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From Halsted to Diversity

October 15, 201236 CommentsPosted in Beth Finke, blindness, memoir writing, Uncategorized, visiting schools, writing

DePaul students from  a previous  visit.Every semester Janie Isackson shepherds the DePaul students enrolled in her Explore Chicago: From Halsted to Diversity class onto the Red line in Lincoln Park so they can all come visit me down here in Printers Row. Long Time, No See is required reading for the course, which involves trips to neighborhoods all over Chicago to witness diversity first-hand. Their visit here last Friday gave the students a glimpse of what it’s like to live in Chicago with a disability. They got a chance to ask about my memoir, too, and their questions were so thought-provoking I thought I’d share some with you blog readers:

  • The decision to give away things that reminded you of your old life must have been an excruciatingly tough one, but what prompted you to do so besides the difficult task of remembering small details?
  • What was it about Mike that didn’t make you second guess telling him about your diabetes? Was it something about what you saw in him, or was it just the fact that you were tired of avoiding the topic?
  • You wrote about how during your first time in “Braille Jail” you resisted starting relationships with the other students. Why do you think this is so?
  • Was it difficult parenting a child with disabilities who needed so much extra help with daily tasks, or do you think that it would have been the same if you had been able to see throughout his young life?
  • Do you have any regrets? And if you do what are they?
  • Your story is filled with supportive friends and family who offered you so much assistance, but were there any relationships you saw weaken after you became blind? Did any friends or family members become distanced or less than accommodating to your situation?
  • You wrote about difficulties in your marriage, did you stay together because you felt like you needed someone to help you or because you still loved each other? Do you think things would have ended up different if you didn’t have Gus?
  • You have written in so many different modalities and to so many different audiences. Which would be your favorite and why?
  • Do you ever wish that you had continued to stay in “Braille Jail” after you had technically graduated? Why or why not?
  • Did you ever feel a sense of guilt for Mike knowing that he had to work around your schedule/ completely change simple daily gestures due to your disability?
  • Why do you refer to your mother by her first name?

Whew! Not exactly the sorts of questions I’m asked when visiting kids in elementary schools, huh? It was flattering to have 20+ students take enough interest in my life — and my book — to come up with such thoughtful questions and then give such quiet attention to my answers: not one single cell phone went off during our time together, and I didn’t hear a single tap on a keyboard all hour, either. We did have a few laughs, too, and That Last question on the list above came as somewhat of a relief — it was easy to answer! With a fabulous name like Flo, how could I refer to her as anything else?!

Developing character

October 11, 201210 CommentsPosted in book tour, careers/jobs for people who are blind, memoir writing, Uncategorized, writing

Back in 2003, the commissioner of Chicago’s Department on Aging showed up at a bookstore event to have me sign a copy of Long Time, No See. Joyce Gallagher must have liked what

That’s my friend Carolyn Alessio.

she read – she phoned me later to invite me to lunch, and in-between bites of egg salad sandwiches at Maxim’s, she asked if I’d teach a writing class for seniors. “I have the application right here,” she said, her fingertips drumming what I guessed was a big brown envelope.

I was not a teacher. I had never taught a class in my life. I said no.

You’ll do great!” she said, passing the envelope across the table to me.

The form had been pretty much filled out already, all I needed to add was a title and syllabus for the course. For that I enlisted Carolyn Alessio to help.

Carolyn was a new friend in Chicago back then. She used to write and edit the Chicago Tribune Book Section, and she had won a Pushcart Prize — a prestigious literary award honoring the best work published in American small presses. Mike and I were still new to Chicago in 2004, and I was just starting to get used to this part of living in a city  —  you rub elbows with accomplished people like this all the time, and it’s thanks to people like Commissioner Gallagher, Carolyn Alessio and dozens of others that the “Me, Myself and I” memoir class I lead for Chicago senior citizens has been an overwhelming success. So successful, in fact, that this week I added a third memoir class to my schedule.

My friend Carolyn is a teacher with successful students, too  — she left her Tribune job to teach at Cristo Rey Jesuit High School, a private school known nationally for its innovative ideas and emphasis on building student character. She is extremely generous about sharing teaching techniques and ideas with me and is perfectly willing to let me “steal” the creative topics she comes up with for writing assignments.

During the Chicago teachers strike last month Carolyn wrote an op-ed piece for the Chicago Tribune with an anecdote about how watching clips from the 1982 film “Gandhi” helped her students understand his influence on Martin Luther King Jr.:

Gandhi quiets the crowd in the famous scene and speaks calmly but forcefully. He persuades with logic, feeling and a strong sense of ethics. He skillfully handles the British army partly with humor but also a sincere pledge to avoid physical combat or retaliation. Neither side ends up rioting, at least not as a result of that meeting.

