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Whitney and Beth (and Hanni), Safe and Sound

April 15, 201315 CommentsPosted in Beth Finke, blindness, guide dogs, Mike Knezovich, travel, Uncategorized, Writing for Children
Beth and Whit have settled into a routine up at the Vermont Studio Center.

Beth and Whit have settled into a routine up at the Vermont Studio Center.

Hi all — it’s still Mike here. Beth’s taking this work retreat seriously, staying offline as much as she can — but the short of it is, all is well. That staph infection that put a scare into us has passed, thanks to some attentive and caring folks up in Johnson, Vt. at the Vermont Studio Center, and to the the good people at Copley Hospital.Beth spent two nights at Copley, and so did Whitney — which presented a little bit of a logistical challenge when it came to taking Whitney out for “park time.” Well, the hospital staff rose to the occasion. They took Whitney out and played with her while Beth stayed attached to IV pole. And Beth and her publisher — Francine Poppo-Rich at Blue Marlin Publications — thanked them by shipping copies of “Hanni & Beth, Safe and Sound” to all the caring people who helped Beth and Whitney.

One of them — Penny Hester — took care of Whitney for an hour and a half while Beth was in the MRI tube (they were checking to be sure the infection had not spread to muscle and joint tissue). Penny is a speech/language pathologist. After she received her copy of the book, she wrote Beth a very thoughtful note — turns out Penny has a therapy dog that helps with some of her patients:

Dear Beth,
You have no idea how much it meant to me to receive your book. I used it with a patient the next day who had no idea of what being “blind” meant. With limited words he would close his eyes and point to the book-“no see Beau.” Beau is my pet therapy dog and Hanni looks very much like my Beau, in the beautifully illustrated pictures of  your book. Thank you for giving me an opportunity to open his world to a new concept.

That Hanni. Even in retirement, she’s winning friends. So is Whitney — though she’s doing it a little differently…Penny sums up Whitney’s goofball personality pretty well:

I found your sweet, clowning companion an absolute joy. She was hysterical playing with Beau’s squeaky toys. She would push her nose against the toy until it would squeak and then jump back a bit and yip.  I loved spending time with her and I was honored to be entrusted with her. When you instructed me about not letting her off her leash — it brought chills up my spine to imagine you having to worry about that when others provide her with “park time.”

Well, Beth says that thanks to Penny and all the good folks out there, she didn’t have to worry at all.

Going once, going twice…The Seeing Eye auction

April 13, 20133 CommentsPosted in blindness, guest blog, Seeing Eye dogs, Uncategorized

Hava Hegenbarth is no stranger to this space. Her first appearance was a poignant post about her assignment at the U.S. Embassy in Rwanda. Her second was about her experiences raising a puppy named Spinner for Leader Dogs in Rochester, Michigan. Hava also helps out with the Seeing Eye’s annual online auction — here she is again to tell you about it.

One of Hava's harnessed pups. You know you want one.

One of Hava’s harnessed pups. You know you want one.

It’s quickly approaching!  My favorite event of the year – the Seeing Eye’s annual on-line auction. Why you may ask, do I get such a charge out of this?

It was at their first annual that I won an item listed as “Spend a day with Seeing Eye instructors.” That day we loaded up some dogs and headed to New York City. There I watched the instructors train the dogs. It was fascinating. After an hour or so, they announced it was my turn. They blindfolded me and handed me a harness. They led me to a dog. That patient dog stood while I clumsily attempted to put his harness on him. I finally got it right and stood up.  I was then told to command the dog forward.

I was terrified! Being blind felt so claustrophobic. The instructors understood. They were kind and encouraging but insistent.

“Just follow your dog.” They told me.

I took a step forward. It was alright.  Nothing bad happened to me. Another step and then another.  Soon I was confidently walking around New York as if had all my life.  What a thrilling experience!

Grateful, I have since then, tried to contribute items to the auction because I really believe in and support what the Seeing Eye does. What I mainly contribute are plush toy dogs which I’ve fit with hand-made leather guide harnesses. These have proved to be immensely popular with bidders.

