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Florence and the trombone machine

August 23, 201219 CommentsPosted in Flo, Uncategorized

My brother’s in town, and he brought his trombone!

That’s Doug: Has trombone, will travel.

Doug graduated from high school the year I was born, and I grew up listening to the jazz records he left behind when he embarked on his music career. Louis Armstrong, Hot Five and Hot Seven. King Oliver. Lil Hardin.

My sisters and I went with Flo to hear Doug perform live a lot, too – he played and toured with the Original Salty Dogs Jazz Band, the Smokey Stover Firehouse Band and Bob Scobey’s Frisco Jazz Band before he had to leave home to join the Marines. We all breathed a sigh of relief when he got into the 3rd Marine Air Wing Band in El Toro, CA – playing for national parades and ceremonies in the United States kept him out of Vietnam.

Before he left home, Doug bought the family a piano, and though it may have been seen as a frivolous expense on Flo’s budget, she made sure we three youngest took lessons. I wouldn’t be playing (or appreciating) the piano the way I do if it weren’t for those two. Thank you, Doug and Flo.

Once his Marine Corps days were over, Doug left his music career behind to focus on raising a family and pursuing a corporate career. Any time Doug’s name was mentioned after that, you could count on Flo to shake her head and lament, “I sure wish Doug would pick up that trombone again.” He finally did in 1996, working long and hard to get his chops back in time to put a band together to surprise Flo on her 80th birthday. Thank you, Doug and Flo.

Doug has been playing his trombone ever since, and while he and his lovely wife Shelley are in town from Louisville this week, he’ll be sitting in with a couple Chicago bands.

  • Thursday, August 23: 8 pm at Untitled, 111 W. Kinzie (312.880.1511) with the Jake Sanders Quintet. Jake used to play in New York’s Cangelosi Cards, and now he’s here to bring “the jazz age into the new age” every Thursday at this new River North dance club.
  • Sunday, August 26 8 pm at Honky Tonk BBQ on 1800 S. Racine with The Fat Babies, a Chicago-based traditional jazz group that’s heavily influenced by musicians like Bix Beiderbecke, Louis Armstrong and Jelly Roll Morton.

The Jake Sanders Quintet and the Fat Babies both feature Andy Schum on cornet, and Doug and Shelley can’t say enough about this guy. “All the musicians are young and really enthusiastic and knowledgeable about the old, old stuff,” Shelley says, adding that some of them are 78 collectors. “That’s really unusual…and wonderful!” I was thrilled to read that both of these Chicago venues boast huge dance floors. Mike and I have been enjoying SummerDance lessons in Grant Park the past couple years, and at Doug’s gigs in the early 60s we little girls all shared stints as Flo’s dancing partner. So bring your dancing shoes and look for me this weekend: I’ll be the one swinging like a hep cat on the dance floor. Thank you, Doug and Flo.

Forever young

August 19, 201220 CommentsPosted in careers/jobs for people who are blind, memoir writing, Uncategorized

Last week I asked my memoir-writing students to pick a song, any song, and use that song title as the topic for their next essay. Take “All Shook Up,” for example. With a title like that, you could write about living through an earthquake. Or about a startling event in your lifetime that really left you shaken. Or, hey, if you just love Elvis, you could write about him!

That’s percussionist Audrey Mitchell in the foreground. (photo by fellow writer Darlene Sweitzer)

The song titles they came back with were as diverse as the writers who chose them. A new student in class wrote about a memorable road trip she and her husband took to West Virginia to meet his farmer uncle and aunt. Song title? “Take Me Home, Country Roads.” Annelore chose Rod Stewart’s “Forever Young” and wondered out loud why it is that she easily regards people in their forties as equals but has a hard time looking at her 40+-year-old daughter as a grown-up.

Wanda chose the title of a Billie Holiday tune to describe what life was like when “Mama started “working in private family” – Wanda’s words explaining that her mother had to live with the family she worked for. On Wednesdays, her only day home with Wanda, “Mama” would supply her young daughter with sayings like “God Bless the Child” to help them get through their days away from each other.

