over. I swiveled my head as if to look around. I saw nothing.

Mike talked to the doctor, asking sensible questions, I suppose. Turning toward their voices, I asked if this was really it, if we’d really exhausted the possibilities. “I’m a religious man,” the doctor answered, “and in the religion I follow we believe in miracles. I believe God has cured all sorts of ailments. This could happen with you, but there’s nothing else I can do for you medically.”

We stood up to leave. I reached out for the doctor’s hand. He clasped mine with both of his, and I thanked him for all he’d done. He was shaking. I felt sorry for him; I would’ve liked to tell him we were going to be all right.
The White Sox were in town that day. Going to a ballgame after learning I’d be blind for the rest of my life was probably a strange thing to do, but it beat heading home and sitting on our pitiful second-hand couch and wondering where to turn next.

The White Sox were having a rotten year. There were maybe 8,000 people in the stands; Floyd Banister pitched, the Sox lost. But it was strangely pleasant, sitting next to Mike with my head up, not giving a thought to eyes or surgery. We each had a bratwurst and a beer. Between bites and gulps and giving me play by play, Mike bantered with other fans, cursing the underachievers on the team. I laughed at Nancy Faust, the Sox organist—she’s famous for picking songs that play on player’s names. Mike marveled at the endurance of Carlton Fisk, and we both wondered out loud why every time we went to a game, that bum Banister was pitching.

Wedding day, July 28, 1984. We're headed for our 30th this year.

Wedding day, July 28, 1984. We’re headed for our 30th this year.

The three-hour ride home was quiet. Once there, we found ourselves sitting on our miserable couch, as we’d feared, holding hands, trying to imagine how we’d cope. Our only decision that night was to go to sleep. Our bed felt wonderful. I was home for good. Despite everything, a powerful relief came over me, a sense of security, such a change from how I’d felt during those months in my hospital bed. And I realized right away that sight isn’t needed under the covers.

 

His dream = my nightmare

February 12, 20143 CommentsPosted in guest blog, Uncategorized

Our friend Greg called yesterday and recited his new lyrics for an old Christmas standard. He came up with the parody while he was raking snow and ice off their roof in suburban Chicago and generously agreed to let me share the updated song with you blog readers. Easter is on April 20 this year – let’s hope this is one dream that doesn’t come true.

I’m Dreaming of a White Easter

by Greg Schafer

That's Greg with his and Lois' dogs Gamma and Griffin.

That’s Greg with his and Lois’ dogs Gamma and Griffin.

I’m dreaming of a white Easter,
this winter you just never know.
In a white fur bonnet,
with icicles on it,
and an easter basket full of snow.
I’m dreaming of a white Easter,
with every egg that I dye white.
May your days be merry and bright,
and may all your chocolate be white.

I’m dreaming of a white Easter,
I hope what I heard isn’t true.
The easter bunny,
thought it would be funny,
to bring groundhog jerky to you.
I’m dreaming of a white Easter,
we know Tom Skilling doesn’t lie.
There’s no doubt easter will be whiiiiite,
Just, please, not the Fourth of July.

Mondays with Mike: When the going gets tough, Curt Schilling should shut up

February 10, 201414 CommentsPosted in blindness, guest blog, Mike Knezovich, parenting a child with special needs, Uncategorized

As spring training for Major League Baseball approaches, the baseball news is a little sparse—so one not-so baseballish item got a lot of attention this past week. Curt Schilling, a former pitcher and current broadcaster, announced he has cancer.

Bear with me non-baseball fans, because this isn’t about baseball—but you should probably know a couple things about Schilling. He was a terrific pitcher. He’s always loved the limelight, and he clearly loves the sound of his own voice, or the sight of his words in print. He’s a real PITA, IMHO.

That he announced his illness is neither here nor there—unless you know his propensity for attention—and then you know he’s going to milk it. Fair enough. Cancer sucks, so if it helps him in some way, fine. (Though some cancer sucks a lot worse than others, and he didn’t mention what kind he has.) But the announcement wasn’t enough for the verbally incontinent Schilling. He just had to throw this in:

“My father left me with a saying that I’ve carried my entire life and tried to pass on to our kids: ‘Tough times don’t last. Tough people do.’…

OK, I get the desire for rah-rah pep talks that some people need. And when you blab as much as Schilling does, it’s inevitable that much of what you say is stupid. But really, you have to say something like that?

Because it implies very directly that folks that don’t last through cancer—people like our friend Sheelagh or my sister Kris, for example—weren’t tough. (I can tell you, in any contest other than pitching, either would kick Schilling’s ass).

I’m singling out Schilling—but he’s hardly alone in oafishness. We have some sort of perverse need for these aphorisms. I don’t know if it’s out of fear or awkwardness or whatever, but people manage to say the worst, least helpful things in the face of difficulties. I know this first hand. When Beth lost her sight, and a year later when Gus was diagnosed with his genetic disorder, I heard ‘em all. I’ve blocked most of them out. But the classic “God doesn’t give you anything you can’t handle” was among them. My favorite, though, came from, of all people, a social worker. I think she meant it as a compliment. I don’t know.

Anyway, she took me aside after we’d had dinner with her and her husband, and said, “You know, other men would’ve left.”

Ay yay yay yay yay. I’m not sure whether she thought I was a saint or an idiot. And I don’t even want to start about what it said about what she thought about Beth. Or about my fellow males.

I know that she was not a malicious person. And I’m pretty sure Curt Schilling for all his hot air, isn’t either. I also know there is always a tendency to want to say something that helps. And it’s awkward for everyone. But in those times, it’s probably best to stop, take a breath, and say…nothing. Sometimes that’s the best you can do.