Hi folks, here’s the first of my substitute blog appearances. Hope you’ll bear with me while Beth’s in her residency at the Vermont Studio Center.–Mike

Beth and Whitney outside our hotel–Lhotel–in Montreal. The place is packed with the owner’s art collection.

On Sunday we woke up in Lhotel, went downstairs for one more sublime breakfast of sublime croissant and sublime coffee–not to mention meats and cheeses. Then it was off to…Hertz. Somehow, nothing kills a croissant buzz like a rental car. But hey, we got a nice Jetta, and we headed to Johnson, Vermont.

Beth and I had already talked about dropoff day — it was a source of quiet dread for both of us. Now, Beth getting an NEA fellowship to work on her writing was a terrific thing. The Vermont Studio Center — by multiple accounts of friends who’d spent time there — is a terrific place. Still, the dread — well beyond the natural trepidation about a month-long separation.

We figured out that it traces back almost 28 years. That’s when I dropped off Beth at what was then called the Illinois Visually Handicapped Institute — destined to be renamed Braille Jail by Beth after an up-and-down stay of nearly three months. The application process to get into IVHI had been a classic paper chase — with doctor’s reports, waivers, and endless mortgage-financing-style requests for more and more documentation.

We’d been married a year and already had spent a good portion of it apart from one another. Beth’s surgeries and hospitalizations and followup visits were in Chicago — but we lived in Urbana. So I’d see her on weekends and head back to Urbana and back to work, always hoping for the best. After the doctor said Beth would not see again, she came home. It was difficult and awkward, but at least we were together. And I wasn’t trusting her care to strangers.

So, by the fall of 1985, even though we both knew Beth needed to spend time at IVHI, the last thing we wanted was for her to go away for several months.

Still, we thought, it was worth it: Beth would learn Braille. And orientation and mobility skills (using a white cane to navigate). And the romantically labeled Activities of Daily living (cooking, cleaning, daily grind stuff). And, importantly, she’d learn to measure out and give insulin injections for herself using some adaptive tools and techniques. I’d been preparing her shots since she came home.

We moved Beth into her dorm room, we took a guided tour, we met the director. I felt like I was dropping her off at college. Except it wasn’t anything like college. It was something she had to do because she was blind. It didn’t help that though that neighborhood has changed radically for the better since 1985, back then, it was treacherous. And the place felt a little prison-like.

It was not a happy time. We said teary goodbyes, and I drove south to our apartment in Champaign. Telling myself that it was silly to worry and that this was important, all the way down the straight, flat and lonely I-57.

Well.

Not long after I got home, the phone rang. It was Beth. She had a shaky voice. I asked her what was wrong. “I’m at Cook County hospital,” she said. “WHAT!?” I boomed over the phone. I collected myself. Until Beth learned how to do her own injections, a nurse would have to do it. Except IVHI had forgotten that. And no nurse was on duty. She asked staff who were there to simply measure an injection, but they said the rules said they couldn’t do that.

So, of course, the reasonable next step was going to the Cook County Hospital emergency room, where Beth waited in a hallway for hours to receive her insulin injection. It was an awful start to an awful stay that was rife with bureaucratic snafus and delays. For example, we’d obtained a doctor’s statement that Beth was fit enough for the occupation and mobility training — which could be strenuous. But that paperwork got lost. We got replacements, but it set off a dominoes-from-hell chain reaction that prevented Beth from getting mobility training for more than a month. She really was something of a prisoner.

All of this came from an entity that was supposed to be helping. It was the last thing Beth needed at that point. I didn’t much care for it, either.

And so, whether it’s been going away to get her dogs or — going to Vermont — we are both haunted by those dark times whenever she’s headed off for an extended period of time.

Whitney likes the view outside Beth’s studio.

At the Vermont Studio Center, I helped her get situated in her room — and her cute little studio space, which happens to be right beside a lovely little stream, which runs down from lovely mountains. Nothing fancy, but, well, lovely. Still, Vermont is not know for right angles or a grid road system — which present challenges to Beth and Whitney. And we both knew it would take her days before she was confident getting from her dorm to her studio to the dining hall and back.