We had song titles from the 1930s through the 1980s, from Doris Day’s “Que Sera, Sera” to Del Shannon’s “Runaway.” And then Audrey surprised us all, choosing the title of a current song, and writing about something she’d signed up for just the week before: a class on Afro-Caribbean and World Rhythm drumming. Audrey wrote that her only previous experience with percussion had been in her kindergarten rhythm band. “I played the bell and triangle then, and that was a long time ago!” Playing percussion must be like riding a bicycle. Audrey took up right where she left off. From her essay:

After a few preliminary instructions, Carlos had this group of 25 stately senior citizens beating bongos and conga drums, tapping bells, shaking tambourines and maracas, reviving rhythms as if we had been doing it all our lives. As we played, one energized participant called out the famous Desi Arnaz’ expression…“Ba ba loo!”

The drumming class met at the Chicago Cultural Center, the same place I teach my class. Audrey has a long commute to memoir-writing class each week – she lives on the southwest side of Chicago and drives to her closest CTA stop and takes a 45-minute bus ride to downtown Chicago from there. In her essay she admits she hadn’t slep well the night before her drumming class. “I drudged on to class and am I glad I did,” she wrote at the conclusion of her essay. “When I left to go back home, I was wide awake. AND NOW, I can’t wait for the next class!”

People sometimes ask me what gets me going, what motivates me to get out of the house and do so much. Well, now you know. I’m inspired by the seniors in my memoir-writing class. Oh, and before I forget, the song title for Audrey’s essay: “Drumming Song” by Florence and the Machine.

PS: Big thanks to my friend Janie for coming up with this song title idea. If any of you blog followers out there have a song title you think might make a good writing topic for my memoir-writing classes, please leave that song title as a comment here. I’m all ears!

War wounds

August 16, 20126 CommentsPosted in Beth Finke, blindness, Uncategorized

Whitney and I sure met a lot of motivated athletes last weekend at the Summer Military Sport Camp, and as is so often the case when it comes to volunteering, we got far more out of it

It doesn’t take long for people to figure out my disability.

than we put in.

Out of respect for privacy, I won’t be sharing any specifics here about the individuals who participated in the camp, but I can tell you this: very few of the Vets I met used wheelchairs or a prosthesis of any kind to get around. The vast majority had been diagnosed with post-traumatic stress disorder (PTSD) or a traumatic brain injury (TBI).

An op-ed article about the high number of veterans coming home from Iraq or Afghanistan with mental health problems happen to come out in the New York Times the very day I started volunteering at the military sports camp. The piece follows the heartbreaking story of Maj. Ben Richards. He came home in 2007 after suffering multiple concussions in Iraq, and it took three years for him to get a diagnosis of TBI and PTSD. Richards is retiring from the U.S. Army this month, and the article quotes him saying that things might have been easier if he had lost a leg in Iraq.

”I’d trade a leg for this in a heartbeat,” Ben said. “If all I was missing was a leg, I’d be a stud. And if I’d lost a leg, I’d be able to stay in the Army. That’s all I want to do.”

That notion might sound extreme, but after reading the entire piece – and talking to some of the vets at the military sports camp last weekend – I can understand why he might feel this way. From the article:

Richards’s wife, Farrah, was thrilled when he returned “safely” from Iraq in the fall of 2007, and she counted them both very, very lucky. But almost immediately, Farrah says, she noticed that the man who came home wore her husband’s skin but was different inside. “There were obvious changes in his personality,” she recalls. “He was extremely withdrawn; he would go into the bedroom for hours.” A once boisterous dad who loved to roughhouse with his children — now there are four, ages 1 to 14 — Ben no longer seemed to know how to play with them.