At first I knew nothing of working with leather and my first harness attempts were somewhat crude.  I studied the craft and acquired some proper tools. Last year I went out to Massachusetts to work with the people who make harnesses for the Seeing Eye. They put me to work making real harnesses. I learned a great deal from them. My latest works are considerably improved. They do look authentic, but I always make them too small to fit a real dog as I do not want to make a harness that could be misused. In any case the harness handles are only leather-covered wire which would never stand up to actual use.

If you think you’d like to own one of these plush harnessed dogs or any of hundreds of other exciting items (including dinner for 4 with Betty White, or Spend a Day with Seeing Eye Instructors) check out the Seeing Eye’s 5th annual on-line auction.  The auction begins April 22 this year and you can find a link to it as well as instructions for registering to bid at the Seeing Eye’s website: www.seeingeye.org. They are also still accepting donations for their auction if you feel inclined to give.

Happy bidding and hope that you win!

Oh Canada!

April 7, 20135 CommentsPosted in blindness, Uncategorized

Hi folks–FYI, Beth’s recovered nicely from her little ordeal, though Whitney’s testing her a little bit. Thanks for all the good wishes, I’ve passed them along to Beth, who seems to

Beth and Whitney outside our hotel--Lhotel--in Montreal.

Beth and Whitney outside our hotel — Lhotel — in Montreal.

be taking full advantage of the solitude and unplugging herself.

Now, let’s see. Before Roger Ebert died last week and before Beth was diagnosed with that staph infection we were in…Montreal!

Our three nights/two days in Montreal were magnificent — starting with our cab ride from the airport. You know Beth’s not shy about talking to everyone, especially cab drivers, and we got a cabbie who was articulate, extremely well-educated, well-informed, and talkative. Ethiopian by descent, he and his family immigrated to Montreal from Israel more than 20 years ago. During our half-hour or so drive, we got a taste of Canadian history and the politics surrounding the Quebecois separatist movement, of the state of Montreal’s economy…and pointers on where to walk, what to see, where to eat — and why fast food doesn’t fly in Montreal, only good food does.

He dropped us in Old Montreal — the oldest part of the city — at our hotel, called Lhotel, housed in a hundreds-year-old former bank building. It was formerly known as Hotel Xixe Siecle (Hotel 19th Century) — and some friends who had stayed there years ago recommended it to us. About three years ago, though, it was bought by Georges Marciano — a cofounder of Guess Jeans and art collector. He moved into the hotel — with his collection — which hangs in the lobby, hallways and rooms. We were in the Chagall room (and yes, there were Chagall prints). From an article about him in Macleans:

Guests wandering the halls of the five-floor hotel are treated to approximately 250 original works by A-list artists like Roy Lichtenstein, Robert Rauschenberg, James Rosenquist, Jasper Johns, Frank Stella, Jim Dine, Ed Ruscha, Christo, Claes Oldenburg, Willem de Kooning, and Robert Motherwell. Most are prints with their Sotheby’s or Christie’s stickers still on the bottom right corner, but some are paintings, like After by Jasper Johns and Night Clouds by Michael Gallagher. A portrait of Marciano created by Andy Warhol hangs over the sortie sign at reception.

Out front is one of the LOVE sculptures that Robert Indiana originally created for the Museum of Modern art in 1964. If you go back far enough, you know that sculpture — and variations on it — became ubiquitous during the late 60s and into the 70s.

In all, it was like living in a museum — one night after Beth went to sleep I just wandered the halls to take my time taking in the work. But the artwork was equalled by the staff — in particular a young woman with the absolutely appropriate name of Summer. The evening we arrived we were zonked and only wanted to eat and retire. Summer gave us what proved to be a perfect recommendation for a Bistro-ish place called Holder, only a few blocks away.

It was packed and bustling but not so noisy that we couldn’t have a nice conversation and Beth, as is her wont, got some good eavesdropping in, testing what was left of her French at times. (And there was no TV to be found, even behind the copper-clad bar!) Every person we encountered — in stores, restaurants, wherever — spoke French and English, and many so well that I swear I wasn’t sure what their first language was. I think because in some cases, there was no “first.” If there is tension about the language, we didn’t see it. There had been no succession, but French — language and culture — lives, and in my view, that’s for the better. The people we encountered were very attentive, but not in that corporate “I had to take human being lessons and introduce myself as your server” way. They were playful and charming.