Carolyn and her husband Jeremy have two children who attend a Chicago Public School, and while she was eager to get them back in class last month, she also supported the striking teachers. From that op-ed piece :

It might seem like I was straddling two systems, but as a private school teacher and parent of two students at a strong Chicago public school, I saw shared areas of concern. Teacher evaluations based on student test scores constituted a key dispute between Chicago Public Schools and the Chicago Teachers Union, and for good reason — defining teacher performance mainly through test scores could undermine teachers’ deeper mission of developing character.

The Chicago teacher’s strike is over. I’m guessing that “building character among students” was not a topic on the negotiating table, but it should have been. As Carolyn Alessio says, all true educators are on the same side of that mission.

Carolyn Alessio has taught high school in Chicago for the past 12 years. She is the prose editor of Crab Orchard Review, a recent guest editor of Fifth Wednesday, and the recipient of a creative writing fellowship from the National Endowment for the Arts. I am lucky — and honored — to have her as a friend.

Designed by Kayla

October 8, 201225 CommentsPosted in Beth Finke, blindness, Braille, careers/jobs for people who are blind, guide dogs, parenting a child with special needs, public speaking, Seeing Eye dogs, Uncategorized, visiting schools, Writing for Children

Whitney and I had a ball at the Youth Literature Festival in Champaign last week, and the highlight of the entire event was meeting Kayla, a delightful second grader at Westview

Whitney and Kayla took to one another…. (Photo by Chryso Mouzourou.)

Elementary School. I usually don’t let kids pet Whitney when she has her harness on, but this was an exception. Kayla is blind, and she’d never been near a guide dog before. The only way for her to see how Whitney’s harness works was to touch it.

This spunky little sprite slid right down to the floor to feel Whitney’s ears, too. And her tail. And her back. And her belly. At one point they were face-to-face. “She’s staring at me!” Kayla exclaimed in delight. “That means she likes me.”

It was true. And really, who wouldn’t like Kayla? The two of us had just met, and already I was learning a lot from her. “That must be why people stare at us sometimes,” I said with a laugh. “They like us, too!”

Before we visited Kayla’s school, Whitney and I had been treated to lunch with faculty, students and staff working on Special Friends, and they explained how the six-week program works to help average kids understand and appreciate children with disabilities.

For all six weeks, kindergarten teachers read stories about children with disabilities to their students three times a week. The Special Friends kindergarteners enjoy a 15- minute learning activity about disabilities three times a week, too. And then, the kids take home one of the books they read in class every week to read and discuss with family members. After this six-week concentration on disabilities, the Special Friends people I had lunch with Friday keep track of the kindergartners to determine the short- and long-term effects of this six-week program.

Westview Elementary, where Kayla goes to school, is one of the schools participating in Special Friends. If Kayla’s confidence and self-assurance is any indication, I’d say the six-week program is an unqualified success. When I complimented Kayla’s mom on what a terrific job she is doing raising her daughter, the mom told me Kayla has visited a couple special education students in college classes to give talks. “She comes in, says she’s blind, shows off her white cane, talks about learning Braille and tells them why they oughta like her,” her mom said with a laugh. “And by the end of the session, they do!”

And that’s when I got the idea. I invited Kayla to help us with our presentation during the festival Community Day. And so there we were the next morning, Kayla in one seat, me in the other, Whitney sandwiched between us. When it came time for me to show the SRO crowd how I use the “outside” command to have Whitney guide me to a door, Kayla whipped out her white cane to demonstrate how she finds doors, too. When we returned to our seats, a boy in the audience asked Kayla if she was going to get a dog.

Kayla didn’t answer right away, so I butted in and explained that you have to be at least 16 years old to train with a Seeing Eye dog. The Seeing Eye believes working with a guide dog demands a certain amount of physical, mental, and emotional maturity.

“In order to work with a Seeing Eye dog, you have to be with the dog all the time. You have to be the one who feeds the dog, grooms the dog, takes the dog to the vet when you need to – not your mom or dad, not your brother or sister or your grandparents – you,” I said, explaining how that’s all part of the bonding, how it helps the dog understand how important it is to keep their blind companion safe. “You guys in elementary school and middle school are busy all day learning stuff,” I continued. “You don’t get enough breaks during school to take your dog out to empty or give them the walks they need.”

Kayla is a good listener. She understood, and she had an answer for the boy’s question now. “When I’m 16, I’m getting one,” she declared.

I read from a Braille version of Hanni and Beth: Safe & Sound to the audience, and then handed it to Kayla as a gift. ”Thank you!” she gushed, and as she busied herself running her fingertips over the pages, I answered questions and explained tricks I use to do things at home: stretching a rubber band over a bottle of conditioner to distinguish it from shampoo, putting safety pins on the tags of anything I wear that’s black (paper clips for white), choosing dresses and skirts made of unique fabrics and interesting textures so I can use my sense of touch to keep track of what I’m wearing.

And then came my favorite question of the morning. A kid in the back row asked, “Kayla, what do you want to be when you grow up?”

Kayla’s answer: a fashion designer. “I want to design dresses and skirts,” she told the audience. “I’ll give them to all the girls to make them look pretty.”