I’ve never felt particularly lucky for losing my sight, but at least when people see me with a guide dog or a white cane, they know what’s up. Strangers understand if I fumble for a doorknob. They aren’t hurt when I don’t recognize them waving hello. They don’t push back if I happen to bump into them in line. It’s a different story for Major Richards. Before his injury, he had taught at West Point, and had an I.Q. of about 148. Those concussions he suffered in Iraq have left him with incapacitating headaches, overwhelming fatigue and constant insomnia. After returning to the United States he tried going back to West Point to teach, but found he couldn’t read more than a few pages at a time. He would lose his train of thought in class. Students were questioning his behavior and wondering what was wrong. Last March, Richards asked to be relieved of his teaching duties.

The article refers to traumatic brain injuries and post-traumatic stress disorder as the signature wounds of the Iraq and Afghan wars, “partly because of the strains of repeated combat tours and partly because the enemy now relies more on bombs than bullets.” After spending time with some of those veterans at the military sports camp last week, I think they all should be given medals for courage. Nicholas D. Kristof’s conclusion to his op-ed piece in the New York Timesis spot on:

In speaking out with brutal candor about his injury and decline, Maj. Ben Richards exemplifies courage and leadership. He’s not damaged goods, but a hero. Maybe, if our leaders are listening, one of his last remaining dreams is still achievable: that his story will help win better treatment for so many others like him.

I bet this opening ceremony will be a lot cooler

August 14, 201212 CommentsPosted in blindness, guest blog, Uncategorized

If you were sorry to see the 2012 Summer Olympics come to an end on Sunday, I have good news: they’re not over yet! The Summer Paralympic Games start in London on August 29, and journalism student Sandra Murillo is here with a guest post about a friend who will be competing for gold this year.

Anjali makes the team

By Sandra Murillo

Before I became a student at the University of Illinois at Urbana-Champaign I knew very little about the Paralympics. I knew that the athletes who competed in these Olympics had physical disabilities, but I had no idea what kind of training the athletes went through. I thought that any athlete with a disability could just sign up and be in the Paralympics if they wanted to.

That’s Anjali Forber-Pratt and her chariot of fire.

But then I became friends with Paralympic Medalist Anjali Forber-Pratt, and I discovered nothing could be further from the truth.

I met Anjali at U of I when we were both asked to be on a panel and share our experiences as individuals with disabilities with a class of students majoring in special education. Anjali was working on getting her Ph.D. in Human Resource Education, and from the minute I met her I sensed her determination and energetic personality.

Anjali was born in Calcutta India and was adopted when she was two months old. Two months after her adoptive parents brought her home to Natick, Massachusetts, Anjali developed Transverse Myelitis, a neurological condition that affects the spinal cord and left her paralyzed from the waist down.

Anjali tells me that as a child she thought she would eventually outgrow her disability. She admits that when she realized that would not happen she felt sad, but not for long. Anjali’s introduction to sports came during the Boston Marathon when she was only five years old. She remembers seeing the wheelchair racers competing, and that changed her life forever.

As a child Anjali practiced different sports, including wheelchair track, road racing and downhill skiing. She credits her parents and older brother for her extensive involvement in sports. As a child she and her brother would play outside together, and her brother always found ways to involve her in different activities. Anjali jokes that since she grew up with only a brother she had no choice but to learn how to play rough games and sports. She is very thankful for the support and high expectations her family has always had for her.

Today Anjali is one of the top three fastest women in the world in the 100 meter, 200 meter and 400 meter races. She has competed in the 2011 Boston Marathon and in several other national and international marathons. Anjali competed in the 2008 Paralympic games in Beijing as part of team USA, and will be competing in the 2012 Paralympic games in London. She received her Ph.D. last May and recently co-authored a children’s coloring book about athletes with disabilities.

Anjali hopes to inspire disabled and non-disabled individuals to pursue all of their dreams and goals. By having the pleasure of becoming Anjali’s friend I know she will continue her successes, both as an athlete and as a person. I’m also confident – and expect – that she’ll bring home at least one gold medal!