By day we walked. And walked and walked. Whitney did quite well on Old Montreal’s streets, where she masterfully threaded Beth through crowded and very narrow sidewalks. I just lagged behind an marveled. We headed up St. Laurent, which years ago marked a separation between French and English-speaking Montreal. We walked miles passing through distinctive neighborhoods — Chinatown, through a Portuguese section, then a more gentrified section filled with high end kitchen and furniture shops.

Whitney did a good job.

Whitney did a good job.

And we landed at a little bakery recommended by Summer  — croissant, coffee, and Rioppelle cheese, a Quebec specialty. (Get some if you can–imagine a soft cheese, like Brie, but with a full, nutty flavor). Beth and I ate slowly — comparing the offering to our morning’s croissants at the hotel breakfast. Ahhh. I felt like Joni Mitchell’s Free Man in Paris. Unfettered and alive. But in Montreal, not Paris.

There were two places recommended to us that we did not make it to — Schwartz’s deli, for its signature smoked meat (that’s what they call it–just smoked meat) that is apparently like pastrami on steroids. We walked by but the line was more than we wanted — the weather was beautiful and we were enjoying our walk too much. Plus, we had to burn off the morning croissant to make room for the afternoon’s.

We also intended to go to Au Pied du Cohcn for what sounds like a pork fest, but we failed to land a reservation. Summer came to the rescue. She put it this way: “We have lots and lots of places that will make you feel like you’ve been transported to Paris, but if you were thinking Au Pied Du Cohon, I’d recommend L’Original. It’s very Quebeccoisehttp://restaurantholder.com/en.”

L’Original it was. I had boar shoulder that had been braised and then coated in some sort of divine demi glace. Think pork with more flavor and succulence. Beth had Halibut. Beyond that, we had too much good food to catalog, but I will say that the mussels and frites, yes, they transported me.

On our last night, a Brazilian jazz trio played in our hotel lobby bar. And they were good! Think Gilberto, but they also did some regional styles that we’d never heard before but fully enjoyed.

I can’t really do it justice — I will say that if you get a chance, go! It has much of the kinds of appeal that New Orleans has — it has the energy and texture and variety that only a cultural and historical crossroads can create. In fact, I’d say it’s earned a repeat visit for us.

P.S. — Summer and some friends made a short documentary about their trip across Canada. Which is really big. So check it out: www.vimeo.com/smyc or email showmeyourcanada@gmail.com

 

Ebert's number one fan

April 5, 20133 CommentsPosted in Blogroll, guest blog, technology for people who are blind, Uncategorized, writing
The show will go on at this year's 15th Annual Ebertfest. Tilda Swinton, Shailene Woodley and Jack Black are all expected to attend this year's festival.

The show will go on at this year’s 15th Annual Ebertfest. Tilda Swinton, Shailene Woodley and Jack Black are among those expected to attend this year’s festival.

Hey, it’s Mike again–I promise I’ll fill you in on Montreal eventually, but the sad event  of yesterday — the death of Roger Ebert — changed my plans. My longtime and dear friend, Brand Fortner, was without question Roger Ebert’s biggest fan. FYI: I met Brand  back in 1990. He was a co-founder of Spyglass, a then tiny startup software company in Champaign, Ill., that was spun off from the National Center for Supercomputing Applications at the University of Illinois. And he hired me. It remains the best and most fulfilling job I’ve ever had — it led to an unforgettable ride during the dot.com days, and the success of Spyglass changed my, Beth’s and our son Gus’s life for the better. Best of all,  Brand and I have remained friends.

I’m like a lot of people — I fully enjoyed Roger Ebert, even when I didn’t agree with him. But no one loved or respected Ebert more than Brand, who has also always attended and supported Ebertfest, a terrific film festival held in Champaign’s historic Virginia Theater each year.