But, we both know she would. In a very short time on Sunday afternoon, we met terrific people — staff and fellow students–who had already been extremely helpful. And so, though it was sad to part, I felt good by the time I got home Sunday night.

And then, Monday, I got a call. “I’ve had an eventful day,” Beth said. And she had. She slept fitfully her first night. Her elbow hurt. She had a fever. One of the Vermont staff looked at her arm and said it looked bad, and wisely took her to the nearest emergency room. There, they suspected a staph infection. They did an incision — and an MRI — to determine that the infection had not gone deep into her joint and muscle tissue. Still, because of the threat of superbugs, they started her on a cocktail of antibiotics, including some pretty strong stuff.

Luckily, cultures came back that indicated it wasn’t as serious as it might have been. And the antibiotics did their job. And today, she called to say that after two nights in the hospital, she was back in her studio. Writing. With Whitney at her feet. Next to that beautiful little stream. In that beautiful little town. She’ll get visits from a nurse for 10 days, but she’s in great spirits. She says the food is terrific — the Studio has a staff chef!

Whew. She’s back. She’s fine.

And just maybe, the ghost of Braille Jail is gone. For good.

Here’s one last post I prepared before taking off for my residency at the Vermont Studio Center. Baseball season is finally here, and when I asked my friend Bob Ringwald to write a guest post about his love for the game, he willingly agreed.My brother Doug introduced me to Bob Ringwald years ago — they’re both jazz musicians, and they play together from time to time. Bob is blind, and it sounds like he’s looking forward to baseball season as much as – maybe even more than? – I am!

Take me out to the ballgame

by Bob Ringwald

The New York Giants moved to San Francisco In 1958, and that’s when I became a Giants fan. I was at a game at Candlestick park on a day when Willie Mays hit four home runs! But in the 60s and 70s, after Willie Mays left the Giants, I was working 6 and 7-nights a week as a musician. I had no time to follow baseball.

We moved to Los Angeles in 1979. One night I happened to decide to listen to a Giants – Dodgers game on the radio, and that was it: Vince Scully, the amazing Dodger play-by-play announcer, won me over. He is the best I have ever heard, and believe me, I’ve heard a lot of baseball announcers. I became a dyed-in-the wool Dodger fan.

We moved back to Northern California some 18 years ago, but I’m still a Dodger fan. I bleed Dodger Blue. Dodgers games are not heard this far north in Sacramento, but I can listen to the games using my computer on MLB dot com.

That’s Bob–Molly’s dad–announcing the lineups (reading from a Braille lineup card) at Dodger Stadium.

When we were still living in Tinsel Town, the Dodgers had a promotion once where you wrote in which baseball job you’d like to do: hang with the grounds crew, drag the base path during the 7th inning, sit with the sports writers and write your own story, hang out with the umpires, that sort of thing. I wrote a letter saying that I wanted to be the Public Address announcer. I knew someone in the P.R. department, so I handed the letter to him. That way it wouldn’t get lost in the thousands of letters I knew might come in.

On July 27, 1991 I used my Braille skills to announce the lineup for a Los Angeles Dodgers – Montreal Expos game. Guess I passed the audition: they invited me to announce the players as they came up to bat in the bottom of the 3rd inning, too, and when I put a little extra English on my announcement of Darrell Strawberry’s name, the 50,000 people in the stands went crazy. What a sense of power!

Later I was invited to go out onto the field at Dodger Stadium to see what the pitcher’s mound, bases, base path and home plate really felt like. I jumped up against the center field wall like a big league outfielder. I picked up the phone they answer in the bullpen when managers call from the dugout. I sat in the Dodger dugout alongside the famous drinking fountain that angry players have been known to destroy with their bats, and, as if that wasn’t enough, I also had the honor to sit in Vince Scully’s chair in the press box. My tour that day ended in the Dodger exercise room. Legendary Dodger manager Tommy Lasorda was on the treadmill, and we had a very interesting chat.