This just in: The United States Olympic Committee just announced today that they’ll create original video content for the U.S. Paralympics YouTube channel, and that NBC Sports Network (NBCSN) will air one-hour highlight shows on Sept. 4, 5, 6 and 11 at 7 p.m. EDT. you can watch the Paralympics from home this year!

Let's ask Miss Manners

August 11, 201226 CommentsPosted in Beth Finke, blindness, Uncategorized

The orientation packet they sent out for the Summer Military Sport Camp I’m volunteering at includes a primer on disability etiquette. Among other things, the two-page document suggests that if the situation is appropriate, we should “strike up a conversation and include the person in whatever is going on, just as you would do for an average-looking person.” I’ve read documents like this before (I work part-time at Easter Seals Headquarters, and they feature a similar list of guidelines on their web site). I am sure the people who devise these guidelines mean well, but do they realize that their well-intentioned lists might leave a person with a disability feeling, well, like they’re talking to a person who is nervous about talking to them?

The antidote? A list of do’s and don’ts that turns the notion of disability etiquette on its head. I appreciated this parody so much when I first read it that I thought the time was right to resurrect it.

What To Do when You Meet a Sighted Person
People who use their eyes to acquire information about the world are called sighted people or “people who are sighted.” Legal “sight” means any visual acuity greater than 20/200 in the better eye without correction or an angle of vision wider than 20 degrees. Sighted people enjoy rich, full, lives, as they work, play, and raise families. They run businesses, hold public offices, and teach your children.

Sighted people cannot function well in low lighting conditions and are usually helpless in total darkness. Their homes are usually brightly lit at great expense, as are businesses that cater to the sighted consumer.

How Can I Best Communicate with Sighted People?
Sighted people are accustomed to viewing the world in visual terms. This means that in many situations, they will not be able to communicate orally and may resort to pointing or other gesturing. They may also use subtle facial expressions to convey feelings in social situations. Calmly alert the sighted person to his or her surroundings by speaking slowly, in a normal tone of voice. There is no need to raise your voice when addressing a sighted person.

How Do Sighted People Get Around?
People who are sighted may walk or ride public transportation, but most choose to travel long distances by operating their own motor vehicles, usually one passenger to a car. They have gone through many hours of extensive training to learn the rules of the road in order to further their independence. Once that road to freedom has been mastered, sighted people earn a legal classification and a driver’s license, which allows them to operate a private vehicle relatively safely and independently.

How Can I Assist a Sighted Person?
At times, sighted people may need help finding things, especially when operating a motor vehicle. Your advance knowledge of routes and landmarks, particularly bumps in the road, turns, and traffic lights, will assist the “driver” in finding the way quickly and easily. Your knowledge of building layouts can also assist the sighted person in navigating complex shopping malls and offices. Sighted people tend to be very proud and will not ask directly for assistance. Be gentle, yet firm.

How Do Sighted People Read?Sighted people read via a system called “print.” Print is a series of images drawn in a two-dimensional plane. Because the person who is sighted relies exclusively on visual information, his or her attention span tends to fade quickly when reading long texts. People who are sighted generally have a poorly developed sense of touch. Braille is completely foreign to the sighted person and he or she will take longer to learn the code and be severely limited by his or her existing visual senses.

How Do Sighted People Use Computers?
Computer information is presented to sighted people in a “Graphical User Interface” or GUI. Sighted people often suffer from hand-eye coordination problems. To accommodate this difficulty, people who are sighted use a “mouse,” a handy device that slides along the desk top to save confusing keystrokes. With one button, the sighted person can move around his or her computer screen quickly and easily.
People who are sighted are not accustomed to synthetic speech and may have great difficulty understanding even the clearest synthesizer. Be patient and be prepared to explain many times how your computer equipment works.

How Can I Support a Sighted Person?
People who are sighted do not want your charity. They want to live, work and play alongside you on an equal basis. The best thing you can do to support sighted people in your community is to open yourself to their world. These citizens are vital contributing members of the community, real people with thoughts and feelings, hopes and dreams, and a story to tell. Take a sighted person to lunch today!