After yesterday’s news, Brand was good enough to share a little essay his daughter Paula had written in college about what it was like to grow up with someone who worshipped at the altar of Roger. Paula—-now an accomplished adult (yikes) in her own right — was good enough to let me share it here on Beth’s blog. I hope you enjoy it as much as I did. 

Roger and Dad

My dad idolizes Roger Ebert. He has Ebert posters hanging on his walls and Ebert movie yearbooks filling his bookcases. Every year, my dad attends Roger Ebert’s Overlooked Film Festival and comes back laden with souvenir hats, bags and t-shirts. Above my dad’s desk hangs a signed, framed photo of Roger Ebert shaking his hand. “To Brand, on the occasion of HAL 9000’s birthday,” Roger wrote, adding a quote from HAL’s demise in the movie 2001: A Space Odyssey… “Daisy … daisy …”.
When we were younger, my brothers and I needed my dad’s approval before going to the movie theater. My dad never cared about a movie’s rating, violence or explicit content. Rather, he needed to discuss whether Roger would approve of our choice.”You want to see that movie?” he’d ask. “Well, you know what Roger said about it, don’t you?” My brothers and I would look at each other and sigh. My dad would pull up the review and read to us from the holy word of Roger. We almost never made it to the theater by showtime.
My dad has bought nearly every film that Roger liked, and as a result, he owns hundreds of movies. Although my dad has barely seen a quarter of the movies he owns, he knows what Roger thinks of each one. For the movies my dad has seen, his opinion is intertwined with Roger’s. I remember my dad once telling me that he hadn’t enjoyed a movie that Roger rated favorably. After some consideration, my dad decided to watch the movie again to better understand Roger’s opinion.
When I was in high school, my friends would drop by to borrow movies from our massive collection. This pleased my dad to no end. He even made his own video rental cards and checkout slips to facilitate the borrowing process. And he loved spreading the gospel of Roger. If a friend wanted to borrow a particular movie, my dad would sit him down and walk him through Roger’s review. Then my dad would jump up. “Oh, and if you like this movie, I know at least six more that you’ll love.” My friends always left with their hands full. Even now, I still turn to my dad for movie advice. Whether I’m in the mood for a mindless action flick or a foreign drama, he knows exactly what to recommend. My dad really knows his movies. Or, rather, he really knows his Roger Ebert.

A familiar and most unwelcome feeling

April 3, 201322 CommentsPosted in blindness, careers/jobs for people who are blind, guest blog, guide dogs, Seeing Eye dogs, travel, Uncategorized

Hi folks, here’s the first of my substitute blog appearances. Hope you’ll bear with me while Beth’s in her residency at the Vermont Studio Center.–Mike

So, Beth and I were in Montreal before we dropped her in Vermont. Everything about our Quebec weekend was fabulous. Fantastic food, charming people–and some great artwork–in our hotel! But more on that later. First, a dispatch about Beth’s first week in Vermont.
Beth and Whitney outside our hotel--Lhotel--in Montreal. The place is packed with the owner's art collection.

Beth and Whitney outside our hotel–Lhotel–in Montreal. The place is packed with the owner’s art collection.