In the early 80s, my daughter, actress and author Molly Ringwald, sang the National Anthem at several Dodger games. Fernando Valenzuela gave her a signed baseball. Another time she was given a baseball signed by all of the 1981 World Series Championship Dodgers. I proudly display those autographed baseballs in my office.

From time to time people ask me, “If you can’t see the action, why would you want to go to the game when you could just as easily be at home listening to it on the radio?” I sometimes answer by saying “Why would you want to go to the game when you can see the action better, close up, at home on TV?” I do take a portable radio to the game to hear the play by play. But there is something more. There is the electricity of the crowd, the sound of the ball hitting the bat and mitt, the P.A. announcer, the venders selling programs, ice-cream, peanuts and other assorted goodies. And of course at Dodger Stadium there are the famous Dodger Dogs. Dodger Dogs are just regular Farmer John hot dogs. But, once you walk through the turn styles of the ball park, they become a gourmet repast.

Care to guess where I’ll be later today? Yes . . . . we’re traveling 400 miles south from Sacramento to Los Angeles to attend the Dodgers vs. Giants opening day game at Dodger Stadium. Care to take a guess which team I’ll be rooting for???

You can check out more photos of Bob’s baseball days on his web site. Play ball!

Sound the trumpets! Here’s something I never dreamed would happen to me: I’ve been awarded a writing fellowship from the National Endowment for the Arts! Mike, Whitney and I take off today for a couple days vacation in Canada, and on Sunday morning Mike will rent a car and drive Whitney and me from Montreal to Johnson, Vermont. Thanks to fellow writer Jeff Flodin, who encouraged me to apply for this fellowship, I’ll be spending the entire month of April with 50 other poets, visual artists and writers at the Vermont Studio Center, where I hope to make some progress on a manuscript I’ve been working on.

That manuscript is about all I’ve learned leading memoir-writing classes for senior citizens here in Chicago, and I got the perfect sendoff yesterday afternoon: Chicago Public Radio aired a piece on All Things Considered featuring the writers in my Wednesday class. WBEZ has been doing a special series on what was going on in people’s lives the year they turned 25: scientific studies have shown that the frontal cortex area—which governs judgment, decision-making and impulse control—doesn’t fully mature until around age 25, which can make that year a transitional one for many people. After hearing a few Chicago celebrities interviewed on WBEZ about their 25th year, I assigned “Being 25” as a topic for my own celebrities, the writers in my classes. From the WBEZ web site:

In this installment of the Year25 series, WBEZ Producer/Reporter Lauren Chooljian visits a memoir writing class for senior citizens at the Chicago Cultural Center.

Their assignment? To write 500 words about where they were at 25.

Lauren stopped by to hear their essays and talk to the students about their stories. She came to find out their teacher, writer Beth Finke, also had quite a story to tell about her 25th year. It was not only the year she was married, but it was the last year she could see. Finke has been completely blind since she was 26 years old.

Wedding day, July 28, 1984, photo by Rick Amodt

If you missed hearing the piece on the radio yesterday, never fear: you can still hear it online. Mike will fly home from Burlington this Sunday after dropping Whitney and me off in Vermont, and he has generously offered to keep up the Safe & Sound blog while I’m away. You’re in good hands.

All for now, folks: we gotta plane to catch!

This week Judy Roth, one of the writers in my Thursday afternoon memoir-writing class, arranged for Whitney and me to visit the school where her grandson Davin goes to kindergarten. My friend Carol drove us to Francis W. Parker School and agreed to write a guest post about our morning together there.

My morning at Francis W. Parker School

by Carol Dorf

The hands flew up in unison.