Special friends

October 2, 20127 CommentsPosted in blindness, Blogroll, parenting a child with special needs, travel, Uncategorized, visiting schools, Writing for Children

What a great trip to Denver! In-between a baseball game with a puppy-in-training, a one-on-one tour of the 16th Street Mall with the head security cop there (don’t ask!), a nature walk

Waiting for our ride to the airport in sunny Denver.

with an old friend from my days working at the Kane County Cougars and the discovery of a new favorite beer afterwards (90 Shillings Scottish Ale from Odell’s Brewery in Fort Collins), I somehow managed to find enough quiet time at the hotel to make progress on a new book I’m writing, too.

More on that book later.

For now, all you need to know is that we arrived home in Chicago just in time to unpack and re-pack our bags for this Thursday, when Whitney and I head to the Youth Literature Festival put on by the College of Education at the University of Illinois. This year the Youth Literature Festival is partnering with Special Friends (a federally funded project promoting social acceptance and friendships among kindergarteners with and without disabilities)to sponsor our visit to Mrs. Coash’s kindergarten class at Westview School in Champaign.

I’ve known Mary Coash for years – her son Joey had severe and profound disabilities, and he was in self-contained special education classes with our son Gus. Like many other kids Gus introduced us to in his early years, Joey died too young. Joey’s short life inspired his mother to get a degree in education, and the kindergarten class Mary Coash teaches now mixes children with and without disabilities. After Whitney and I visit Mrs. Coash’s kindergartners on Friday, we’ll meet one-on-one with a girl who is blind and graduated from Mrs. Coash’s kindergarten a couple years ago. She’s a big second grader now and enrolled in a class with friends she made in kindergarten.

Whitney and I will be part of the festival’s Community Day on Saturday, October 6, too. Our sessions there are free and open to the public, and the Youth Literature Festival also sent special invitations encouraging parents, caregivers and participants involved in the Special Friends Project to come. I hope they do – I’d love to meet them!

Community Day takes place at the I-Hotel at 1900 S. First Street in Champaign, and our first presentation goes from 10:45 a.m. to 11:15 a.m. Our second session goes from 11:30 a.m. to 12:15 p.m. Both of our sessions meet in the “Excellence Room,” and I gotta admit: that makes me a little nervous. Talk about pressure! If you live anywhere near Champaign, I welcome you to come and see if Whitney and I can live up to our billing…

They'd be fools not to hire her

September 30, 201220 CommentsPosted in baseball, blindness, Blogroll, guest blog, guide dogs, travel, Uncategorized

Erin Lukacovic lives in Colorado and has been volunteering as a puppy-raiser for Guide Dogs for the Blind (GDB) since she was 16 years old. She has applied for an apprenticeship to become a guide dog mobility instructor, and if anyone from GDB is reading this, hey: you’d be fools not to hire her! She not only loves the dogs, but she studies, researches, and reads everything she can get her hands on about guide dogs and the work that goes into training them. That’s how she found my book, my blog, and now… me! Whitney and I had a ball with Oscar, Erin and Erin’s family at Coors Field Tuesday night, and I was so pleased when Erin agreed to write this guest post about our Rockies rendezvous.

Laughter in the rain

by Erin Lukacovic

When I read on Beth Finke’s blog that she was coming to Denver I had hoped we might meet, carrying along the realistic expectation that nothing would probably come of it. But what

Beth, Erin, Whitney and Oscar at Coors Field

started as an idle comment on a blog post and a vague hope turned into a wonderful night at a baseball game filled with enthusiastic conversation.

Less than a week after leaving that comment to Beth’s post, I was on my way downtown to meet a fellow blogger and the author of a book I had found by chance at my college library a few years previous.

My last puppy-in-training, Matilda, has returned to campus in San Rafael, so I borrowed Oscar from someone else in our puppy raising club so he could get some socialization. We met Beth at her hotel and after a brief introduction, began the short walk to Coors Field.

Although Oscar was a little distracted, Whitney was composed as she led the way in a strange city. The only break in conversation was a short “you have the green” or “let’s go” as we crossed intersections. We entered Coors Field and found our seats. They were perfect for our purposes: just under the roof and protected from rain. We had a perfect aerial view of the field and even better acoustics: we could hear the strike of ball on bat as if it was yards away.

Our conversation continued throughout the game, touching on topics of puppy raising, family, writing, books, and training with a guide dog. We had a traditional baseball meal of a foot long dog, although the green pepper instead of the more common pickle relish was a little odd.

The game sadly ended in the middle of the 7th inning due to rain. Luckily however, the Rockies broke their losing streak to win against the Chicago Cubs 10-5, despite a lack in fan base. The walk back to the hotel was slightly less pleasant than the walk there. As you can see from the picture, the rain caused both people and dogs to become pretty drenched by the time we had completed our route. We said our goodbyes with a promise of meeting again in the future.