On Sunday we woke up in Lhotel, went downstairs for one more sublime breakfast of sublime croissant and sublime coffee–not to mention meats and cheeses. Then it was off to…Hertz. Somehow, nothing kills a croissant buzz like a rental car. But hey, we got a nice Jetta, and we headed to Johnson, Vermont.
Beth and I had already talked about dropoff day — it was a source of quiet dread for both of us. Now, Beth getting an NEA fellowship to work on her writing was a terrific thing. The Vermont Studio Center — by multiple accounts of friends who’d spent time there — is a terrific place. Still, the dread — well beyond the natural trepidation about a month-long separation.
We figured out that it traces back almost 28 years. That’s when I dropped off Beth at what was then called the Illinois Visually Handicapped Institute — destined to be renamed Braille Jail by Beth after an up-and-down stay of nearly three months. The application process to get into IVHI had been a classic paper chase — with doctor’s reports, waivers, and endless mortgage-financing-style requests for more and more documentation.
We’d been married a year and already had spent a good portion of it apart from one another. Beth’s surgeries and hospitalizations and followup visits were in Chicago — but we lived in Urbana. So I’d see her on weekends and head back to Urbana and back to work, always hoping for the best. After the doctor said Beth would not see again, she came home. It was difficult and awkward, but at least we were together. And I wasn’t trusting her care to strangers.
So, by the fall of 1985, even though we both knew Beth needed to spend time at IVHI, the last thing we wanted was for her to go away for several months.
Still, we thought, it was worth it: Beth would learn Braille. And orientation and mobility skills (using a white cane to navigate). And the romantically labeled Activities of Daily living (cooking, cleaning, daily grind stuff). And, importantly, she’d learn to measure out and give insulin injections for herself using some adaptive tools and techniques. I’d been preparing her shots since she came home.
We moved Beth into her dorm room, we took a guided tour, we met the director. I felt like I was dropping her off at college. Except it wasn’t anything like college. It was something she had to do because she was blind. It didn’t help that though that neighborhood has changed radically for the better since 1985, back then, it was treacherous. And the place felt a little prison-like.
It was not a happy time. We said teary goodbyes, and I drove south to our apartment in Champaign. Telling myself that it was silly to worry and that this was important, all the way down the straight, flat and lonely I-57.
Well.
Not long after I got home, the phone rang. It was Beth. She had a shaky voice. I asked her what was wrong. “I’m at Cook County hospital,” she said. “WHAT!?” I boomed over the phone. I collected myself. Until Beth learned how to do her own injections, a nurse would have to do it. Except IVHI had forgotten that. And no nurse was on duty. She asked staff who were there to simply measure an injection, but they said the rules said they couldn’t do that.
So, of course, the reasonable next step was going to the Cook County Hospital emergency room, where Beth waited in a hallway for hours to receive her insulin injection. It was an awful start to an awful stay that was rife with bureaucratic snafus and delays. For example, we’d obtained a doctor’s statement that Beth was fit enough for the occupation and mobility training — which could be strenuous. But that paperwork got lost. We got replacements, but it set off a dominoes-from-hell chain reaction that prevented Beth from getting mobility training for more than a month. She really was something of a prisoner.
All of this came from an entity that was supposed to be helping. It was the last thing Beth needed at that point. I didn’t much care for it, either.
And so, whether it’s been going away to get her dogs or — going to Vermont — we are both haunted by those dark times whenever she’s headed off for an extended period of time.
Whitney likes the view outside Beth's studio.

Whitney likes the view outside Beth’s studio.

At the Vermont Studio Center, I helped her get situated in her room — and her cute little studio space, which happens to be right beside a lovely little stream, which runs down from lovely mountains. Nothing fancy, but, well, lovely. Still, Vermont is not know for right angles or a grid road system — which present challenges to Beth and Whitney. And we both knew it would take her days before she was confident getting from her dorm to her studio to the dining hall and back.

But, we both know she would. In a very short time on Sunday afternoon, we met terrific people — staff and fellow students–who had already been extremely helpful. And so, though it was sad to part, I felt good by the time I got home Sunday night.
And then, Monday, I got a call. “I’ve had an eventful day,” Beth said. And she had. She slept fitfully her first night. Her elbow hurt. She had a fever. One of the Vermont staff looked at her arm and said it looked bad, and wisely took her to the nearest emergency room. There, they suspected a staph infection. They did an incision — and an MRI — to determine that the infection had not gone deep into her joint and muscle tissue. Still, because of the threat of superbugs, they started her on a cocktail of antibiotics, including some pretty strong stuff.
Luckily, cultures came back that indicated it wasn’t as serious as it might have been. And the antibiotics did their job. And today, she called to say that after two nights in the hospital, she was back in her studio. Writing. With Whitney at her feet. Next to that beautiful little stream. In that beautiful little town. She’ll get visits from a nurse for 10 days, but she’s in great spirits. She says the food is terrific — the Studio has a staff chef!
Whew. She’s back. She’s fine.
And just maybe, the ghost of Braille Jail is gone. For good.