When I heard Beth was going to speak to kids at Francis W. Parker School, my hand immediately shot up to ask if I could accompany her. Sure, I wanted to experience Beth interacting with kids, but, truth be told, I really wanted to see what kids who attend one of the most prestigious private schools in Chicago are like. From the school Web site:

Colonel Francis W. Parker, influenced by the educational theories of John Dewey, envisioned a school that held the child at its very center. His fundamental belief was that learning could be fun and proved his point, not by theories on child psychology, but with actual classroom demonstrations. Colonel Parker believed that education included the complete development of an individual — mental, physical, and moral. Through the educational journey, students would develop in to lifelong learners and active, democratic citizens.

Colonel Parker believed that these great citizens must use their knowledge to improve the community– to make things better, more fair and pure. Parker students would graduate, not only with vast knowledge, but also with heart and soul.

Francis W. Parker School was, shall I say, quite lush: carpeted hallways, perfectly appointed decorations on the walls, modern desks, fabric lounge chairs. This was the crème de la crème.

The kindergarteners shuffled into the auditorium, and once they found their seats I could see heads bobbing and stretching to get a look at Beth and Whitney. Some kids were literally on the edges of their seats in anticipation of what would come. They waited patiently as Beth did her shpiel, and then, like mini Arnold Horshack’s, two dozen hands went up.

This was the moment I was waiting for. What questions would these “senior kindergarteners” ask: “How do you know the maid has done a good job if you can’t see?” “Who walks the dog for you?” Yes, I admit I was expecting a bunch of precocious kids asking questions that reflected their seemingly privileged lives. I pre-judged, and boy, was I wrong. What I heard instead was exactly what you’d expect from any 5-year-old:

• How do you write if you can’t see?
• Can you tell what I look like?
• If you can find your wallet, How do you know what’s in there?
• How do you make food?
• When you’re doing art, and you have to pick a color, how do you know what it is, you know, if your dog is color blind?

A big thank you to Beth for allowing me to accompany her that morning. Me and the kids at Frances W. Parker School learned a lot that day.

Many of the writers in the Wednesday memoir-writing class I’ve been leading over the years are retired public school teachers. Mary Finnegan is one of them. Mary is devoted to her brother–in-law who has disabilities, and since retiring she has been volunteering regularly at his group home. Here she is with a guest post.

Unrealistic expectations masked as idealism

by Mary Finnegan

I am a retired music teacher, and when I was teaching in the public schools, students with special needs were often mainstreamed into my music classes with no difficulties. Sometimes I had as many as three dozen students in classrooms where there weren’t enough seats for everyone, but with the help of paraprofessionals, I managed.

From time to time, however, I was required to teach self-contained special education classes alone. A self-contained classroom is a full day class at a regular school that’s just for children with disabilities. It’s usually composed of a small number of children who cannot be educated appropriately in an average classroom, and things didn’t always go well when I had to teach a class like that by myself. In one of the self-contained classes I taught, a special needs student suffered a seizure in my room. Another time I had to block the doorway with my cart to prevent a child with a behavior disorder from bolting from the room and leaving the building, which that child had done in another circumstance. These instances occurred in small class sizes.

I cannot even imagine handling larger class sizes of students with varying disabilities grouped together without the help of a paraprofessional, so I was startled to hear that the Illinois State Board of Education plans to allow local school districts to lift class size restrictions on self-contained special education classes at all levels. And that’s not all:, the number of special needs students placed in general education classrooms would no longer be limited, either, and the requirement to hire paraprofessionals would not apply in all circumstances.

Before she died, my mother-in-law often expressed gratitude for the special teachers who enabled her son to become self-sufficient to the point of managing a job in a sheltered workshop as an adult. I can only imagine how difficult it must have been for the teachers who worked with him along with his classmates who had even more severe problems. To ask one person, no matter how well trained, to meet the specific needs of students with varying degrees of mental or physical disabilities without help is unrealistic expectations masked as idealism.

This matter is open for public discussion, and you can link to this email generator to let the State Board know your feelings. You DO NOT have to be a teacher or a paraprofessional to give your opinion. In some of the news articles I’ve recently read, I learned that public opinion will be considered through April 22, 2013. Thanks in advance for expressing your opinion on this matter, and thanks to Beth for allowing me to express mine here on her blog.